Views of patients suffering from Failed Back Surgery Syndrome on their health and their ability to adapt to daily life and self-management: A qualitative exploration
The clinical outcomes of Spinal Cord Stimulation (SCS) therapy in patients with a Failed Back Surgery Syndrome (FBSS) is mostly done by standardized pain and quality of life measurements instruments and hardly account for personal feelings and needs as a basis for a patient-centred approach and shar...
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| creator | Hamm-Faber, Tanja E Engels, Yvonne Vissers, Kris C P Henssen, Dylan J H A |
| description | The clinical outcomes of Spinal Cord Stimulation (SCS) therapy in patients with a Failed Back Surgery Syndrome (FBSS) is mostly done by standardized pain and quality of life measurements instruments and hardly account for personal feelings and needs as a basis for a patient-centred approach and shared decision making.
The objective of this study is to explore perspectives on personal health and quality of life (QoL) in FBSS patients concerning their physical-, psychological and spiritual well-being prior to receiving an SCS system.
We performed face-to-face, semi-structured, in-depth interviews to obtain descriptive and detailed data on personal health, guided by the Web diagram of Positive Health (Huber et al.) and a topic list. The following main topics were assessed qualitatively: 1) Bodily functioning, 2) Mental function and perception 3) Spiritual dimension, 4) Quality of life, 5) Social and societal participation and 6) Daily functioning.
Seventeen FBSS patients (eight male, nine female) were included from April-November 2019 at the department of pain medicine in the Albert Schweitzer Hospital in the Netherlands. Median age 49 years; range 28 to 67 years, and patients underwent between one and five lumbar surgical operations. The duration of their chronic pain was between four and 22 years. After analyzing the interviews, three themes emerged: 1) dealing with chronic pain, 2) the current situation regarding aspects of positive health, and 3) future perspectives on health and quality of life. These themes arose from eleven categories and a hundred ninety codes.
This qualitative study explored FBSS patients 'views on their health and the ability to adapt to daily life having complex chronic pain, and showed that patients experienced shortcomings in daily life within the six dimensions of the Web diagram of Positive Health before the SCS implant. |
| doi_str_mv | 10.1371/journal.pone.0243329 |
| format | Article |
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The objective of this study is to explore perspectives on personal health and quality of life (QoL) in FBSS patients concerning their physical-, psychological and spiritual well-being prior to receiving an SCS system.
We performed face-to-face, semi-structured, in-depth interviews to obtain descriptive and detailed data on personal health, guided by the Web diagram of Positive Health (Huber et al.) and a topic list. The following main topics were assessed qualitatively: 1) Bodily functioning, 2) Mental function and perception 3) Spiritual dimension, 4) Quality of life, 5) Social and societal participation and 6) Daily functioning.
Seventeen FBSS patients (eight male, nine female) were included from April-November 2019 at the department of pain medicine in the Albert Schweitzer Hospital in the Netherlands. Median age 49 years; range 28 to 67 years, and patients underwent between one and five lumbar surgical operations. The duration of their chronic pain was between four and 22 years. After analyzing the interviews, three themes emerged: 1) dealing with chronic pain, 2) the current situation regarding aspects of positive health, and 3) future perspectives on health and quality of life. These themes arose from eleven categories and a hundred ninety codes.
