Content shared on social media for national cancer survivors day 2018
Studies estimate that the number of cancer survivors will double by 2050 due to improvements in diagnostic accuracy and treatment efficacy. Despite the growing population of cancer survivors, there is a paucity of research regarding how these individuals experience the transition from active treatme...
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| creator | Cherian, Roy Le, Gem Whall, James Gomez, Scarlett Sarkar, Urmimala |
| description | Studies estimate that the number of cancer survivors will double by 2050 due to improvements in diagnostic accuracy and treatment efficacy. Despite the growing population of cancer survivors, there is a paucity of research regarding how these individuals experience the transition from active treatment to long-term surveillance. While research has explored this transition from more organized venues, such as support groups for cancer survivors, this paper explores the discourses surrounding cancer survivorship on social media, paying particular attention to how individuals who identify as cancer survivors represent their experience.
We identified social media posts relating to cancer survivorship on Twitter and Instagram in early June 2018, in order to coincide with National Cancer Survivorship Day on June 3, 2018. We used nine pre-selected hashtags to identify content. For each hashtag, we manually collected the 150 most recent posts from Twitter and the 100 most recent plus the top 9 posts from Instagram. Our preliminary sample included 1172 posts; after eliminating posts from one hashtag due to irrelevance, we were left with 1063 posts. We randomly sampled 200 of these to create a subset for analysis; after review for irrelevant posts, 193 posts remained for analysis (118 from Instagram and 75 from Twitter). We utilized a grounded theory approach to analyze the posts, first open-coding a subset to develop a codebook, then applying the codebook to the rest of the sample and finally memo writing to develop themes.
Overall, there is substantial difference in the tone and thematic content between Instagram and Twitter posts, Instagram takes on a more narrative form that represents journeys through cancer treatment and subsequent survivorship, whereas Twitter is more factual, leaning towards advocacy, awareness and fundraising. In terms of content type, 120 posts (62%) of the sample were images, of which 42 (35%) were images of the individual posting and 28 (23%) were images of patients posted by family or friends. Of the remaining images, 14 (12%) were of support groups and 7 (6%) were of family or friends. We identified four salient themes through analysis of the social media posts from Twitter and Instagram: social support, celebrating milestones and honoring survivors, expressing identity, and renewal vs. rebirth.
We observed a marked relationship between physical appearance, functional status and survivorship. Additionally, our findings suggest the import |
| doi_str_mv | 10.1371/journal.pone.0226194 |
| format | Article |
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We identified social media posts relating to cancer survivorship on Twitter and Instagram in early June 2018, in order to coincide with National Cancer Survivorship Day on June 3, 2018. We used nine pre-selected hashtags to identify content. For each hashtag, we manually collected the 150 most recent posts from Twitter and the 100 most recent plus the top 9 posts from Instagram. Our preliminary sample included 1172 posts; after eliminating posts from one hashtag due to irrelevance, we were left with 1063 posts. We randomly sampled 200 of these to create a subset for analysis; after review for irrelevant posts, 193 posts remained for analysis (118 from Instagram and 75 from Twitter). We utilized a grounded theory approach to analyze the posts, first open-coding a subset to develop a codebook, then applying the codebook to the rest of the sample and finally memo writing to develop themes.
Overall, there is substantial difference in the tone and thematic content between Instagram and Twitter posts, Instagram takes on a more narrative form that represents journeys through cancer treatment and subsequent survivorship, whereas Twitter is more factual, leaning towards advocacy, awareness and fundraising. In terms of content type, 120 posts (62%) of the sample were images, of which 42 (35%) were images of the individual posting and 28 (23%) were images of patients posted by family or friends. Of the remaining images, 14 (12%) were of support groups and 7 (6%) were of family or friends. We identified four salient themes through analysis of the social media posts from Twitter and Instagram: social support, celebrating milestones and honoring survivors, expressing identity, and renewal vs. rebirth.
We observed a marked relationship between physical appearance, functional status and survivorship. Additionally, our findings suggest the importance of social support for cancer patients and survivors as well as the role social media can pay in identity formation.
