Establishing the thematic framework for a diabetes-specific health-related quality of life item bank for use in an english-speaking asian population
To establish a thematic framework for a Diabetes Mellitus (DM)-specific health-related quality of life (HRQoL) item bank by identifying important HRQoL themes and content gaps in existing DM-specific HRQoL measures and determining whether Patient-Reported Outcomes Measurement Information System (PRO...
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| Veröffentlicht in: | PloS one 2014-12, Vol.9 (12), p.e115654-e115654 |
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| creator | Koh, Odelia Lee, Jeannette Tan, Maudrene L S Tai, E-Shyong Foo, Ce Jin Chong, Kok Joon Goh, Su-Yen Bee, Yong Mong Thumboo, Julian Cheung, Yin-Bun Singh, Avjeet Wee, Hwee-Lin |
| description | To establish a thematic framework for a Diabetes Mellitus (DM)-specific health-related quality of life (HRQoL) item bank by identifying important HRQoL themes and content gaps in existing DM-specific HRQoL measures and determining whether Patient-Reported Outcomes Measurement Information System (PROMIS) item banks are useful as a starting point.
English-speaking Type 2 DM patients were recruited from an outpatient specialist clinic in Singapore. Thematic analysis was performed through open coding and axial coding. Items from four existing DM-specific measures and PROMIS Version 1.0 and 2.0 item banks were compared with identified themes and sub-themes.
42 patients participated (25 men and 17 women; 28 Chinese, 4 Malay, 8 Indians, 2 other ethnicities). Median age was 53.70 years (IQR45.82-56.97) and the median disease duration was 11.13 (SD9.77) years. 10 subthemes (neutral emotions, coping emotions, empowered to help others, support from family, spend more time with family, relationships, financial burden on family, improved relationship, social support and religion/spirituality) were not covered by existing DM-specific measures. PROMIS covered 5 of 6 themes, 15 of 30 subthemes and 19 of 35 codes identified. Emotional distress (frustration, fear and anxiety) was most frequently mentioned (200 times).
We had developed a thematic framework for assessing DM-specific HRQoL in a multi-ethnic Asian population, identified new items that needed to be written and confirmed that PROMIS was a useful starting point. We hope that better understanding and measurement of HRQoL of Asian DM patients will translate to better quality of care for them. |
| doi_str_mv | 10.1371/journal.pone.0115654 |
| format | Article |
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English-speaking Type 2 DM patients were recruited from an outpatient specialist clinic in Singapore. Thematic analysis was performed through open coding and axial coding. Items from four existing DM-specific measures and PROMIS Version 1.0 and 2.0 item banks were compared with identified themes and sub-themes.
42 patients participated (25 men and 17 women; 28 Chinese, 4 Malay, 8 Indians, 2 other ethnicities). Median age was 53.70 years (IQR45.82-56.97) and the median disease duration was 11.13 (SD9.77) years. 10 subthemes (neutral emotions, coping emotions, empowered to help others, support from family, spend more time with family, relationships, financial burden on family, improved relationship, social support and religion/spirituality) were not covered by existing DM-specific measures. PROMIS covered 5 of 6 themes, 15 of 30 subthemes and 19 of 35 codes identified. Emotional distress (frustration, fear and anxiety) was most frequently mentioned (200 times).