This qualitative study explored FBSS patients 'views on their health and the ability to adapt to daily life having complex chronic pain, and showed that patients experienced shortcomings in daily life within the six dimensions of the Web diagram of Positive Health before the SCS implant.</description><identifier>ISSN: 1932-6203</identifier><identifier>EISSN: 1932-6203</identifier><identifier>DOI: 10.1371/journal.pone.0243329</identifier><identifier>PMID: 33284851</identifier><language>eng</language><publisher>United States: Public Library of Science</publisher><subject>Activities of Daily Living - psychology ; Adaptation, Psychological ; Adult ; Aged ; Anesthesiology ; Back pain ; Back surgery ; Biology and Life Sciences ; Chronic pain ; Clinical decision making ; Decision making ; Failed Back Surgery Syndrome - physiopathology ; Failed Back Surgery Syndrome - psychology ; Female ; Health aspects ; Hospitals ; Humans ; Intervention ; Interviews ; Low back pain ; Male ; Medicine ; Medicine and Health Sciences ; Middle Aged ; Outpatient care facilities ; Pain ; Palliative care ; Patients ; Professional ethics ; Professionals ; Qualitative research ; Quality of life ; Quality of Life - psychology ; Research and Analysis Methods ; Schweitzer, Albert ; Self care (Health) ; Social aspects ; Society ; Spinal cord ; Surgery ; Surveys ; Webs ; Well being</subject><ispartof>PloS one, 2020-12, Vol.15 (12), p.e0243329-e0243329</ispartof><rights>COPYRIGHT 2020 Public Library of Science</rights><rights>2020 Hamm-Faber et al. This is an open access article distributed under the terms of the Creative Commons Attribution License: http://creativecommons.org/licenses/by/4.0/ (the “License”), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>2020 Hamm-Faber et al 2020 Hamm-Faber et al</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c692t-814cf325cb8aab7ac91c9c2d54f7ce4161f85b52dec2101892404d6b96fa3ef23</citedby><cites>FETCH-LOGICAL-c692t-814cf325cb8aab7ac91c9c2d54f7ce4161f85b52dec2101892404d6b96fa3ef23</cites><orcidid>0000-0001-9901-512X ; 0000-0002-2919-6356 ; 0000-0002-7669-1018</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC7721158/pdf/$$EPDF$$P50$$Gpubmedcentral$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC7721158/$$EHTML$$P50$$Gpubmedcentral$$Hfree_for_read</linktohtml><link.rule.ids>230,314,723,776,780,860,881,2096,2915,23845,27901,27902,53766,53768,79343,79344</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/33284851$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><contributor>Soundy, Andrew</contributor><creatorcontrib>Hamm-Faber, Tanja E</creatorcontrib><creatorcontrib>Engels, Yvonne</creatorcontrib><creatorcontrib>Vissers, Kris C P</creatorcontrib><creatorcontrib>Henssen, Dylan J H A</creatorcontrib><title>Views of patients suffering from Failed Back Surgery Syndrome on their health and their ability to adapt to daily life and self-management: A qualitative exploration</title><title>PloS one</title><addtitle>PLoS One</addtitle><description>The clinical outcomes of Spinal Cord Stimulation (SCS) therapy in patients with a Failed Back Surgery Syndrome (FBSS) is mostly done by standardized pain and quality of life measurements instruments and hardly account for personal feelings and needs as a basis for a patient-centred approach and shared decision making.
The objective of this study is to explore perspectives on personal health and quality of life (QoL) in FBSS patients concerning their physical-, psychological and spiritual well-being prior to receiving an SCS system.
We performed face-to-face, semi-structured, in-depth interviews to obtain descriptive and detailed data on personal health, guided by the Web diagram of Positive Health (Huber et al.) and a topic list. The following main topics were assessed qualitatively: 1) Bodily functioning, 2) Mental function and perception 3) Spiritual dimension, 4) Quality of life, 5) Social and societal participation and 6) Daily functioning.
Seventeen FBSS patients (eight male, nine female) were included from April-November 2019 at the department of pain medicine in the Albert Schweitzer Hospital in the Netherlands. Median age 49 years; range 28 to 67 years, and patients underwent between one and five lumbar surgical operations. The duration of their chronic pain was between four and 22 years. After analyzing the interviews, three themes emerged: 1) dealing with chronic pain, 2) the current situation regarding aspects of positive health, and 3) future perspectives on health and quality of life. These themes arose from eleven categories and a hundred ninety codes.
