'We are the change' - An innovative community-based response to address self-stigma: A pilot study focusing on people living with HIV in Zimbabwe
Self-stigma-negative self-judgements resulting in shame, worthlessness and self-blame-may play a crucial role in emotional reactions and cause emotional distress among many people living with HIV and other chronic illnesses. Furthermore, self-stigma negatively impacts on self-agency, quality of life...
Gespeichert in:
| Veröffentlicht in: | PloS one 2019-02, Vol.14 (2), p.e0210152-e0210152 |
|---|---|
| Hauptverfasser: | , , , , , , , , , |
| Format: | Artikel |
| Sprache: | eng |
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Tags: |
Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
|
| container_end_page | e0210152 |
|---|---|
| container_issue | 2 |
| container_start_page | e0210152 |
| container_title | PloS one |
| container_volume | 14 |
| creator | Ferris France, Nadine Macdonald, Stephen H-F Conroy, Ronan R Chiroro, Patrick Ni Cheallaigh, Deirdre Nyamucheta, Masimba Mapanda, Bekezela Shumba, Godsway Mudede, Dennis Byrne, Elaine |
| description | Self-stigma-negative self-judgements resulting in shame, worthlessness and self-blame-may play a crucial role in emotional reactions and cause emotional distress among many people living with HIV and other chronic illnesses. Furthermore, self-stigma negatively impacts on self-agency, quality of life, adherence to treatment, and access to services. High levels of self-stigma have been reported across many countries, however few programmes or interventions exist to specifically tackle this phenomenon. This paper reports the findings of a pilot study carried out in Zimbabwe using a programme incorporating "Inquiry-Based Stress Reduction (IBSR): The Work of Byron Katie"-a guided form of self-inquiry which helps users to overcome negative thoughts and beliefs.
The primary objective of this uncontrolled pilot study was to examine the potential role of the IBSR intervention in helping people living with HIV to overcome self-stigma and associated states.
23 people living with HIV (17 Female, 6 male, average age 41 years) were recruited from a local HIV support network, via open call for volunteers. All participants received the intervention, consisting of a 12-week facilitated programme using techniques derived from IBSR: The Work of Byron Katie. Qualitative and quantitative data were collected and analysed pre- and post-programme.
After taking part in the intervention, participants reported significant improvements in factors including self-stigma (1-month follow-up vs baseline Z = 2.1, p = 0.039; 3-month follow-up vs baseline Z = 3.0, p = 0.003, n = 23, Wilcoxon Matched Pairs Signed Rank Test) and depression (1mo vs baseline Z = 3.7, p = |
| doi_str_mv | 10.1371/journal.pone.0210152 |
| format | Article |
| fullrecord | <record><control><sourceid>gale_plos_</sourceid><recordid>TN_cdi_plos_journals_2179723234</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><galeid>A573981648</galeid><doaj_id>oai_doaj_org_article_6528626f5aec44b7a08696c13533ee48</doaj_id><sourcerecordid>A573981648</sourcerecordid><originalsourceid>FETCH-LOGICAL-c692t-41581be2ca45dfd9c58177ce2b6a7268403d44f841aa96d621c61536f83ceefb3</originalsourceid><addsrcrecordid>eNqNk99u0zAUxiMEYmPwBggsITG4SIntxEm4QKomYJUmTeLPkLixHOckdeXYJXY6-hi8Me6aTQ3aBcqF4-Pf-T772CeKnuNkhmmO363s0BuhZ2trYJYQnOCMPIiOcUlJzEhCHx78H0VPnFslSUYLxh5HRzTJsxLj9Dj6c_oDkOgB-SUguRSmhVMUo7lByhi7EV5tQtx23WCU38aVcFCjHlxwdSHJIlHXYeqQA93Ezqu2E-_RHK2Vth45P9Rb1Fg5OGVaZA1ag11rQFptdoFr5ZfofHEVzNBP1VWiuoan0aNGaAfPxvEk-v7p47ez8_ji8vPibH4RS1YSH6c4K3AFRIo0q5u6lGGa5xJIxUROWJEmtE7TpkixECWrGcGS4YyypqASoKnoSfRyr7vW1vGxmo4TnJc5oYSmgVjsidqKFV_3qhP9lluh-E3A9i0XvVdSA2cZKRhhTSZApmmVi6RgJZOYZpQCpEXQ-jC6DVUHtQTje6EnotMVo5a8tRvOaE5LshN4Mwr09tcAzvNOOQlaCwN22O27yDPMSIYD-uof9P7TjVQrwgGUaWzwlTtRPs-CZ4HZzb5n91Dhq6FTMjy9RoX4JOHtJCEwHn77VgzO8cXXL__PXl5N2dcH7BKE9ktn9eBVeIlTMN2DsrfO9dDcFRknfNc5t9Xgu87hY-eEtBeHF3SXdNsq9C8c_hMX</addsrcrecordid><sourcetype>Open