Important questions asked by family members of intensive care unit patients

OBJECTIVES:Relatives often lack important information about intensive care unit patients. High-quality information is crucial to help relatives overcome the often considerable situational stress and to acquire the ability to participate in the decision-making process, most notably regarding the appr...

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Veröffentlicht in:Critical care medicine 2011-06, Vol.39 (6), p.1365-1371
Hauptverfasser: Peigne, Vincent, Chaize, Marine, Falissard, Bruno, Kentish-Barnes, Nancy, Rusinova, Katerina, Megarbane, Bruno, Bele, Nicolas, Cariou, Alain, Fieux, Fabienne, Garrouste-Orgeas, Maite, Georges, Hugues, Jourdain, Merce, Kouatchet, Achille, Lautrette, Alexandre, Legriel, Stephane, Regnier, Bernard, Renault, Anne, Thirion, Marina, Timsit, Jean-Francois, Toledano, Dany, Chevret, Sylvie, Pochard, Frédéric, Schlemmer, Benoît, Azoulay, Elie
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container_end_page 1371
container_issue 6
container_start_page 1365
container_title Critical care medicine
container_volume 39
creator Peigne, Vincent
Chaize, Marine
Falissard, Bruno
Kentish-Barnes, Nancy
Rusinova, Katerina
Megarbane, Bruno
Bele, Nicolas
Cariou, Alain
Fieux, Fabienne
Garrouste-Orgeas, Maite
Georges, Hugues
Jourdain, Merce
Kouatchet, Achille
Lautrette, Alexandre
Legriel, Stephane
Regnier, Bernard
Renault, Anne
Thirion, Marina
Timsit, Jean-Francois
Toledano, Dany
Chevret, Sylvie
Pochard, Frédéric
Schlemmer, Benoît
Azoulay, Elie
description OBJECTIVES:Relatives often lack important information about intensive care unit patients. High-quality information is crucial to help relatives overcome the often considerable situational stress and to acquire the ability to participate in the decision-making process, most notably regarding the appropriate level of care. We aimed to develop a list of questions important for relatives of patients in the intensive care unit. DESIGN, SETTING, AND PARTICIPANTS:This was a multicenter study. Questions asked by relatives of intensive care unit patients were collected from five different sources (literature, panel of 28 intensive care unit nurses and physicians, 1-wk survey of nurses and 1-wk survey of physicians in 14 intensive care units, and in-depth interviews with 14 families). After a qualitative analysis (framework approach and thematic analysis), questions were rated by 22 relatives and 14 intensive care unit physicians, and the ratings were analyzed using principal component analysis and hierarchical clustering. RESULTS:The five sources produced 2,135 questions. Removal of duplicates and redundancies left 443 questions, which were distributed among nine predefined domains using a framework approach (“diagnosis,” “treatment,” “prognosis,” “comfort,” “interaction,” “communication,” “family,” “end of life,” and “postintensive care unit management”). Thematic analysis in each domain led to the identification of 46 themes, which were reworded as 46 different questions. Ratings by relatives and physicians showed that 21 of these questions were particularly important for relatives of intensive care unit patients. CONCLUSION:This study increases knowledge about the informational needs of relatives of intensive care unit patients. This list of questions may prove valuable for both relatives and intensive care unit physicians as a tool for improving communication in the intensive care unit.