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psychology</topic><topic>Adaptation, Psychological</topic><topic>Adult</topic><topic>Aged</topic><topic>Anesthesiology</topic><topic>Back pain</topic><topic>Back surgery</topic><topic>Biology and Life Sciences</topic><topic>Chronic pain</topic><topic>Clinical decision making</topic><topic>Decision making</topic><topic>Failed Back Surgery Syndrome - physiopathology</topic><topic>Failed Back Surgery Syndrome - psychology</topic><topic>Female</topic><topic>Health aspects</topic><topic>Hospitals</topic><topic>Humans</topic><topic>Intervention</topic><topic>Interviews</topic><topic>Low back pain</topic><topic>Male</topic><topic>Medicine</topic><topic>Medicine and Health Sciences</topic><topic>Middle Aged</topic><topic>Outpatient care facilities</topic><topic>Pain</topic><topic>Palliative care</topic><topic>Patients</topic><topic>Professional ethics</topic><topic>Professionals</topic><topic>Qualitative research</topic><topic>Quality of life</topic><topic>Quality of Life - psychology</topic><topic>Research and Analysis Methods</topic><topic>Schweitzer, Albert</topic><topic>Self care (Health)</topic><topic>Social aspects</topic><topic>Society</topic><topic>Spinal cord</topic><topic>Surgery</topic><topic>Surveys</topic><topic>Webs</topic><topic>Well being</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Hamm-Faber, Tanja E</creatorcontrib><creatorcontrib>Engels, Yvonne</creatorcontrib><creatorcontrib>Vissers, Kris C P</creatorcontrib><creatorcontrib>Henssen, Dylan J H A</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Opposing Viewpoints in Context (Gale)</collection><collection>Gale In Context: Science</collection><collection>ProQuest Central (Corporate)</collection><collection>Animal Behavior Abstracts</collection><collection>Bacteriology Abstracts (Microbiology B)</collection><collection>Biotechnology Research Abstracts</collection><collection>Proquest Nursing & Allied Health Source</collection><collection>Ecology Abstracts</collection><collection>Entomology Abstracts (Full archive)</collection><collection>Immunology Abstracts</collection><collection>Meteorological & Geoastrophysical Abstracts</collection><collection>Nucleic Acids Abstracts</collection><collection>Virology and AIDS Abstracts</collection><collection>Agricultural Science Collection</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Medical Database (Alumni Edition)</collection><collection>ProQuest Pharma Collection</collection><collection>Public Health Database</collection><collection>Technology Research Database</collection><collection>ProQuest SciTech Collection</collection><collection>ProQuest Technology Collection</collection><collection>ProQuest Natural Science Collection</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>Materials Science & Engineering Collection</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest One Sustainability</collection><collection>ProQuest Central UK/Ireland</collection><collection>Advanced Technologies & Aerospace Collection</collection><collection>Agricultural & Environmental Science Collection</collection><collection>ProQuest Central Essentials</collection><collection>Biological Science Collection</collection><collection>ProQuest Central</collection><collection>Technology Collection</collection><collection>Natural Science Collection</collection><collection>Environmental Sciences and Pollution Management</collection><collection>ProQuest One Community College</collection><collection>ProQuest Materials Science Collection</collection><collection>ProQuest Central Korea</collection><collection>Engineering Research Database</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Central Student</collection><collection>AIDS and Cancer Research Abstracts</collection><collection>SciTech Premium Collection</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Materials Science Database</collection><collection>Nursing & Allied Health Database (Alumni Edition)</collection><collection>Meteorological & Geoastrophysical Abstracts - 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Academic</collection><collection>PubMed Central (Full Participant titles)</collection><collection>DOAJ Directory of Open Access Journals</collection><jtitle>PloS one</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Hamm-Faber, Tanja E</au><au>Engels, Yvonne</au><au>Vissers, Kris C P</au><au>Henssen, Dylan J H A</au><au>Soundy, Andrew</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Views of patients suffering from Failed Back Surgery Syndrome on their health and their ability to adapt to daily life and self-management: A qualitative exploration</atitle><jtitle>PloS one</jtitle><addtitle>PLoS One</addtitle><date>2020-12-07</date><risdate>2020</risdate><volume>15</volume><issue>12</issue><spage>e0243329</spage><epage>e0243329</epage><pages>e0243329-e0243329</pages><issn>1932-6203</issn><eissn>1932-6203</eissn><abstract>The clinical outcomes of Spinal Cord Stimulation (SCS) therapy in patients with a Failed Back Surgery Syndrome (FBSS) is mostly done by standardized pain and quality of life measurements instruments and hardly account for personal feelings and needs as a basis for a patient-centred approach and shared decision making.