Our findings suggest that individuals who identify as survivors on social media define their identity fluidly, incorporating elements of physical, emotional and psychological health as well as autonomy.</description><identifier>ISSN: 1932-6203</identifier><identifier>EISSN: 1932-6203</identifier><identifier>DOI: 10.1371/journal.pone.0226194</identifier><identifier>PMID: 31940384</identifier><language>eng</language><publisher>United States: Public Library of Science</publisher><subject>Autonomy ; Cancer ; Cancer Survivors - psychology ; Computer and Information Sciences ; Data collection ; Diagnostic systems ; Digital media ; Hospitals ; Humans ; Identification methods ; Internal medicine ; Journeys ; Media ; Medical diagnosis ; Medical imaging ; Medical research ; Medicine ; Medicine and Health Sciences ; Peer tutoring ; Researchers ; Social interactions ; Social Media - statistics & numerical data ; Social networks ; Social Sciences ; Social Support ; Survival ; Tagging</subject><ispartof>PloS one, 2020-01, Vol.15 (1), p.e0226194-e0226194</ispartof><rights>2020 Cherian et al. With exception to social media posts, this is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. The authors make no claim nor provide a license: https://creativecommons.org/licenses/by/4.0/ (the “License”) to third-party social media posts. Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>2020 Cherian et al 2020 Cherian et al</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c526t-5b23f66d43ba93c305c41bf76b3cc3853c211f321df2240d492a9d915fc3532d3</citedby><cites>FETCH-LOGICAL-c526t-5b23f66d43ba93c305c41bf76b3cc3853c211f321df2240d492a9d915fc3532d3</cites><orcidid>0000-0003-4213-4405</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC6961846/pdf/$$EPDF$$P50$$Gpubmedcentral$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC6961846/$$EHTML$$P50$$Gpubmedcentral$$Hfree_for_read</linktohtml><link.rule.ids>230,314,723,776,780,860,881,2096,2915,23845,27901,27902,53766,53768,79343,79344</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/31940384$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Cherian, Roy</creatorcontrib><creatorcontrib>Le, Gem</creatorcontrib><creatorcontrib>Whall, James</creatorcontrib><creatorcontrib>Gomez, Scarlett</creatorcontrib><creatorcontrib>Sarkar, Urmimala</creatorcontrib><title>Content shared on social media for national cancer survivors day 2018</title><title>PloS one</title><addtitle>PLoS One</addtitle><description>Studies estimate that the number of cancer survivors will double by 2050 due to improvements in diagnostic accuracy and treatment efficacy. Despite the growing population of cancer survivors, there is a paucity of research regarding how these individuals experience the transition from active treatment to long-term surveillance. While research has explored this transition from more organized venues, such as support groups for cancer survivors, this paper explores the discourses surrounding cancer survivorship on social media, paying particular attention to how individuals who identify as cancer survivors represent their experience.
We identified social media posts relating to cancer survivorship on Twitter and Instagram in early June 2018, in order to coincide with National Cancer Survivorship Day on June 3, 2018. We used nine pre-selected hashtags to identify content. For each hashtag, we manually collected the 150 most recent posts from Twitter and the 100 most recent plus the top 9 posts from Instagram. Our preliminary sample included 1172 posts; after eliminating posts from one hashtag due to irrelevance, we were left with 1063 posts. We randomly sampled 200 of these to create a subset for analysis; after review for irrelevant posts, 193 posts remained for analysis (118 from Instagram and 75 from Twitter). We utilized a grounded theory approach to analyze the posts, first open-coding a subset to develop a codebook, then applying the codebook to the rest of the sample and finally memo writing to develop themes.
Overall, there is substantial difference in the tone and thematic content between Instagram and Twitter posts, Instagram takes on a more narrative form that represents journeys through cancer treatment and subsequent survivorship, whereas Twitter is more factual, leaning towards advocacy, awareness and fundraising. In terms of content type, 120 posts (62%) of the sample were images, of which 42 (35%) were images of the individual posting and 28 (23%) were images of patients posted by family or friends. Of the remaining images, 14 (12%) were of support groups and 7 (6%) were of family or friends. We identified four salient themes through analysis of the social media posts from Twitter and Instagram: social support, celebrating milestones and honoring survivors, expressing identity, and renewal vs. rebirth.
We observed a marked relationship between physical appearance, functional status and survivorship. Additionally, our findings suggest the importance of social support for cancer patients and survivors as well as the role social media can pay in identity formation.