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High-quality information is crucial to help relatives overcome the often considerable situational stress and to acquire the ability to participate in the decision-making process, most notably regarding the appropriate level of care. We aimed to develop a list of questions important for relatives of patients in the intensive care unit. DESIGN, SETTING, AND PARTICIPANTS:This was a multicenter study. Questions asked by relatives of intensive care unit patients were collected from five different sources (literature, panel of 28 intensive care unit nurses and physicians, 1-wk survey of nurses and 1-wk survey of physicians in 14 intensive care units, and in-depth interviews with 14 families). After a qualitative analysis (framework approach and thematic analysis), questions were rated by 22 relatives and 14 intensive care unit physicians, and the ratings were analyzed using principal component analysis and hierarchical clustering. RESULTS:The five sources produced 2,135 questions. Removal of duplicates and redundancies left 443 questions, which were distributed among nine predefined domains using a framework approach (“diagnosis,” “treatment,” “prognosis,” “comfort,” “interaction,” “communication,” “family,” “end of life,” and “postintensive care unit management”). Thematic analysis in each domain led to the identification of 46 themes, which were reworded as 46 different questions. Ratings by relatives and physicians showed that 21 of these questions were particularly important for relatives of intensive care unit patients. CONCLUSION:This study increases knowledge about the informational needs of relatives of intensive care unit patients. This list of questions may prove valuable for both relatives and intensive care unit physicians as a tool for improving communication in the intensive care unit.</description><identifier>ISSN: 0090-3493</identifier><identifier>EISSN: 1530-0293</identifier><identifier>DOI: 10.1097/CCM.0b013e3182120b68</identifier><identifier>PMID: 21358395</identifier><identifier>CODEN: CCMDC7</identifier><language>eng</language><publisher>Hagerstown, MD: by the Society of Critical Care Medicine and Lippincott Williams &amp; Wilkins</publisher><subject>Anesthesia. Intensive care medicine. Transfusions. Cell therapy and gene therapy ; Biological and medical sciences ; Cardiology and cardiovascular system ; Clinical death. Palliative care. Organ gift and preservation ; Communication ; Critical Care ; Decision Making ; Emerging diseases ; Family - psychology ; Health Knowledge, Attitudes, Practice ; Human health and pathology ; Humans ; Infectious diseases ; Intensive care medicine ; Life Sciences ; Medical sciences ; Needs Assessment ; Professional-Family Relations ; Pulmonology and respiratory tract ; Toxicology</subject><ispartof>Critical care medicine, 2011-06, Vol.39 (6), p.1365-1371</ispartof><rights>2011 by the Society of Critical Care Medicine and Lippincott Williams &amp; Wilkins</rights><rights>2015 INIST-CNRS</rights><rights>Distributed under a Creative Commons Attribution 4.0 International License</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c4159-8e2e1802d4e0a2e464af241bf710d65066f09c5bf9a41fef801f19ba2180347f3</citedby><cites>FETCH-LOGICAL-c4159-8e2e1802d4e0a2e464af241bf710d65066f09c5bf9a41fef801f19ba2180347f3</cites><orcidid>0000-0003-0699-8353 ; 0000-0003-4545-7461 ; 0000-0002-2522-2764 ; 0000-0002-8162-1508</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>230,314,780,784,885,27924,27925</link.rule.ids><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&amp;idt=24186822$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/21358395$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink><backlink>$$Uhttps://hal.science/hal-03878483$$DView record in HAL$$Hfree_for_read</backlink></links><search><creatorcontrib>Peigne, Vincent</creatorcontrib><creatorcontrib>Chaize, Marine</creatorcontrib><creatorcontrib>Falissard, Bruno</creatorcontrib><creatorcontrib>Kentish-Barnes, Nancy</creatorcontrib><creatorcontrib>Rusinova, Katerina</creatorcontrib><creatorcontrib>Megarbane, Bruno</creatorcontrib><creatorcontrib>Bele, Nicolas</creatorcontrib><creatorcontrib>Cariou, Alain</creatorcontrib><creatorcontrib>Fieux, Fabienne</creatorcontrib><creatorcontrib>Garrouste-Orgeas, Maite</creatorcontrib><creatorcontrib>Georges, Hugues</creatorcontrib><creatorcontrib>Jourdain, Merce</creatorcontrib><creatorcontrib>Kouatchet, Achille</creatorcontrib><creatorcontrib>Lautrette, Alexandre</creatorcontrib><creatorcontrib>Legriel, Stephane</creatorcontrib><creatorcontrib>Regnier, Bernard</creatorcontrib><creatorcontrib>Renault, Anne</creatorcontrib><creatorcontrib>Thirion, Marina</creatorcontrib><creatorcontrib>Timsit, Jean-Francois</creatorcontrib><creatorcontrib>Toledano, Dany</creatorcontrib><creatorcontrib>Chevret, Sylvie</creatorcontrib><creatorcontrib>Pochard, Frédéric</creatorcontrib><creatorcontrib>Schlemmer, Benoît</creatorcontrib><creatorcontrib>Azoulay, Elie</creatorcontrib><title>Important