The objective of this study is to explore perspectives on personal health and quality of life (QoL) in FBSS patients concerning their physical-, psychological and spiritual well-being prior to receiving an SCS system.
We performed face-to-face, semi-structured, in-depth interviews to obtain descriptive and detailed data on personal health, guided by the Web diagram of Positive Health (Huber et al.) and a topic list. The following main topics were assessed qualitatively: 1) Bodily functioning, 2) Mental function and perception 3) Spiritual dimension, 4) Quality of life, 5) Social and societal participation and 6) Daily functioning.
Seventeen FBSS patients (eight male, nine female) were included from April-November 2019 at the department of pain medicine in the Albert Schweitzer Hospital in the Netherlands. Median age 49 years; range 28 to 67 years, and patients underwent between one and five lumbar surgical operations. The duration of their chronic pain was between four and 22 years. After analyzing the interviews, three themes emerged: 1) dealing with chronic pain, 2) the current situation regarding aspects of positive health, and 3) future perspectives on health and quality of life. These themes arose from eleven categories and a hundred ninety codes.
This qualitative study explored FBSS patients 'views on their health and the ability to adapt to daily life having complex chronic pain, and showed that patients experienced shortcomings in daily life within the six dimensions of the Web diagram of Positive Health before the SCS implant.</abstract><cop>United States</cop><pub>Public Library of Science</pub><pmid>33284851</pmid><doi>10.1371/journal.pone.0243329</doi><tpages>e0243329</tpages><orcidid>https://orcid.org/0000-0001-9901-512X</orcidid><orcidid>https://orcid.org/0000-0002-2919-6356</orcidid><orcidid>https://orcid.org/0000-0002-7669-1018</orcidid><oa>free_for_read</oa></addata></record> |
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| identifier | ISSN: 1932-6203 |
| ispartof | PloS one, 2020-12, Vol.15 (12), p.e0243329-e0243329 |
| issn | 1932-6203 1932-6203 |
| language | eng |
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| source | Public Library of Science (PLoS) Journals Open Access; MEDLINE; DOAJ Directory of Open Access Journals; EZB-FREE-00999 freely available EZB journals; PubMed Central; Free Full-Text Journals in Chemistry |
| subjects | Activities of Daily Living - psychology Adaptation, Psychological Adult Aged Anesthesiology Back pain Back surgery Biology and Life Sciences Chronic pain Clinical decision making Decision making Failed Back Surgery Syndrome - physiopathology Failed Back Surgery Syndrome - psychology Female Health aspects Hospitals Humans Intervention Interviews Low back pain Male Medicine Medicine and Health Sciences Middle Aged Outpatient care facilities Pain Palliative care Patients Professional ethics Professionals Qualitative research Quality of life Quality of Life - psychology Research and Analysis Methods Schweitzer, Albert Self care (Health) Social aspects Society Spinal cord Surgery Surveys Webs Well being |
| title | Views of patients suffering from Failed Back Surgery Syndrome on their health and their ability to adapt to daily life and self-management: A qualitative exploration |
| url | https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2025-02-01T04%3A43%3A32IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-gale_plos_&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Views%20of%20patients%20suffering%20from%20Failed%20Back%20Surgery%20Syndrome%20on%20their%20health%20and%20their%20ability%20to%20adapt%20to%20daily%20life%20and%20self-management:%20A%20qualitative%20exploration&rft.jtitle=PloS%20one&rft.au=Hamm-Faber,%20Tanja%20E&rft.date=2020-12-07&rft.volume=15&rft.issue=12&rft.spage=e0243329&rft.epage=e0243329&rft.pages=e0243329-e0243329&rft.issn=1932-6203&rft.eissn=1932-6203&rft_id=info:doi/10.1371/journal.pone.0243329&rft_dat=%3Cgale_plos_%3EA644109080%3C/gale_plos_%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=2467831884&rft_id=info:pmid/33284851&rft_galeid=A644109080&rft_doaj_id=oai_doaj_org_article_25cc378be2814e08b39bcd5a48307fbf&rfr_iscdi=true |