Our findings suggest that individuals who identify as survivors on social media define their identity fluidly, incorporating elements of physical, emotional and psychological health as well as autonomy.</description><subject>Autonomy</subject><subject>Cancer</subject><subject>Cancer Survivors - psychology</subject><subject>Computer and Information Sciences</subject><subject>Data collection</subject><subject>Diagnostic systems</subject><subject>Digital media</subject><subject>Hospitals</subject><subject>Humans</subject><subject>Identification methods</subject><subject>Internal medicine</subject><subject>Journeys</subject><subject>Media</subject><subject>Medical diagnosis</subject><subject>Medical imaging</subject><subject>Medical research</subject><subject>Medicine</subject><subject>Medicine and Health Sciences</subject><subject>Peer tutoring</subject><subject>Researchers</subject><subject>Social interactions</subject><subject>Social Media - statistics & numerical data</subject><subject>Social networks</subject><subject>Social Sciences</subject><subject>Social Support</subject><subject>Survival</subject><subject>Tagging</subject><issn>1932-6203</issn><issn>1932-6203</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2020</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>BENPR</sourceid><sourceid>DOA</sourceid><recordid>eNptkk9r3DAQxU1paP6036C0gl562a2kkWXpUghLmgYCuaRnMZbkRItX2kr2Qr59vVknJCUnCek3b2Yer6o-M7pk0LAf6zTmiP1ym6JfUs4l0-JddcI08IXkFN6_uB9Xp6WsKa1BSfmhOoaJpaDESXWxSnHwcSDlHrN3JEVSkg3Yk413AUmXMok4hDS1Ihaj9ZmUMe_CLuVCHD4QTpn6WB112Bf_aT7Pqj-_Lm5XvxfXN5dXq_Prha25HBZ1y6GT0gloUYMFWlvB2q6RLVgLqgbLGeuAM9dxLqgTmqN2mtWdhRq4g7Pq60F326diZgeK4QBKq4YpNRFXB8IlXJttDhvMDyZhMI8PKd8ZzEOwvTfOKi-4pnLvhvWA0lMqtLKUNlJpnLR-zt3GdnLDTjZl7F-Jvv6J4d7cpZ2RWjIl5CTwfRbI6e_oy2A2oVjf9xh9Gh_n1o3mXO_Rb_-hb28nDpTNqZTsu-dhGDX7VDxVmX0qzJyKqezLy0Wei55iAP8ApuOzjg</recordid><startdate>20200101</startdate><enddate>20200101</enddate><creator>Cherian, Roy</creator><creator>Le, Gem</creator><creator>Whall, James</creator><creator>Gomez, Scarlett</creator><creator>Sarkar, Urmimala</creator><general>Public Library of Science</general><general>Public Library of Science (PLoS)</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7QG</scope><scope>7QL</scope><scope>7QO</scope><scope>7RV</scope><scope>7SN</scope><scope>7SS</scope><scope>7T5</scope><scope>7TG</scope><scope>7TM</scope><scope>7U9</scope><scope>7X2</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>8AO</scope><scope>8C1</scope><scope>8FD</scope><scope>8FE</scope><scope>8FG</scope><scope>8FH</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABJCF</scope><scope>ABUWG</scope><scope>AEUYN</scope><scope>AFKRA</scope><scope>ARAPS</scope><scope>ATCPS</scope><scope>AZQEC</scope><scope>BBNVY</scope><scope>BENPR</scope><scope>BGLVJ</scope><scope>BHPHI</scope><scope>C1K</scope><scope>CCPQU</scope><scope>D1I</scope><scope>DWQXO</scope><scope>FR3</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>H94</scope><scope>HCIFZ</scope><scope>K9.</scope><scope>KB.</scope><scope>KB0</scope><scope>KL.</scope><scope>L6V</scope><scope>LK8</scope><scope>M0K</scope><scope>M0S</scope><scope>M1P</scope><scope>M7N</scope><scope>M7P</scope><scope>M7S</scope><scope>NAPCQ</scope><scope>P5Z</scope><scope>P62</scope><scope>P64</scope><scope>PATMY</scope><scope>PDBOC</scope><scope>PIMPY</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PTHSS</scope><scope>PYCSY</scope><scope>RC3</scope><scope>7X8</scope><scope>5PM</scope><scope>DOA</scope><orcidid>https://orcid.org/0000-0003-4213-4405</orcidid></search><sort><creationdate>20200101</creationdate><title>Content shared on social media for national cancer survivors day 2018</title><author>Cherian, Roy ; Le, Gem ; Whall, James ; Gomez, Scarlett ; Sarkar, Urmimala</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c526t-5b23f66d43ba93c305c41bf76b3cc3853c211f321df2240d492a9d915fc3532d3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2020</creationdate><topic>Autonomy</topic><topic>Cancer</topic><topic>Cancer Survivors - 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Academic</collection><collection>PubMed Central (Full Participant titles)</collection><collection>DOAJ Directory of Open Access Journals</collection><jtitle>PloS