Development of a complex intervention for early integration of palliative home care into standard care for end-stage COPD patients: A Phase 0-I study
Research suggests that palliative home care should be integrated early into standard care for end-stage COPD patients. Patients also express the wish to be cared for and to die at home. However, a practice model for early integration of palliative home care (PHC) into standard care for end-stage COP...
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| Veröffentlicht in: | PloS one 2018-09, Vol.13 (9), p.e0203326-e0203326 |
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| creator | Scheerens, Charlotte Chambaere, Kenneth Pardon, Koen Derom, Eric Van Belle, Simon Joos, Guy Pype, Peter Deliens, Luc |
| description | Research suggests that palliative home care should be integrated early into standard care for end-stage COPD patients. Patients also express the wish to be cared for and to die at home. However, a practice model for early integration of palliative home care (PHC) into standard care for end-stage COPD has not been fully developed.
To develop an intervention for early integration of PHC into standard care for end-stage COPD patients.
We conducted a Phase 0-I study according to the Medical Research Council Framework for the development of complex interventions. Phase 0 aimed to identify the inclusion criteria and key components of the intervention by way of an explorative literature search of interventions, expert consultations, and seven focus groups with general practitioners and community nurses on perceived barriers to and facilitators of early integrated PHC for COPD. In Phase 1, the intervention, its inclusion criteria and its components were developed and further refined by an expert panel and two expert opinions.
Phase 0 resulted in identification of inclusion criteria and components from existing interventions, and barriers to and facilitators of early integration of PHC for end-stage COPD. Based on these findings, a nurse-led intervention was developed in Phase I consisting of training for PHC nurses in symptom recognition and physical therapy exercises for end-stage COPD, regular visits by PHC nurses at the patients' homes, two information leaflets on self-management, a semi-structured protocol and follow-up plan to record the outcomes of the home visits, and integration of care by enabling collaboration and communication between home and hospital-based professional caregivers.
This Phase 0-I trial succeeded in developing a complex intervention for early integration of PHC for end-stage COPD. The use of three methods in Phase 0 gave reliable data on which to base inclusion criteria and components of the intervention. The preliminary effectiveness, feasibility and acceptability of the intervention will be subsequently tested in a Phase II study. |
| doi_str_mv | 10.1371/journal.pone.0203326 |
| format | Article |
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To develop an intervention for early integration of PHC into standard care for end-stage COPD patients.
We conducted a Phase 0-I study according to the Medical Research Council Framework for the development of complex interventions. Phase 0 aimed to identify the inclusion criteria and key components of the intervention by way of an explorative literature search of interventions, expert consultations, and seven focus groups with general practitioners and community nurses on perceived barriers to and facilitators of early integrated PHC for COPD. In Phase 1, the intervention, its inclusion criteria and its components were developed and further refined by an expert panel and two expert opinions.
Phase 0 resulted in identification of inclusion criteria and components from existing interventions, and barriers to and facilitators of early integration of PHC for end-stage COPD. Based on these findings, a nurse-led intervention was developed in Phase I consisting of training for PHC nurses in symptom recognition and physical therapy exercises for end-stage COPD, regular visits by PHC nurses at the patients' homes, two information leaflets on self-management, a semi-structured protocol and follow-up plan to record the outcomes of the home visits, and integration of care by enabling collaboration and communication between home and hospital-based professional caregivers.