We had developed a thematic framework for assessing DM-specific HRQoL in a multi-ethnic Asian population, identified new items that needed to be written and confirmed that PROMIS was a useful starting point. We hope that better understanding and measurement of HRQoL of Asian DM patients will translate to better quality of care for them.</description><identifier>ISSN: 1932-6203</identifier><identifier>EISSN: 1932-6203</identifier><identifier>DOI: 10.1371/journal.pone.0115654</identifier><identifier>PMID: 25531429</identifier><language>eng</language><publisher>United States: Public Library of Science</publisher><subject>Adaptation ; Adult ; Aged ; Anxiety ; Asian Continental Ancestry Group - statistics & numerical data ; Banking industry ; Banks ; Clinical medicine ; Coding ; Diabetes ; Diabetes mellitus ; Diabetes Mellitus, Type 2 - epidemiology ; Diabetes Mellitus, Type 2 - prevention & control ; Diabetic retinopathy ; Emotions ; Endocrinology ; Female ; Focus groups ; Frustration ; Hospitals ; Humans ; Immunology ; Information systems ; Male ; Medicine ; Medicine and Health Sciences ; Middle Aged ; Patient Outcome Assessment ; Patients ; Pharmacy ; Public health ; Qualitative research ; Quality of Life ; Questionnaires ; Rehabilitation ; Religion ; Research and Analysis Methods ; Review boards ; Rheumatology ; Self Report ; Singapore - epidemiology ; Social interactions ; Studies ; Surveys and Questionnaires ; Young Adult</subject><ispartof>PloS one, 2014-12, Vol.9 (12), p.e115654-e115654</ispartof><rights>2014 Koh et al. This is an open-access article distributed under the terms of the Creative Commons Attribution License: http://creativecommons.org/licenses/by/4.0/ (the “License”), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>2014 Koh et al 2014 Koh et al</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c526t-21dbc87ef169557a39bdfbb15ebea02cf94ae55f8cdfd7fc4d5f9bf5834dbce3</citedby><cites>FETCH-LOGICAL-c526t-21dbc87ef169557a39bdfbb15ebea02cf94ae55f8cdfd7fc4d5f9bf5834dbce3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC4274102/pdf/$$EPDF$$P50$$Gpubmedcentral$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC4274102/$$EHTML$$P50$$Gpubmedcentral$$Hfree_for_read</linktohtml><link.rule.ids>230,315,728,781,785,865,886,2103,2929,23870,27928,27929,53795,53797</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/25531429$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><contributor>Clement, Fiona</contributor><creatorcontrib>Koh, Odelia</creatorcontrib><creatorcontrib>Lee, Jeannette</creatorcontrib><creatorcontrib>Tan, Maudrene L S</creatorcontrib><creatorcontrib>Tai, E-Shyong</creatorcontrib><creatorcontrib>Foo, Ce Jin</creatorcontrib><creatorcontrib>Chong, Kok Joon</creatorcontrib><creatorcontrib>Goh, Su-Yen</creatorcontrib><creatorcontrib>Bee, Yong Mong</creatorcontrib><creatorcontrib>Thumboo, Julian</creatorcontrib><creatorcontrib>Cheung, Yin-Bun</creatorcontrib><creatorcontrib>Singh, Avjeet</creatorcontrib><creatorcontrib>Wee, Hwee-Lin</creatorcontrib><title>Establishing the thematic framework for a diabetes-specific health-related quality of life item bank for use in an english-speaking asian population</title><title>PloS one</title><addtitle>PLoS One</addtitle><description>To establish a thematic framework for a Diabetes Mellitus (DM)-specific health-related quality of life (HRQoL) item bank by identifying important HRQoL themes and content gaps in existing DM-specific HRQoL measures and determining whether Patient-Reported Outcomes Measurement Information System (PROMIS) item banks are useful as a starting point.
English-speaking Type 2 DM patients were recruited from an outpatient specialist clinic in Singapore. Thematic analysis was performed through open coding and axial coding. Items from four existing DM-specific measures and PROMIS Version 1.0 and 2.0 item banks were compared with identified themes and sub-themes.
42 patients participated (25 men and 17 women; 28 Chinese, 4 Malay, 8 Indians, 2 other ethnicities). Median age was 53.70 years (IQR45.82-56.97) and the median disease duration was 11.13 (SD9.77) years. 10 subthemes (neutral emotions, coping emotions, empowered to help others, support from family, spend more time with family, relationships, financial burden on family, improved relationship, social support and religion/spirituality) were not covered by existing DM-specific measures. PROMIS covered 5 of 6 themes, 15 of 30 subthemes and 19 of 35 codes identified. Emotional distress (frustration, fear and anxiety) was most frequently mentioned (200 times).