Website</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>2179723234</pqid></control><display><type>article</type><title>'We are the change' - An innovative community-based response to address self-stigma: A pilot study focusing on people living with HIV in Zimbabwe</title><source>MEDLINE</source><source>DOAJ Directory of Open Access Journals</source><source>Elektronische Zeitschriftenbibliothek - Frei zugängliche E-Journals</source><source>PubMed Central</source><source>Free Full-Text Journals in Chemistry</source><source>Sociological Abstracts</source><source>Public Library of Science (PLoS)</source><creator>Ferris France, Nadine ; Macdonald, Stephen H-F ; Conroy, Ronan R ; Chiroro, Patrick ; Ni Cheallaigh, Deirdre ; Nyamucheta, Masimba ; Mapanda, Bekezela ; Shumba, Godsway ; Mudede, Dennis ; Byrne, Elaine</creator><creatorcontrib>Ferris France, Nadine ; Macdonald, Stephen H-F ; Conroy, Ronan R ; Chiroro, Patrick ; Ni Cheallaigh, Deirdre ; Nyamucheta, Masimba ; Mapanda, Bekezela ; Shumba, Godsway ; Mudede, Dennis ; Byrne, Elaine</creatorcontrib><description>Self-stigma-negative self-judgements resulting in shame, worthlessness and self-blame-may play a crucial role in emotional reactions and cause emotional distress among many people living with HIV and other chronic illnesses. Furthermore, self-stigma negatively impacts on self-agency, quality of life, adherence to treatment, and access to services. High levels of self-stigma have been reported across many countries, however few programmes or interventions exist to specifically tackle this phenomenon. This paper reports the findings of a pilot study carried out in Zimbabwe using a programme incorporating "Inquiry-Based Stress Reduction (IBSR): The Work of Byron Katie"-a guided form of self-inquiry which helps users to overcome negative thoughts and beliefs.
The primary objective of this uncontrolled pilot study was to examine the potential role of the IBSR intervention in helping people living with HIV to overcome self-stigma and associated states.
23 people living with HIV (17 Female, 6 male, average age 41 years) were recruited from a local HIV support network, via open call for volunteers. All participants received the intervention, consisting of a 12-week facilitated programme using techniques derived from IBSR: The Work of Byron Katie. Qualitative and quantitative data were collected and analysed pre- and post-programme.
After taking part in the intervention, participants reported significant improvements in factors including self-stigma (1-month follow-up vs baseline Z = 2.1, p = 0.039; 3-month follow-up vs baseline Z = 3.0, p = 0.003, n = 23, Wilcoxon Matched Pairs Signed Rank Test) and depression (1mo vs baseline Z = 3.7, p = <0.001; 3mo vs baseline Z = 3.3, p = 0.001). Qualitatively, participants reported improvements including lessened fears around disclosure of their HIV status, reduced feelings of life limitations due to HIV, and greater positive mentality. Improvements persisted at three-month follow-up.