This Phase 0-I trial succeeded in developing a complex intervention for early integration of PHC for end-stage COPD. The use of three methods in Phase 0 gave reliable data on which to base inclusion criteria and components of the intervention. The preliminary effectiveness, feasibility and acceptability of the intervention will be subsequently tested in a Phase II study.</description><identifier>ISSN: 1932-6203</identifier><identifier>EISSN: 1932-6203</identifier><identifier>DOI: 10.1371/journal.pone.0203326</identifier><identifier>PMID: 30231042</identifier><language>eng</language><publisher>United States: Public Library of Science</publisher><subject>Analysis ; Cardiac patients ; Care and treatment ; Caregivers ; Chronic obstructive lung disease ; Chronic obstructive pulmonary disease ; Criteria ; Feasibility studies ; Health aspects ; Health care ; Hospitals ; Information management ; Integration ; Internal medicine ; Internet ; Intervention ; Medical personnel ; Medical research ; Medicine ; Medicine and Health Sciences ; Nurses ; Palliation ; Palliative care ; Patients ; People and Places ; Physical training ; Primary care ; Quality of life ; Studies</subject><ispartof>PloS one, 2018-09, Vol.13 (9), p.e0203326-e0203326</ispartof><rights>COPYRIGHT 2018 Public Library of Science</rights><rights>2018 Scheerens et al. This is an open access article distributed under the terms of the Creative Commons Attribution License: http://creativecommons.org/licenses/by/4.0/ (the “License”), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>2018 Scheerens et al 2018 Scheerens et al</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c692t-b20811663e3718bb41425468e9216584e2498eba656aad00ece3ed4acc29f75b3</citedby><cites>FETCH-LOGICAL-c692t-b20811663e3718bb41425468e9216584e2498eba656aad00ece3ed4acc29f75b3</cites><orcidid>0000-0003-4407-9462</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC6145576/pdf/$$EPDF$$P50$$Gpubmedcentral$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC6145576/$$EHTML$$P50$$Gpubmedcentral$$Hfree_for_read</linktohtml><link.rule.ids>230,314,727,780,784,864,885,2102,2928,23866,27924,27925,53791,53793,79600,79601</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/30231042$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><contributor>Vaismoradi, Mojtaba</contributor><creatorcontrib>Scheerens, Charlotte</creatorcontrib><creatorcontrib>Chambaere, Kenneth</creatorcontrib><creatorcontrib>Pardon, Koen</creatorcontrib><creatorcontrib>Derom, Eric</creatorcontrib><creatorcontrib>Van Belle, Simon</creatorcontrib><creatorcontrib>Joos, Guy</creatorcontrib><creatorcontrib>Pype, Peter</creatorcontrib><creatorcontrib>Deliens, Luc</creatorcontrib><title>Development of a complex intervention for early integration of palliative home care into standard care for end-stage COPD patients: A Phase 0-I study</title><title>PloS one</title><addtitle>PLoS One</addtitle><description>Research suggests that palliative home care should be integrated early into standard care for end-stage COPD patients. Patients also express the wish to be cared for and to die at home. However, a practice model for early integration of palliative home care (PHC) into standard care for end-stage COPD has not been fully developed.
To develop an intervention for early integration of PHC into standard care for end-stage COPD patients.
We conducted a Phase 0-I study according to the Medical Research Council Framework for the development of complex interventions. Phase 0 aimed to identify the inclusion criteria and key components of the intervention by way of an explorative literature search of interventions, expert consultations, and seven focus groups with general practitioners and community nurses on perceived barriers to and facilitators of early integrated PHC for COPD. In Phase 1, the intervention, its inclusion criteria and its components were developed and further refined by an expert panel and two expert opinions.
Phase 0 resulted in identification of inclusion criteria and components from existing interventions, and barriers to and facilitators of early integration of PHC for end-stage COPD. Based on these findings, a nurse-led intervention was developed in Phase I consisting of training for PHC nurses in symptom recognition and physical therapy exercises for end-stage COPD, regular visits by PHC nurses at the patients' homes, two information leaflets on self-management, a semi-structured protocol and follow-up plan to record the outcomes of the home visits, and integration of care by enabling collaboration and communication between home and hospital-based professional caregivers.