We had developed a thematic framework for assessing DM-specific HRQoL in a multi-ethnic Asian population, identified new items that needed to be written and confirmed that PROMIS was a useful starting point. We hope that better understanding and measurement of HRQoL of Asian DM patients will translate to better quality of care for them.</description><subject>Adaptation</subject><subject>Adult</subject><subject>Aged</subject><subject>Anxiety</subject><subject>Asian Continental Ancestry Group - statistics & numerical data</subject><subject>Banking industry</subject><subject>Banks</subject><subject>Clinical medicine</subject><subject>Coding</subject><subject>Diabetes</subject><subject>Diabetes mellitus</subject><subject>Diabetes Mellitus, Type 2 - epidemiology</subject><subject>Diabetes Mellitus, Type 2 - prevention & control</subject><subject>Diabetic retinopathy</subject><subject>Emotions</subject><subject>Endocrinology</subject><subject>Female</subject><subject>Focus groups</subject><subject>Frustration</subject><subject>Hospitals</subject><subject>Humans</subject><subject>Immunology</subject><subject>Information systems</subject><subject>Male</subject><subject>Medicine</subject><subject>Medicine and Health Sciences</subject><subject>Middle Aged</subject><subject>Patient Outcome Assessment</subject><subject>Patients</subject><subject>Pharmacy</subject><subject>Public health</subject><subject>Qualitative research</subject><subject>Quality of Life</subject><subject>Questionnaires</subject><subject>Rehabilitation</subject><subject>Religion</subject><subject>Research and Analysis Methods</subject><subject>Review boards</subject><subject>Rheumatology</subject><subject>Self Report</subject><subject>Singapore - epidemiology</subject><subject>Social interactions</subject><subject>Studies</subject><subject>Surveys and Questionnaires</subject><subject>Young Adult</subject><issn>1932-6203</issn><issn>1932-6203</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2014</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>AZQEC</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><sourceid>GNUQQ</sourceid><sourceid>DOA</sourceid><recordid>eNptks9u1DAQxiMEomXhDRBY4sIlS_wvm1yQUNVCpUpcerfGznjXWydObQfU9-CBSbrbqkUcLFvjb34zY39F8Z5Wa8o39Ms-THEAvx7DgOuKUllL8aI4pS1nZc0q_vLJ-aR4k9K-qiRv6vp1ccKk5FSw9rT4c54yaO_Szg1bkne4rB6yM8RG6PF3iDfEhkiAdA40ZkxlGtE4Oyt2CD7vyogeMnbkdgLv8h0JlnhnkbiMPdEwHABTmiMDgYHgsF0KLhy4WcpCcnN4DOM0g1wY3havLPiE7477qri-OL8--1Fe_fx-efbtqjSS1blktNOm2aCldSvlBnirO6s1lagRKmZsKwCltI3pbLexRnTSttrKhos5Efmq-HjAjj4kdXzPpGjNW9GySrBZcXlQdAH2aoyuh3inAjh1HwhxqyDOb-VRoWigEV3DoaEzvtJcaCNNqwFa2YKdWV-P1SbdY2dwyBH8M-jzm8Ht1Db8UoJtBK2WZj4fATHcTpiy6l0y6D0MGKalb1Fx1rD5l1fFp3-k_59OHFQmhpQi2sdmaKUWjz1kqcVj6uixOe3D00Eekx5Mxf8Cp2PVGw</recordid><startdate>20141222</startdate><enddate>20141222</enddate><creator>Koh, Odelia</creator><creator>Lee, Jeannette</creator><creator>Tan, Maudrene L S</creator><creator>Tai, E-Shyong</creator><creator>Foo, Ce Jin</creator><creator>Chong, Kok Joon</creator><creator>Goh, Su-Yen</creator><creator>Bee, Yong Mong</creator><creator>Thumboo, Julian</creator><creator>Cheung, Yin-Bun</creator><creator>Singh, Avjeet</creator><creator>Wee, Hwee-Lin</creator><general>Public Library of Science</general><general>Public Library of Science (PLoS)</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7QG</scope><scope>7QL</scope><scope>7QO</scope><scope>7RV</scope><scope>7SN</scope><scope>7SS</scope><scope>7T5</scope><scope>7TG</scope><scope>7TM</scope><scope>7U9</scope><scope>7X2</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>8AO</scope><scope>8C1</scope><scope>8FD</scope><scope>8FE</scope><scope>8FG</scope><scope>8FH</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABJCF</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>ARAPS</scope><scope>ATCPS</scope><scope>AZQEC</scope><scope>BBNVY</scope><scope>BENPR</scope><scope>BGLVJ</scope><scope>BHPHI</scope><scope>C1K</scope><scope>CCPQU</scope><scope>D1I</scope><scope>DWQXO</scope><scope>FR3</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>H94</scope><scope>HCIFZ</scope><scope>K9.