With further development and larger comparative studies to confirm effects, the IBSR programme could become a novel tool to enable people living with HIV to support themselves in overcoming self-stigma.</description><identifier>ISSN: 1932-6203</identifier><identifier>EISSN: 1932-6203</identifier><identifier>DOI: 10.1371/journal.pone.0210152</identifier><identifier>PMID: 30759114</identifier><language>eng</language><publisher>United States: Public Library of Science</publisher><subject>Acquired immune deficiency syndrome ; Adaptation, Psychological ; Adult ; AIDS ; Biology and Life Sciences ; Cancer ; Chronic diseases ; Chronic illnesses ; Community change ; Comparative studies ; Data processing ; Demographic aspects ; Disclosure of information ; Emotional distress ; Emotions ; Epidemiology ; Female ; Health services ; HIV ; HIV carriers discrimination ; HIV Infections - epidemiology ; HIV Infections - psychology ; HIV patients ; HIV-1 ; Human immunodeficiency virus ; Humans ; Illnesses ; Intervention ; Male ; Medical diagnosis ; Medicine and Health Sciences ; Mental depression ; Patient compliance ; Pilot Projects ; Psychological aspects ; Psychological distress ; Public health ; Qualitative analysis ; Quality of Life ; Rank tests ; Research and Analysis Methods ; Risk factors ; Self Concept ; Self disclosure ; Shame ; Social aspects ; Social exclusion ; Social Sciences ; Social Stigma ; Stigma ; Stigma (Social psychology) ; Stress management ; Support networks ; Treatment compliance ; Zimbabwe - epidemiology</subject><ispartof>PloS one, 2019-02, Vol.14 (2), p.e0210152-e0210152</ispartof><rights>COPYRIGHT 2019 Public Library of Science</rights><rights>2019 Ferris France et al. This is an open access article distributed under the terms of the Creative Commons Attribution License: http://creativecommons.org/licenses/by/4.0/ (the “License”), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>2019 Ferris France et al 2019 Ferris France et al</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c692t-41581be2ca45dfd9c58177ce2b6a7268403d44f841aa96d621c61536f83ceefb3</citedby><cites>FETCH-LOGICAL-c692t-41581be2ca45dfd9c58177ce2b6a7268403d44f841aa96d621c61536f83ceefb3</cites><orcidid>0000-0001-6306-8035</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC6373928/pdf/$$EPDF$$P50$$Gpubmedcentral$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC6373928/$$EHTML$$P50$$Gpubmedcentral$$Hfree_for_read</linktohtml><link.rule.ids>230,314,723,776,780,860,881,2096,2915,23845,27321,27901,27902,33751,53766,53768,79342,79343</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/30759114$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Ferris France, Nadine</creatorcontrib><creatorcontrib>Macdonald, Stephen H-F</creatorcontrib><creatorcontrib>Conroy, Ronan R</creatorcontrib><creatorcontrib>Chiroro, Patrick</creatorcontrib><creatorcontrib>Ni Cheallaigh, Deirdre</creatorcontrib><creatorcontrib>Nyamucheta, Masimba</creatorcontrib><creatorcontrib>Mapanda, Bekezela</creatorcontrib><creatorcontrib>Shumba, Godsway</creatorcontrib><creatorcontrib>Mudede, Dennis</creatorcontrib><creatorcontrib>Byrne, Elaine</creatorcontrib><title>'We are the change' - An innovative community-based response to address self-stigma: A pilot study focusing on people living with HIV in Zimbabwe</title><title>PloS one</title><addtitle>PLoS One</addtitle><description>Self-stigma-negative self-judgements resulting in shame, worthlessness and self-blame-may play a crucial role in emotional reactions and cause emotional distress among many people living with HIV and other chronic illnesses. Furthermore, self-stigma negatively impacts on self-agency, quality of life, adherence to treatment, and access to services. High levels of self-stigma have been reported across many countries, however few programmes or interventions exist to specifically tackle this phenomenon. This paper reports the findings of a pilot study carried out in Zimbabwe using a programme incorporating "Inquiry-Based Stress Reduction (IBSR): The Work of Byron Katie"-a guided form of self-inquiry which helps users to overcome negative thoughts and beliefs.