This Phase 0-I trial succeeded in developing a complex intervention for early integration of PHC for end-stage COPD. The use of three methods in Phase 0 gave reliable data on which to base inclusion criteria and components of the intervention. The preliminary effectiveness, feasibility and acceptability of the intervention will be subsequently tested in a Phase II study.</description><subject>Analysis</subject><subject>Cardiac patients</subject><subject>Care and treatment</subject><subject>Caregivers</subject><subject>Chronic obstructive lung disease</subject><subject>Chronic obstructive pulmonary disease</subject><subject>Criteria</subject><subject>Feasibility studies</subject><subject>Health aspects</subject><subject>Health care</subject><subject>Hospitals</subject><subject>Information management</subject><subject>Integration</subject><subject>Internal medicine</subject><subject>Internet</subject><subject>Intervention</subject><subject>Medical personnel</subject><subject>Medical research</subject><subject>Medicine</subject><subject>Medicine and Health Sciences</subject><subject>Nurses</subject><subject>Palliation</subject><subject>Palliative care</subject><subject>Patients</subject><subject>People and 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of a complex intervention for early integration of palliative home care into standard care for end-stage COPD patients: A Phase 0-I study</title><author>Scheerens, Charlotte ; Chambaere, Kenneth ; Pardon, Koen ; Derom, Eric ; Van Belle, Simon ; Joos, Guy ; Pype, Peter ; Deliens, Luc</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c692t-b20811663e3718bb41425468e9216584e2498eba656aad00ece3ed4acc29f75b3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2018</creationdate><topic>Analysis</topic><topic>Cardiac patients</topic><topic>Care and treatment</topic><topic>Caregivers</topic><topic>Chronic obstructive lung disease</topic><topic>Chronic obstructive pulmonary disease</topic><topic>Criteria</topic><topic>Feasibility studies</topic><topic>Health aspects</topic><topic>Health care</topic><topic>Hospitals</topic><topic>Information management</topic><topic>Integration</topic><topic>Internal 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One</addtitle><date>2018-09-19</date><risdate>2018</risdate><volume>13</volume><issue>9</issue><spage>e0203326</spage><epage>e0203326</epage><pages>e0203326-e0203326</pages><issn>1932-6203</issn><eissn>1932-6203</eissn><abstract>Research suggests that palliative home care should be integrated early into standard care for end-stage COPD patients. Patients also express the wish to be cared for and to die at home. However, a practice model for early integration of palliative home care (PHC) into standard care for end-stage COPD has not been fully developed.
To develop an intervention for early integration of PHC into standard care for end-stage COPD patients.
We conducted a Phase 0-I study according to the Medical Research Council Framework for the development of complex interventions. Phase 0 aimed to identify the inclusion criteria and key components of the intervention by way of an explorative literature search of interventions, expert consultations, and seven focus groups with general practitioners and community nurses on perceived barriers to and facilitators of early integrated PHC for COPD. In Phase 1, the intervention, its inclusion criteria and its components were developed and further refined by an expert panel and two expert opinions.
Phase 0 resulted in identification of inclusion criteria and components from existing interventions, and barriers to and facilitators of early integration of PHC for end-stage COPD. Based on these findings, a nurse-led intervention was developed in Phase I consisting of training for PHC nurses in symptom recognition and physical therapy exercises for end-stage COPD, regular visits by PHC nurses at the patients' homes, two information leaflets on self-management, a semi-structured protocol and follow-up plan to record the outcomes of the home visits, and integration of care by enabling collaboration and communication between home and hospital-based professional caregivers.
This Phase 0-I trial succeeded in developing a complex intervention for early integration of PHC for end-stage COPD. The use of three methods in Phase 0 gave reliable data on which to base inclusion criteria and components of the intervention. The preliminary effectiveness, feasibility and acceptability of the intervention will be subsequently tested in a Phase II study.</abstract><cop>United States</cop><pub>Public Library of Science</pub><pmid>30231042</pmid><doi>10.1371/journal.pone.0203326</doi><tpages>e0203326</tpages><orcidid>https://orcid.org/0000-0003-4407-9462</orcidid><oa>free_for_read</oa></addata></record> |
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| subjects | Analysis Cardiac patients Care and treatment Caregivers Chronic obstructive lung disease Chronic obstructive pulmonary disease Criteria Feasibility studies Health aspects Health care Hospitals Information management Integration Internal medicine Internet Intervention Medical personnel Medical research Medicine Medicine and Health Sciences Nurses Palliation Palliative care Patients People and Places Physical training Primary care Quality of life Studies |
| title | Development of a complex intervention for early integration of palliative home care into standard care for end-stage COPD patients: A Phase 0-I study |
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