</scope><scope>KB.</scope><scope>KB0</scope><scope>KL.</scope><scope>L6V</scope><scope>LK8</scope><scope>M0K</scope><scope>M0S</scope><scope>M1P</scope><scope>M7N</scope><scope>M7P</scope><scope>M7S</scope><scope>NAPCQ</scope><scope>P5Z</scope><scope>P62</scope><scope>P64</scope><scope>PATMY</scope><scope>PDBOC</scope><scope>PIMPY</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>PTHSS</scope><scope>PYCSY</scope><scope>RC3</scope><scope>7X8</scope><scope>5PM</scope><scope>DOA</scope></search><sort><creationdate>20141222</creationdate><title>Establishing the thematic framework for a diabetes-specific health-related quality of life item bank for use in an english-speaking asian population</title><author>Koh, Odelia ; Lee, Jeannette ; Tan, Maudrene L S ; Tai, E-Shyong ; Foo, Ce Jin ; Chong, Kok Joon ; Goh, Su-Yen ; Bee, Yong Mong ; Thumboo, Julian ; Cheung, Yin-Bun ; Singh, Avjeet ; Wee, Hwee-Lin</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c526t-21dbc87ef169557a39bdfbb15ebea02cf94ae55f8cdfd7fc4d5f9bf5834dbce3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2014</creationdate><topic>Adaptation</topic><topic>Adult</topic><topic>Aged</topic><topic>Anxiety</topic><topic>Asian Continental Ancestry Group - statistics & numerical data</topic><topic>Banking industry</topic><topic>Banks</topic><topic>Clinical medicine</topic><topic>Coding</topic><topic>Diabetes</topic><topic>Diabetes mellitus</topic><topic>Diabetes Mellitus, Type 2 - epidemiology</topic><topic>Diabetes Mellitus, Type 2 - prevention & control</topic><topic>Diabetic retinopathy</topic><topic>Emotions</topic><topic>Endocrinology</topic><topic>Female</topic><topic>Focus groups</topic><topic>Frustration</topic><topic>Hospitals</topic><topic>Humans</topic><topic>Immunology</topic><topic>Information systems</topic><topic>Male</topic><topic>Medicine</topic><topic>Medicine and Health Sciences</topic><topic>Middle Aged</topic><topic>Patient Outcome Assessment</topic><topic>Patients</topic><topic>Pharmacy</topic><topic>Public health</topic><topic>Qualitative research</topic><topic>Quality of Life</topic><topic>Questionnaires</topic><topic>Rehabilitation</topic><topic>Religion</topic><topic>Research and Analysis Methods</topic><topic>Review boards</topic><topic>Rheumatology</topic><topic>Self Report</topic><topic>Singapore - 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Academic</collection><collection>PubMed Central (Full Participant titles)</collection><collection>DOAJ Directory of Open Access Journals</collection><jtitle>PloS one</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Koh, Odelia</au><au>Lee, Jeannette</au><au>Tan, Maudrene L S</au><au>Tai, E-Shyong</au><au>Foo, Ce Jin</au><au>Chong, Kok Joon</au><au>Goh, Su-Yen</au><au>Bee, Yong Mong</au><au>Thumboo, Julian</au><au>Cheung, Yin-Bun</au><au>Singh, Avjeet</au><au>Wee, Hwee-Lin</au><au>Clement, Fiona</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Establishing the thematic framework for a diabetes-specific health-related quality of life item bank for use in an english-speaking asian population</atitle><jtitle>PloS one</jtitle><addtitle>PLoS One</addtitle><date>2014-12-22</date><risdate>2014</risdate><volume>9</volume><issue>12</issue><spage>e115654</spage><epage>e115654</epage><pages>e115654-e115654</pages><issn>1932-6203</issn><eissn>1932-6203</eissn><abstract>To establish a thematic framework for a Diabetes Mellitus (DM)-specific health-related quality of life (HRQoL) item bank by identifying important HRQoL themes and content gaps in existing DM-specific HRQoL measures and determining whether Patient-Reported Outcomes Measurement Information System (PROMIS) item banks are useful as a starting point.