The primary objective of this uncontrolled pilot study was to examine the potential role of the IBSR intervention in helping people living with HIV to overcome self-stigma and associated states.
23 people living with HIV (17 Female, 6 male, average age 41 years) were recruited from a local HIV support network, via open call for volunteers. All participants received the intervention, consisting of a 12-week facilitated programme using techniques derived from IBSR: The Work of Byron Katie. Qualitative and quantitative data were collected and analysed pre- and post-programme.
After taking part in the intervention, participants reported significant improvements in factors including self-stigma (1-month follow-up vs baseline Z = 2.1, p = 0.039; 3-month follow-up vs baseline Z = 3.0, p = 0.003, n = 23, Wilcoxon Matched Pairs Signed Rank Test) and depression (1mo vs baseline Z = 3.7, p = <0.001; 3mo vs baseline Z = 3.3, p = 0.001). Qualitatively, participants reported improvements including lessened fears around disclosure of their HIV status, reduced feelings of life limitations due to HIV, and greater positive mentality. Improvements persisted at three-month follow-up.
With further development and larger comparative studies to confirm effects, the IBSR programme could become a novel tool to enable people living with HIV to support themselves in overcoming self-stigma.</description><subject>Acquired immune deficiency syndrome</subject><subject>Adaptation, Psychological</subject><subject>Adult</subject><subject>AIDS</subject><subject>Biology and Life Sciences</subject><subject>Cancer</subject><subject>Chronic diseases</subject><subject>Chronic illnesses</subject><subject>Community change</subject><subject>Comparative studies</subject><subject>Data processing</subject><subject>Demographic aspects</subject><subject>Disclosure of information</subject><subject>Emotional distress</subject><subject>Emotions</subject><subject>Epidemiology</subject><subject>Female</subject><subject>Health services</subject><subject>HIV</subject><subject>HIV carriers discrimination</subject><subject>HIV Infections - epidemiology</subject><subject>HIV Infections - psychology</subject><subject>HIV patients</subject><subject>HIV-1</subject><subject>Human immunodeficiency virus</subject><subject>Humans</subject><subject>Illnesses</subject><subject>Intervention</subject><subject>Male</subject><subject>Medical diagnosis</subject><subject>Medicine and Health Sciences</subject><subject>Mental depression</subject><subject>Patient compliance</subject><subject>Pilot Projects</subject><subject>Psychological aspects</subject><subject>Psychological distress</subject><subject>Public health</subject><subject>Qualitative analysis</subject><subject>Quality of Life</subject><subject>Rank tests</subject><subject>Research and Analysis Methods</subject><subject>Risk factors</subject><subject>Self Concept</subject><subject>Self disclosure</subject><subject>Shame</subject><subject>Social aspects</subject><subject>Social exclusion</subject><subject>Social Sciences</subject><subject>Social Stigma</subject><subject>Stigma</subject><subject>Stigma (Social psychology)</subject><subject>Stress management</subject><subject>Support networks</subject><subject>Treatment compliance</subject><subject>Zimbabwe - epidemiology</subject><issn>1932-6203</issn><issn>1932-6203</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2019</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>BENPR</sourceid><sourceid>BHHNA</sourceid><sourceid>DOA</sourceid><recordid>eNqNk99u0zAUxiMEYmPwBggsITG4SIntxEm4QKomYJUmTeLPkLixHOckdeXYJXY6-hi8Me6aTQ3aBcqF4-Pf-T772CeKnuNkhmmO363s0BuhZ2trYJYQnOCMPIiOcUlJzEhCHx78H0VPnFslSUYLxh5HRzTJsxLj9Dj6c_oDkOgB-SUguRSmhVMUo7lByhi7EV5tQtx23WCU38aVcFCjHlxwdSHJIlHXYeqQA93Ezqu2E-_RHK2Vth45P9Rb1Fg5OGVaZA1ag11rQFptdoFr5ZfofHEVzNBP1VWiuoan0aNGaAfPxvEk-v7p47ez8_ji8vPibH4RS1YSH6c4K3AFRIo0q5u6lGGa5xJIxUROWJEmtE7TpkixECWrGcGS4YyypqASoKnoSfRyr7vW1vGxmo4TnJc5oYSmgVjsidqKFV_3qhP9lluh-E3A9i0XvVdSA2cZKRhhTSZApmmVi6RgJZOYZpQCpEXQ-jC6DVUHtQTje6EnotMVo5a8tRvOaE5LshN4Mwr09tcAzvNOOQlaCwN22O27yDPMSIYD-uof9P7TjVQrwgGUaWzwlTtRPs-CZ4HZzb5n91Dhq6FTMjy9RoX4JOHtJCEwHn77VgzO8cXXL__PXl5N2dcH7BKE9ktn9eBVeIlTMN2DsrfO9dDcFRknfNc5t9Xgu87hY-eEtBeHF3SXdNsq9C8c_hMX</recordid><startdate>20190213</startdate><enddate>20190213</enddate><creator>Ferris France, Nadine</creator><creator>Macdonald, Stephen H-F</creator><creator>Conroy, Ronan R</creator><creator>Chiroro, Patrick</creator><creator>Ni Cheallaigh, Deirdre</creator><creator>Nyamucheta, Masimba</creator><creator>Mapanda, Bekezela</creator><creator>Shumba, Godsway</creator><creator>Mudede, Dennis</creator><creator>Byrne, Elaine</creator><general>Public Library of Science</general><general>Public Library of Science (PLoS)</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>IOV</scope><scope>ISR</scope><scope>3V.</scope><scope>7QG</scope><scope>7QL</scope><scope>7QO</scope><scope>7RV</scope><scope>7SN</scope><scope>7SS</scope><scope>7T5</scope><scope>7TG</scope><scope>7TM</scope><scope>7U4</scope><scope>7U9</scope><scope>7X2</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>8AO</scope><scope>8C1</scope><scope>8FD</scope><scope>8FE</scope><scope>8FG</scope><scope>8FH</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABJCF</scope><scope>ABUWG</scope><scope>AEUYN</scope><scope>AFKRA</scope><scope>ARAPS</scope><scope>ATCPS</scope><scope>AZQEC</scope><scope>BBNVY</scope><scope>BENPR</scope><scope>BGLVJ</scope><scope>BHHNA</scope><scope>BHPHI</scope><scope>C1K</scope><scope>CCPQU</scope><scope>D1I</scope><scope>DWI</scope><scope>DWQXO</scope><scope>FR3</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>H94</scope><scope>HCIFZ</scope><scope>K9.</scope><scope>KB.</scope><scope>KB0</scope><scope>KL.</scope><scope>L6V</scope><scope>LK8</scope><scope>M0K</scope><scope>M0S</scope><scope>M1P</scope><scope>M7N</scope><scope>M7P</scope><scope>M7S</scope><scope>NAPCQ</scope><scope>P5Z</scope><scope>P62</scope><scope>P64</scope><scope>PATMY</scope><scope>PDBOC</scope><scope>PIMPY</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PTHSS</scope><scope>PYCSY</scope><scope>RC3</scope><scope>WZK</scope><scope>7X8</scope><scope>5PM</scope><scope>DOA</scope><orcidid>https://orcid.org/0000-0001-6306-8035</orcidid></search><sort><creationdate>20190213</creationdate><title>'We are the change' - An innovative community-based response to address self-stigma: A pilot study focusing on people living with HIV in Zimbabwe</title><author>Ferris France, Nadine ; Macdonald, Stephen H-F ; Conroy, Ronan R ; Chiroro, Patrick ; Ni Cheallaigh, Deirdre ; Nyamucheta, Masimba ; Mapanda, Bekezela ; Shumba, Godsway ; Mudede, Dennis ; Byrne, Elaine</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c692t-41581be2ca45dfd9c58177ce2b6a7268403d44f841aa96d621c61536f83ceefb3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2019</creationdate><topic>Acquired immune deficiency syndrome</topic><topic>Adaptation, Psychological</topic><topic>Adult</topic><topic>AIDS</topic><topic>Biology and Life Sciences</topic><topic>Cancer</topic><topic>Chronic diseases</topic><topic>Chronic illnesses</topic><topic>Community change</topic><topic>Comparative studies</topic><topic>Data processing</topic><topic>Demographic aspects</topic><topic>Disclosure of information</topic><topic>Emotional