questions asked by family members of intensive care unit patients</title><title>Critical care medicine</title><addtitle>Crit Care Med</addtitle><description>OBJECTIVES:Relatives often lack important information about intensive care unit patients. High-quality information is crucial to help relatives overcome the often considerable situational stress and to acquire the ability to participate in the decision-making process, most notably regarding the appropriate level of care. We aimed to develop a list of questions important for relatives of patients in the intensive care unit. DESIGN, SETTING, AND PARTICIPANTS:This was a multicenter study. Questions asked by relatives of intensive care unit patients were collected from five different sources (literature, panel of 28 intensive care unit nurses and physicians, 1-wk survey of nurses and 1-wk survey of physicians in 14 intensive care units, and in-depth interviews with 14 families). After a qualitative analysis (framework approach and thematic analysis), questions were rated by 22 relatives and 14 intensive care unit physicians, and the ratings were analyzed using principal component analysis and hierarchical clustering. RESULTS:The five sources produced 2,135 questions. Removal of duplicates and redundancies left 443 questions, which were distributed among nine predefined domains using a framework approach (“diagnosis,” “treatment,” “prognosis,” “comfort,” “interaction,” “communication,” “family,” “end of life,” and “postintensive care unit management”). Thematic analysis in each domain led to the identification of 46 themes, which were reworded as 46 different questions. Ratings by relatives and physicians showed that 21 of these questions were particularly important for relatives of intensive care unit patients. CONCLUSION:This study increases knowledge about the informational needs of relatives of intensive care unit patients. This list of questions may prove valuable for both relatives and intensive care unit physicians as a tool for improving communication in the intensive care unit.</description><subject>Anesthesia. Intensive care medicine. Transfusions. 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Intensive care medicine. Transfusions. Cell therapy and gene therapy</topic><topic>Biological and medical sciences</topic><topic>Cardiology and cardiovascular system</topic><topic>Clinical death. Palliative care. Organ gift and preservation</topic><topic>Communication</topic><topic>Critical Care</topic><topic>Decision Making</topic><topic>Emerging diseases</topic><topic>Family - psychology</topic><topic>Health Knowledge, Attitudes, Practice</topic><topic>Human health and pathology</topic><topic>Humans</topic><topic>Infectious diseases</topic><topic>Intensive care medicine</topic><topic>Life Sciences</topic><topic>Medical sciences</topic><topic>Needs Assessment</topic><topic>Professional-Family Relations</topic><topic>Pulmonology and respiratory tract</topic><topic>Toxicology</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Peigne, Vincent</creatorcontrib><creatorcontrib>Chaize, Marine</creatorcontrib><creatorcontrib>Falissard, Bruno</creatorcontrib><creatorcontrib>Kentish-Barnes, Nancy</creatorcontrib><creatorcontrib>Rusinova, Katerina</creatorcontrib><creatorcontrib>Megarbane, Bruno</creatorcontrib><creatorcontrib>Bele, Nicolas</creatorcontrib><creatorcontrib>Cariou, Alain</creatorcontrib><creatorcontrib>Fieux, Fabienne</creatorcontrib><creatorcontrib>Garrouste-Orgeas, Maite</creatorcontrib><creatorcontrib>Georges, Hugues</creatorcontrib><creatorcontrib>Jourdain, Merce</creatorcontrib><creatorcontrib>Kouatchet, Achille</creatorcontrib><creatorcontrib>Lautrette, Alexandre</creatorcontrib><creatorcontrib>Legriel, Stephane</creatorcontrib><creatorcontrib>Regnier, Bernard</creatorcontrib><creatorcontrib>Renault, Anne</creatorcontrib><creatorcontrib>Thirion, Marina</creatorcontrib><creatorcontrib>Timsit, Jean-Francois</creatorcontrib><creatorcontrib>Toledano, Dany</creatorcontrib><creatorcontrib>Chevret, Sylvie</creatorcontrib><creatorcontrib>Pochard, Frédéric</creatorcontrib><creatorcontrib>Schlemmer, Benoît</creatorcontrib><creatorcontrib>Azoulay, Elie</creatorcontrib><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>Hyper