Validity of LupusQoL-China for the assessment of health related quality of life in Chinese patients with systemic lupus erythematosus
To adapt and assess the validity and reliability of LupusQoL for use in Chinese patients with systemic lupus erythematosus (SLE). Debriefing interviews of subjects with SLE guided the language modifications of the tool. The process of adaptation proceeded according to the guideline and pre-testing r...
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| description | To adapt and assess the validity and reliability of LupusQoL for use in Chinese patients with systemic lupus erythematosus (SLE).
Debriefing interviews of subjects with SLE guided the language modifications of the tool. The process of adaptation proceeded according to the guideline and pre-testing results of LupusQoL-China. 220 SLE patients completed LupusQoL-China and a generic preference-based measurement of health EuroQoL scale (EQ-5D), and 20 patients repeated them after 2 weeks. Internal consistency (ICR) and test-retest (TRT) reliability, convergent and discriminant validity were examined. Factor analysis and Rasch analysis were performed.
The mean (SD) age of the 208 subjects with SLE was 33.93 (± 9.19) years. ICR and TRT of the eight domains ranged from 0.811 to 0.965 and 0.836 to 0.974, respectively. The LupusQoL-China domains demonstrated substantial evidence of construct validity when compared with equivalent domains on the EQ-5D (physical health and usual activities r = -0.63, pain and pain/discomfort r = -0.778, emotional health and anxiety/depression r = -0.761, planning and usual activities r = -0.560). Most LupusQoL-China domains could discriminate patients with varied disease activities and end-organ damage (according to SELENA-SLEDAI and SLICC-DI). The principal component analysis revealed six factors, and confirmatory factor analysis result of which is similar to eight factors model.
These results provide evidence that the LupusQoL-China is valid as a disease-specific HRQoL assessment tool for Chinese patients with SLE. |
| doi_str_mv | 10.1371/journal.pone.0063795 |
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Debriefing interviews of subjects with SLE guided the language modifications of the tool. The process of adaptation proceeded according to the guideline and pre-testing results of LupusQoL-China. 220 SLE patients completed LupusQoL-China and a generic preference-based measurement of health EuroQoL scale (EQ-5D), and 20 patients repeated them after 2 weeks. Internal consistency (ICR) and test-retest (TRT) reliability, convergent and discriminant validity were examined. Factor analysis and Rasch analysis were performed.
The mean (SD) age of the 208 subjects with SLE was 33.93 (± 9.19) years. ICR and TRT of the eight domains ranged from 0.811 to 0.965 and 0.836 to 0.974, respectively. The LupusQoL-China domains demonstrated substantial evidence of construct validity when compared with equivalent domains on the EQ-5D (physical health and usual activities r = -0.63, pain and pain/discomfort r = -0.778, emotional health and anxiety/depression r = -0.761, planning and usual activities r = -0.560). Most LupusQoL-China domains could discriminate patients with varied disease activities and end-organ damage (according to SELENA-SLEDAI and SLICC-DI). The principal component analysis revealed six factors, and confirmatory factor analysis result of which is similar to eight factors model.
These results provide evidence that the LupusQoL-China is valid as a disease-specific HRQoL assessment tool for Chinese patients with SLE.</description><identifier>ISSN: 1932-6203</identifier><identifier>EISSN: 1932-6203</identifier><identifier>DOI: 10.1371/journal.pone.0063795</identifier><identifier>PMID: 23717486</identifier><language>eng</language><publisher>United States: Public Library of Science</publisher><subject>Adult ; Age ; Analysis ; Anxiety ; Arthritis ; Autoimmune diseases ; China ; Chronic conditions ; Culture ; Epidemiology ; Factor analysis ; Health ; Hospitals ; Humans ; Lupus ; Lupus Erythematosus, Systemic - psychology ; Medical research ; Medicine ; Mental depression ; Pain ; Patients ; Principal Component Analysis ; Principal components analysis ; Psychometrics ; Quality of life ; Quality of Life - psychology ; Questionnaires ; Reliability analysis ; Reliability aspects ; Reproducibility of Results ; Rheumatology ; Social and Behavioral Sciences ; Surveys and Questionnaires ; Systemic lupus erythematosus ; Taiwan ; Validity ; Young Adult</subject><ispartof>PloS one, 2013-05, Vol.8 (5), p.e63795-e63795</ispartof><rights>COPYRIGHT 2013 Public Library of Science</rights><rights>2013 Wang et al. This is an open-access article distributed under the terms of the Creative Commons Attribution License: https://creativecommons.org/licenses/by/4.0/ (the “License”), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>2013 Wang et al 2013 Wang et al</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c692t-4f98b47c980e87fce898a2b432df042d7cab3cf0833e2c44e0581c1a839cc51b3</citedby><cites>FETCH-LOGICAL-c692t-4f98b47c980e87fce898a2b432df042d7cab3cf0833e2c44e0581c1a839cc51b3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC3662722/pdf/$$EPDF$$P50$$Gpubmedcentral$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC3662722/$$EHTML$$P50$$Gpubmedcentral$$Hfree_for_read</linktohtml><link.rule.ids>230,314,723,776,780,860,881,2096,2915,23845,27901,27902,53766,53768,79342,79343</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/23717486$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Wang, Su-li</creatorcontrib><creatorcontrib>Wu, Bin</creatorcontrib><creatorcontrib>Leng, Lin</creatorcontrib><creatorcontrib>Bucala, Richard</creatorcontrib><creatorcontrib>Lu, Liang-jing</creatorcontrib><title>Validity of LupusQoL-China for the assessment of health related quality of life in Chinese patients with systemic lupus erythematosus</title><title>PloS one</title><addtitle>PLoS One</addtitle><description>To adapt and assess the validity and reliability of LupusQoL for use in Chinese patients with systemic lupus erythematosus (SLE).