distress</topic><topic>Emotions</topic><topic>Epidemiology</topic><topic>Female</topic><topic>Health services</topic><topic>HIV</topic><topic>HIV carriers discrimination</topic><topic>HIV Infections - epidemiology</topic><topic>HIV Infections - psychology</topic><topic>HIV patients</topic><topic>HIV-1</topic><topic>Human immunodeficiency virus</topic><topic>Humans</topic><topic>Illnesses</topic><topic>Intervention</topic><topic>Male</topic><topic>Medical diagnosis</topic><topic>Medicine and Health Sciences</topic><topic>Mental depression</topic><topic>Patient compliance</topic><topic>Pilot Projects</topic><topic>Psychological aspects</topic><topic>Psychological distress</topic><topic>Public health</topic><topic>Qualitative analysis</topic><topic>Quality of Life</topic><topic>Rank tests</topic><topic>Research and Analysis Methods</topic><topic>Risk factors</topic><topic>Self Concept</topic><topic>Self disclosure</topic><topic>Shame</topic><topic>Social aspects</topic><topic>Social exclusion</topic><topic>Social Sciences</topic><topic>Social Stigma</topic><topic>Stigma</topic><topic>Stigma (Social psychology)</topic><topic>Stress management</topic><topic>Support networks</topic><topic>Treatment compliance</topic><topic>Zimbabwe - epidemiology</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Ferris France, Nadine</creatorcontrib><creatorcontrib>Macdonald, Stephen H-F</creatorcontrib><creatorcontrib>Conroy, Ronan R</creatorcontrib><creatorcontrib>Chiroro, Patrick</creatorcontrib><creatorcontrib>Ni Cheallaigh, Deirdre</creatorcontrib><creatorcontrib>Nyamucheta, Masimba</creatorcontrib><creatorcontrib>Mapanda, Bekezela</creatorcontrib><creatorcontrib>Shumba, Godsway</creatorcontrib><creatorcontrib>Mudede, Dennis</creatorcontrib><creatorcontrib>Byrne, Elaine</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Gale In Context: Opposing Viewpoints</collection><collection>Gale In Context: Science</collection><collection>ProQuest Central (Corporate)</collection><collection>Animal Behavior Abstracts</collection><collection>Bacteriology Abstracts (Microbiology B)</collection><collection>Biotechnology Research Abstracts</collection><collection>Nursing & Allied Health Database</collection><collection>Ecology Abstracts</collection><collection>Entomology Abstracts (Full archive)</collection><collection>Immunology Abstracts</collection><collection>Meteorological & Geoastrophysical Abstracts</collection><collection>Nucleic Acids Abstracts</collection><collection>Sociological Abstracts (pre-2017)</collection><collection>Virology and AIDS Abstracts</collection><collection>Agricultural Science Collection</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Medical Database (Alumni Edition)</collection><collection>ProQuest Pharma Collection</collection><collection>Public Health Database</collection><collection>Technology Research Database</collection><collection>ProQuest SciTech Collection</collection><collection>ProQuest Technology Collection</collection><collection>ProQuest Natural Science Collection</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>Materials Science & Engineering Collection</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest One Sustainability</collection><collection>ProQuest Central UK/Ireland</collection><collection>Advanced Technologies & Aerospace Collection</collection><collection>Agricultural & Environmental Science Collection</collection><collection>ProQuest Central Essentials</collection><collection>Biological Science Collection</collection><collection>ProQuest Central</collection><collection>Technology Collection</collection><collection>Sociological Abstracts</collection><collection>Natural Science