one</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Cherian, Roy</au><au>Le, Gem</au><au>Whall, James</au><au>Gomez, Scarlett</au><au>Sarkar, Urmimala</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Content shared on social media for national cancer survivors day 2018</atitle><jtitle>PloS one</jtitle><addtitle>PLoS One</addtitle><date>2020-01-01</date><risdate>2020</risdate><volume>15</volume><issue>1</issue><spage>e0226194</spage><epage>e0226194</epage><pages>e0226194-e0226194</pages><issn>1932-6203</issn><eissn>1932-6203</eissn><abstract>Studies estimate that the number of cancer survivors will double by 2050 due to improvements in diagnostic accuracy and treatment efficacy. Despite the growing population of cancer survivors, there is a paucity of research regarding how these individuals experience the transition from active treatment to long-term surveillance. While research has explored this transition from more organized venues, such as support groups for cancer survivors, this paper explores the discourses surrounding cancer survivorship on social media, paying particular attention to how individuals who identify as cancer survivors represent their experience.
We identified social media posts relating to cancer survivorship on Twitter and Instagram in early June 2018, in order to coincide with National Cancer Survivorship Day on June 3, 2018. We used nine pre-selected hashtags to identify content. For each hashtag, we manually collected the 150 most recent posts from Twitter and the 100 most recent plus the top 9 posts from Instagram. Our preliminary sample included 1172 posts; after eliminating posts from one hashtag due to irrelevance, we were left with 1063 posts. We randomly sampled 200 of these to create a subset for analysis; after review for irrelevant posts, 193 posts remained for analysis (118 from Instagram and 75 from Twitter). We utilized a grounded theory approach to analyze the posts, first open-coding a subset to develop a codebook, then applying the codebook to the rest of the sample and finally memo writing to develop themes.
Overall, there is substantial difference in the tone and thematic content between Instagram and Twitter posts, Instagram takes on a more narrative form that represents journeys through cancer treatment and subsequent survivorship, whereas Twitter is more factual, leaning towards advocacy, awareness and fundraising. In terms of content type, 120 posts (62%) of the sample were images, of which 42 (35%) were images of the individual posting and 28 (23%) were images of patients posted by family or friends. Of the remaining images, 14 (12%) were of support groups and 7 (6%) were of family or friends. We identified four salient themes through analysis of the social media posts from Twitter and Instagram: social support, celebrating milestones and honoring survivors, expressing identity, and renewal vs. rebirth.
We observed a marked relationship between physical appearance, functional status and survivorship. Additionally, our findings suggest the importance of social support for cancer patients and survivors as well as the role social media can pay in identity formation.
Our findings suggest that individuals who identify as survivors on social media define their identity fluidly, incorporating elements of physical, emotional and psychological health as well as autonomy.</abstract><cop>United States</cop><pub>Public Library of Science</pub><pmid>31940384</pmid><doi>10.1371/journal.pone.0226194</doi><orcidid>https://orcid.org/0000-0003-4213-4405</orcidid><oa>free_for_read</oa></addata></record> |
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| subjects | Autonomy Cancer Cancer Survivors - psychology Computer and Information Sciences Data collection Diagnostic systems Digital media Hospitals Humans Identification methods Internal medicine Journeys Media Medical diagnosis Medical imaging Medical research Medicine Medicine and Health Sciences Peer tutoring Researchers Social interactions Social Media - statistics & numerical data Social networks Social Sciences Social Support Survival Tagging |
| title | Content shared on social media for national cancer survivors day 2018 |
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