Early stages of building a rare disease registry, methods and 2010 data from the Belgian Neuromuscular Disease Registry (BNMDR)

The Belgian Neuromuscular Disease Registry, commissioned in 2008, aims to collect data to improve knowledge on neuromuscular diseases and enhance quality health services for neuromuscular disease patients. This paper presents a clear outline of the strategy to launch a global national registry. All...

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Veröffentlicht in:	Acta Neurologica Belgica 2015-06, Vol.115 (2), p.97-104
Hauptverfasser:	Roy, Anna J, Van den Bergh, Peter, Van Damme, Philip, Doggen, Kris, Van Casteren, Viviane, The BNMDR Scientific Committee
Format:	Artikel
Sprache:	eng
Online-Zugang:	Volltext
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