Collection</collection><collection>Environmental Sciences and Pollution Management</collection><collection>ProQuest One Community College</collection><collection>ProQuest Materials Science Collection</collection><collection>Sociological Abstracts</collection><collection>ProQuest Central Korea</collection><collection>Engineering Research Database</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Central Student</collection><collection>AIDS and Cancer Research Abstracts</collection><collection>SciTech Premium Collection</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Materials Science Database</collection><collection>Nursing & Allied Health Database (Alumni Edition)</collection><collection>Meteorological & Geoastrophysical Abstracts - Academic</collection><collection>ProQuest Engineering Collection</collection><collection>ProQuest Biological Science Collection</collection><collection>Agricultural Science Database</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>Algology Mycology and Protozoology Abstracts (Microbiology C)</collection><collection>Biological Science Database</collection><collection>Engineering Database</collection><collection>Nursing & Allied Health Premium</collection><collection>Advanced Technologies & Aerospace Database</collection><collection>ProQuest Advanced Technologies & Aerospace Collection</collection><collection>Biotechnology and BioEngineering Abstracts</collection><collection>Environmental Science Database</collection><collection>Materials Science Collection</collection><collection>Publicly Available Content Database</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>Engineering Collection</collection><collection>Environmental Science Collection</collection><collection>Genetics Abstracts</collection><collection>Sociological Abstracts (Ovid)</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><collection>DOAJ Directory of Open Access Journals</collection><jtitle>PloS one</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Ferris France, Nadine</au><au>Macdonald, Stephen H-F</au><au>Conroy, Ronan R</au><au>Chiroro, Patrick</au><au>Ni Cheallaigh, Deirdre</au><au>Nyamucheta, Masimba</au><au>Mapanda, Bekezela</au><au>Shumba, Godsway</au><au>Mudede, Dennis</au><au>Byrne, Elaine</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>'We are the change' - An innovative community-based response to address self-stigma: A pilot study focusing on people living with HIV in Zimbabwe</atitle><jtitle>PloS one</jtitle><addtitle>PLoS One</addtitle><date>2019-02-13</date><risdate>2019</risdate><volume>14</volume><issue>2</issue><spage>e0210152</spage><epage>e0210152</epage><pages>e0210152-e0210152</pages><issn>1932-6203</issn><eissn>1932-6203</eissn><abstract>Self-stigma-negative self-judgements resulting in shame, worthlessness and self-blame-may play a crucial role in emotional reactions and cause emotional distress among many people living with HIV and other chronic illnesses. Furthermore, self-stigma negatively impacts on self-agency, quality of life, adherence to treatment, and access to services. High levels of self-stigma have been reported across many countries, however few programmes or interventions exist to specifically tackle this phenomenon. This paper reports the findings of a pilot study carried out in Zimbabwe using a programme incorporating "Inquiry-Based Stress Reduction (IBSR): The Work of Byron Katie"-a guided form of self-inquiry which helps users to overcome negative thoughts and beliefs.
The primary objective of this uncontrolled pilot study was to examine the potential role of the IBSR intervention in helping people living with HIV to overcome self-stigma and associated states.