English-speaking Type 2 DM patients were recruited from an outpatient specialist clinic in Singapore. Thematic analysis was performed through open coding and axial coding. Items from four existing DM-specific measures and PROMIS Version 1.0 and 2.0 item banks were compared with identified themes and sub-themes.
42 patients participated (25 men and 17 women; 28 Chinese, 4 Malay, 8 Indians, 2 other ethnicities). Median age was 53.70 years (IQR45.82-56.97) and the median disease duration was 11.13 (SD9.77) years. 10 subthemes (neutral emotions, coping emotions, empowered to help others, support from family, spend more time with family, relationships, financial burden on family, improved relationship, social support and religion/spirituality) were not covered by existing DM-specific measures. PROMIS covered 5 of 6 themes, 15 of 30 subthemes and 19 of 35 codes identified. Emotional distress (frustration, fear and anxiety) was most frequently mentioned (200 times).
We had developed a thematic framework for assessing DM-specific HRQoL in a multi-ethnic Asian population, identified new items that needed to be written and confirmed that PROMIS was a useful starting point. We hope that better understanding and measurement of HRQoL of Asian DM patients will translate to better quality of care for them.</abstract><cop>United States</cop><pub>Public Library of Science</pub><pmid>25531429</pmid><doi>10.1371/journal.pone.0115654</doi><oa>free_for_read</oa></addata></record> |
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| identifier | ISSN: 1932-6203 |
| ispartof | PloS one, 2014-12, Vol.9 (12), p.e115654-e115654 |
| issn | 1932-6203 1932-6203 |
| language | eng |
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| source | MEDLINE; DOAJ Directory of Open Access Journals; Public Library of Science (PLoS) Journals Open Access; EZB-FREE-00999 freely available EZB journals; PubMed Central; Free Full-Text Journals in Chemistry |
| subjects | Adaptation Adult Aged Anxiety Asian Continental Ancestry Group - statistics & numerical data Banking industry Banks Clinical medicine Coding Diabetes Diabetes mellitus Diabetes Mellitus, Type 2 - epidemiology Diabetes Mellitus, Type 2 - prevention & control Diabetic retinopathy Emotions Endocrinology Female Focus groups Frustration Hospitals Humans Immunology Information systems Male Medicine Medicine and Health Sciences Middle Aged Patient Outcome Assessment Patients Pharmacy Public health Qualitative research Quality of Life Questionnaires Rehabilitation Religion Research and Analysis Methods Review boards Rheumatology Self Report Singapore - epidemiology Social interactions Studies Surveys and Questionnaires Young Adult |
| title | Establishing the thematic framework for a diabetes-specific health-related quality of life item bank for use in an english-speaking asian population |
| url | https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2024-12-16T17%3A00%3A05IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-proquest_plos_&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Establishing%20the%20thematic%20framework%20for%20a%20diabetes-specific%20health-related%20quality%20of%20life%20item%20bank%20for%20use%20in%20an%20english-speaking%20asian%20population&rft.jtitle=PloS%20one&rft.au=Koh,%20Odelia&rft.date=2014-12-22&rft.volume=9&rft.issue=12&rft.spage=e115654&rft.epage=e115654&rft.pages=e115654-e115654&rft.issn=1932-6203&rft.eissn=1932-6203&rft_id=info:doi/10.1371/journal.pone.0115654&rft_dat=%3Cproquest_plos_%3E3534445501%3C/proquest_plos_%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=1639492042&rft_id=info:pmid/25531429&rft_doaj_id=oai_doaj_org_article_e48a84d83a814db0b34bc5c9baa959af&rfr_iscdi=true |