Debriefing interviews of subjects with SLE guided the language modifications of the tool. The process of adaptation proceeded according to the guideline and pre-testing results of LupusQoL-China. 220 SLE patients completed LupusQoL-China and a generic preference-based measurement of health EuroQoL scale (EQ-5D), and 20 patients repeated them after 2 weeks. Internal consistency (ICR) and test-retest (TRT) reliability, convergent and discriminant validity were examined. Factor analysis and Rasch analysis were performed.
The mean (SD) age of the 208 subjects with SLE was 33.93 (± 9.19) years. ICR and TRT of the eight domains ranged from 0.811 to 0.965 and 0.836 to 0.974, respectively. The LupusQoL-China domains demonstrated substantial evidence of construct validity when compared with equivalent domains on the EQ-5D (physical health and usual activities r = -0.63, pain and pain/discomfort r = -0.778, emotional health and anxiety/depression r = -0.761, planning and usual activities r = -0.560). Most LupusQoL-China domains could discriminate patients with varied disease activities and end-organ damage (according to SELENA-SLEDAI and SLICC-DI). The principal component analysis revealed six factors, and confirmatory factor analysis result of which is similar to eight factors model.
These results provide evidence that the LupusQoL-China is valid as a disease-specific HRQoL assessment tool for Chinese patients with SLE.</description><subject>Adult</subject><subject>Age</subject><subject>Analysis</subject><subject>Anxiety</subject><subject>Arthritis</subject><subject>Autoimmune diseases</subject><subject>China</subject><subject>Chronic conditions</subject><subject>Culture</subject><subject>Epidemiology</subject><subject>Factor analysis</subject><subject>Health</subject><subject>Hospitals</subject><subject>Humans</subject><subject>Lupus</subject><subject>Lupus Erythematosus, Systemic - psychology</subject><subject>Medical research</subject><subject>Medicine</subject><subject>Mental depression</subject><subject>Pain</subject><subject>Patients</subject><subject>Principal Component Analysis</subject><subject>Principal components analysis</subject><subject>Psychometrics</subject><subject>Quality of life</subject><subject>Quality of Life - psychology</subject><subject>Questionnaires</subject><subject>Reliability analysis</subject><subject>Reliability aspects</subject><subject>Reproducibility of Results</subject><subject>Rheumatology</subject><subject>Social and Behavioral Sciences</subject><subject>Surveys and Questionnaires</subject><subject>Systemic lupus erythematosus</subject><subject>Taiwan</subject><subject>Validity</subject><subject>Young 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one</jtitle><addtitle>PLoS One</addtitle><date>2013-05-23</date><risdate>2013</risdate><volume>8</volume><issue>5</issue><spage>e63795</spage><epage>e63795</epage><pages>e63795-e63795</pages><issn>1932-6203</issn><eissn>1932-6203</eissn><abstract>To adapt and assess the validity and reliability of LupusQoL for use in Chinese patients with systemic lupus erythematosus (SLE).
Debriefing interviews of subjects with SLE guided the language modifications of the tool. The process of adaptation proceeded according to the guideline and pre-testing results of LupusQoL-China. 220 SLE patients completed LupusQoL-China and a generic preference-based measurement of health EuroQoL scale (EQ-5D), and 20 patients repeated them after 2 weeks. Internal consistency (ICR) and test-retest (TRT) reliability, convergent and discriminant validity were examined. Factor analysis and Rasch analysis were performed.
The mean (SD) age of the 208 subjects with SLE was 33.93 (± 9.19) years. ICR and TRT of the eight domains ranged from 0.811 to 0.965 and 0.836 to 0.974, respectively. The LupusQoL-China domains demonstrated substantial evidence of construct validity when compared with equivalent domains on the EQ-5D (physical health and usual activities r = -0.63, pain and pain/discomfort r = -0.778, emotional health and anxiety/depression r = -0.761, planning and usual activities r = -0.560). Most LupusQoL-China domains could discriminate patients with varied disease activities and end-organ damage (according to SELENA-SLEDAI and SLICC-DI). The principal component analysis revealed six factors, and confirmatory factor analysis result of which is similar to eight factors model.
These results provide evidence that the LupusQoL-China is valid as a disease-specific HRQoL assessment tool for Chinese patients with SLE.</abstract><cop>United States</cop><pub>Public Library of Science</pub><pmid>23717486</pmid><doi>10.1371/journal.pone.0063795</doi><tpages>e63795</tpages><oa>free_for_read</oa></addata></record> |
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| subjects | Adult Age Analysis Anxiety Arthritis Autoimmune diseases China Chronic conditions Culture Epidemiology Factor analysis Health Hospitals Humans Lupus Lupus Erythematosus, Systemic - psychology Medical research Medicine Mental depression Pain Patients Principal Component Analysis Principal components analysis Psychometrics Quality of life Quality of Life - psychology Questionnaires Reliability analysis Reliability aspects Reproducibility of Results Rheumatology Social and Behavioral Sciences Surveys and Questionnaires Systemic lupus erythematosus Taiwan Validity Young Adult |
| title | Validity of LupusQoL-China for the assessment of health related quality of life in Chinese patients with systemic lupus erythematosus |
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