23 people living with HIV (17 Female, 6 male, average age 41 years) were recruited from a local HIV support network, via open call for volunteers. All participants received the intervention, consisting of a 12-week facilitated programme using techniques derived from IBSR: The Work of Byron Katie. Qualitative and quantitative data were collected and analysed pre- and post-programme.
After taking part in the intervention, participants reported significant improvements in factors including self-stigma (1-month follow-up vs baseline Z = 2.1, p = 0.039; 3-month follow-up vs baseline Z = 3.0, p = 0.003, n = 23, Wilcoxon Matched Pairs Signed Rank Test) and depression (1mo vs baseline Z = 3.7, p = <0.001; 3mo vs baseline Z = 3.3, p = 0.001). Qualitatively, participants reported improvements including lessened fears around disclosure of their HIV status, reduced feelings of life limitations due to HIV, and greater positive mentality. Improvements persisted at three-month follow-up.
With further development and larger comparative studies to confirm effects, the IBSR programme could become a novel tool to enable people living with HIV to support themselves in overcoming self-stigma.</abstract><cop>United States</cop><pub>Public Library of Science</pub><pmid>30759114</pmid><doi>10.1371/journal.pone.0210152</doi><tpages>e0210152</tpages><orcidid>https://orcid.org/0000-0001-6306-8035</orcidid><oa>free_for_read</oa></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 1932-6203 |
| ispartof | PloS one, 2019-02, Vol.14 (2), p.e0210152-e0210152 |
| issn | 1932-6203 1932-6203 |
| language | eng |
| recordid | cdi_plos_journals_2179723234 |
| source | MEDLINE; DOAJ Directory of Open Access Journals; Elektronische Zeitschriftenbibliothek - Frei zugängliche E-Journals; PubMed Central; Free Full-Text Journals in Chemistry; Sociological Abstracts; Public Library of Science (PLoS) |
| subjects | Acquired immune deficiency syndrome Adaptation, Psychological Adult AIDS Biology and Life Sciences Cancer Chronic diseases Chronic illnesses Community change Comparative studies Data processing Demographic aspects Disclosure of information Emotional distress Emotions Epidemiology Female Health services HIV HIV carriers discrimination HIV Infections - epidemiology HIV Infections - psychology HIV patients HIV-1 Human immunodeficiency virus Humans Illnesses Intervention Male Medical diagnosis Medicine and Health Sciences Mental depression Patient compliance Pilot Projects Psychological aspects Psychological distress Public health Qualitative analysis Quality of Life Rank tests Research and Analysis Methods Risk factors Self Concept Self disclosure Shame Social aspects Social exclusion Social Sciences Social Stigma Stigma Stigma (Social psychology) Stress management Support networks Treatment compliance Zimbabwe - epidemiology |
| title | 'We are the change' - An innovative community-based response to address self-stigma: A pilot study focusing on people living with HIV in Zimbabwe |
| url | https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2025-02-09T06%3A38%3A04IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-gale_plos_&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle='We%20are%20the%20change'%20-%20An%20innovative%20community-based%20response%20to%20address%20self-stigma:%20A%20pilot%20study%20focusing%20on%20people%20living%20with%20HIV%20in%20Zimbabwe&rft.jtitle=PloS%20one&rft.au=Ferris%20France,%20Nadine&rft.date=2019-02-13&rft.volume=14&rft.issue=2&rft.spage=e0210152&rft.epage=e0210152&rft.pages=e0210152-e0210152&rft.issn=1932-6203&rft.eissn=1932-6203&rft_id=info:doi/10.1371/journal.pone.0210152&rft_dat=%3Cgale_plos_%3EA573981648%3C/gale_plos_%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=2179723234&rft_id=info:pmid/30759114&rft_galeid=A573981648&rft_doaj_id=oai_doaj_org_article_6528626f5aec44b7a08696c13533ee48&rfr_iscdi=true |