Article en Ligne (HAL)</collection><jtitle>Critical care medicine</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Peigne, Vincent</au><au>Chaize, Marine</au><au>Falissard, Bruno</au><au>Kentish-Barnes, Nancy</au><au>Rusinova, Katerina</au><au>Megarbane, Bruno</au><au>Bele, Nicolas</au><au>Cariou, Alain</au><au>Fieux, Fabienne</au><au>Garrouste-Orgeas, Maite</au><au>Georges, Hugues</au><au>Jourdain, Merce</au><au>Kouatchet, Achille</au><au>Lautrette, Alexandre</au><au>Legriel, Stephane</au><au>Regnier, Bernard</au><au>Renault, Anne</au><au>Thirion, Marina</au><au>Timsit, Jean-Francois</au><au>Toledano, Dany</au><au>Chevret, Sylvie</au><au>Pochard, Frédéric</au><au>Schlemmer, Benoît</au><au>Azoulay, Elie</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Important questions asked by family members of intensive care unit patients</atitle><jtitle>Critical care medicine</jtitle><addtitle>Crit Care Med</addtitle><date>2011-06</date><risdate>2011</risdate><volume>39</volume><issue>6</issue><spage>1365</spage><epage>1371</epage><pages>1365-1371</pages><issn>0090-3493</issn><eissn>1530-0293</eissn><coden>CCMDC7</coden><abstract>OBJECTIVES:Relatives often lack important information about intensive care unit patients. High-quality information is crucial to help relatives overcome the often considerable situational stress and to acquire the ability to participate in the decision-making process, most notably regarding the appropriate level of care. We aimed to develop a list of questions important for relatives of patients in the intensive care unit. DESIGN, SETTING, AND PARTICIPANTS:This was a multicenter study. Questions asked by relatives of intensive care unit patients were collected from five different sources (literature, panel of 28 intensive care unit nurses and physicians, 1-wk survey of nurses and 1-wk survey of physicians in 14 intensive care units, and in-depth interviews with 14 families). After a qualitative analysis (framework approach and thematic analysis), questions were rated by 22 relatives and 14 intensive care unit physicians, and the ratings were analyzed using principal component analysis and hierarchical clustering. RESULTS:The five sources produced 2,135 questions. Removal of duplicates and redundancies left 443 questions, which were distributed among nine predefined domains using a framework approach (“diagnosis,” “treatment,” “prognosis,” “comfort,” “interaction,” “communication,” “family,” “end of life,” and “postintensive care unit management”). Thematic analysis in each domain led to the identification of 46 themes, which were reworded as 46 different questions. Ratings by relatives and physicians showed that 21 of these questions were particularly important for relatives of intensive care unit patients. CONCLUSION:This study increases knowledge about the informational needs of relatives of intensive care unit patients. This list of questions may prove valuable for both relatives and intensive care unit physicians as a tool for improving communication in the intensive care unit.</abstract><cop>Hagerstown, MD</cop><pub>by the Society of Critical Care Medicine and Lippincott Williams &amp; Wilkins</pub><pmid>21358395</pmid><doi>10.1097/CCM.0b013e3182120b68</doi><tpages>7</tpages><orcidid>https://orcid.org/0000-0003-0699-8353</orcidid><orcidid>https://orcid.org/0000-0003-4545-7461</orcidid><orcidid>https://orcid.org/0000-0002-2522-2764</orcidid><orcidid>https://orcid.org/0000-0002-8162-1508</orcidid></addata></record>
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subjects Anesthesia. Intensive care medicine. Transfusions. Cell therapy and gene therapy
Biological and medical sciences
Cardiology and cardiovascular system
Clinical death. Palliative care. Organ gift and preservation
Communication
Critical Care
Decision Making
Emerging diseases
Family - psychology
Health Knowledge, Attitudes, Practice
Human health and pathology
Humans
Infectious diseases
Intensive care medicine
Life Sciences
Medical sciences
Needs Assessment
Professional-Family Relations
Pulmonology and respiratory tract
Toxicology
title Important questions asked by family members of intensive care unit patients
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