Important questions asked by family members of intensive care unit patients
OBJECTIVES:Relatives often lack important information about intensive care unit patients. High-quality information is crucial to help relatives overcome the often considerable situational stress and to acquire the ability to participate in the decision-making process, most notably regarding the appr...
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Veröffentlicht in: | Critical care medicine 2011-06, Vol.39 (6), p.1365-1371 |
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creator | Peigne, Vincent Chaize, Marine Falissard, Bruno Kentish-Barnes, Nancy Rusinova, Katerina Megarbane, Bruno Bele, Nicolas Cariou, Alain Fieux, Fabienne Garrouste-Orgeas, Maite Georges, Hugues Jourdain, Merce Kouatchet, Achille Lautrette, Alexandre Legriel, Stephane Regnier, Bernard Renault, Anne Thirion, Marina Timsit, Jean-Francois Toledano, Dany Chevret, Sylvie Pochard, Frédéric Schlemmer, Benoît Azoulay, Elie |
description | OBJECTIVES:Relatives often lack important information about intensive care unit patients. High-quality information is crucial to help relatives overcome the often considerable situational stress and to acquire the ability to participate in the decision-making process, most notably regarding the appropriate level of care. We aimed to develop a list of questions important for relatives of patients in the intensive care unit.
DESIGN, SETTING, AND PARTICIPANTS:This was a multicenter study. Questions asked by relatives of intensive care unit patients were collected from five different sources (literature, panel of 28 intensive care unit nurses and physicians, 1-wk survey of nurses and 1-wk survey of physicians in 14 intensive care units, and in-depth interviews with 14 families). After a qualitative analysis (framework approach and thematic analysis), questions were rated by 22 relatives and 14 intensive care unit physicians, and the ratings were analyzed using principal component analysis and hierarchical clustering.
RESULTS:The five sources produced 2,135 questions. Removal of duplicates and redundancies left 443 questions, which were distributed among nine predefined domains using a framework approach (“diagnosis,” “treatment,” “prognosis,” “comfort,” “interaction,” “communication,” “family,” “end of life,” and “postintensive care unit management”). Thematic analysis in each domain led to the identification of 46 themes, which were reworded as 46 different questions. Ratings by relatives and physicians showed that 21 of these questions were particularly important for relatives of intensive care unit patients.
CONCLUSION:This study increases knowledge about the informational needs of relatives of intensive care unit patients. This list of questions may prove valuable for both relatives and intensive care unit physicians as a tool for improving communication in the intensive care unit. |
doi_str_mv | 10.1097/CCM.0b013e3182120b68 |
format | Article |
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DESIGN, SETTING, AND PARTICIPANTS:This was a multicenter study. Questions asked by relatives of intensive care unit patients were collected from five different sources (literature, panel of 28 intensive care unit nurses and physicians, 1-wk survey of nurses and 1-wk survey of physicians in 14 intensive care units, and in-depth interviews with 14 families). After a qualitative analysis (framework approach and thematic analysis), questions were rated by 22 relatives and 14 intensive care unit physicians, and the ratings were analyzed using principal component analysis and hierarchical clustering.
RESULTS:The five sources produced 2,135 questions. Removal of duplicates and redundancies left 443 questions, which were distributed among nine predefined domains using a framework approach (“diagnosis,” “treatment,” “prognosis,” “comfort,” “interaction,” “communication,” “family,” “end of life,” and “postintensive care unit management”). Thematic analysis in each domain led to the identification of 46 themes, which were reworded as 46 different questions. Ratings by relatives and physicians showed that 21 of these questions were particularly important for relatives of intensive care unit patients.
CONCLUSION:This study increases knowledge about the informational needs of relatives of intensive care unit patients. This list of questions may prove valuable for both relatives and intensive care unit physicians as a tool for improving communication in the intensive care unit.</description><identifier>ISSN: 0090-3493</identifier><identifier>EISSN: 1530-0293</identifier><identifier>DOI: 10.1097/CCM.0b013e3182120b68</identifier><identifier>PMID: 21358395</identifier><identifier>CODEN: CCMDC7</identifier><language>eng</language><publisher>Hagerstown, MD: by the Society of Critical Care Medicine and Lippincott Williams & Wilkins</publisher><subject>Anesthesia. Intensive care medicine. Transfusions. Cell therapy and gene therapy ; Biological and medical sciences ; Cardiology and cardiovascular system ; Clinical death. Palliative care. Organ gift and preservation ; Communication ; Critical Care ; Decision Making ; Emerging diseases ; Family - psychology ; Health Knowledge, Attitudes, Practice ; Human health and pathology ; Humans ; Infectious diseases ; Intensive care medicine ; Life Sciences ; Medical sciences ; Needs Assessment ; Professional-Family Relations ; Pulmonology and respiratory tract ; Toxicology</subject><ispartof>Critical care medicine, 2011-06, Vol.39 (6), p.1365-1371</ispartof><rights>2011 by the Society of Critical Care Medicine and Lippincott Williams & Wilkins</rights><rights>2015 INIST-CNRS</rights><rights>Distributed under a Creative Commons Attribution 4.0 International License</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c4159-8e2e1802d4e0a2e464af241bf710d65066f09c5bf9a41fef801f19ba2180347f3</citedby><cites>FETCH-LOGICAL-c4159-8e2e1802d4e0a2e464af241bf710d65066f09c5bf9a41fef801f19ba2180347f3</cites><orcidid>0000-0003-0699-8353 ; 0000-0003-4545-7461 ; 0000-0002-2522-2764 ; 0000-0002-8162-1508</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>230,314,780,784,885,27924,27925</link.rule.ids><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&idt=24186822$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/21358395$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink><backlink>$$Uhttps://hal.science/hal-03878483$$DView record in HAL$$Hfree_for_read</backlink></links><search><creatorcontrib>Peigne, Vincent</creatorcontrib><creatorcontrib>Chaize, Marine</creatorcontrib><creatorcontrib>Falissard, Bruno</creatorcontrib><creatorcontrib>Kentish-Barnes, Nancy</creatorcontrib><creatorcontrib>Rusinova, Katerina</creatorcontrib><creatorcontrib>Megarbane, Bruno</creatorcontrib><creatorcontrib>Bele, Nicolas</creatorcontrib><creatorcontrib>Cariou, Alain</creatorcontrib><creatorcontrib>Fieux, Fabienne</creatorcontrib><creatorcontrib>Garrouste-Orgeas, Maite</creatorcontrib><creatorcontrib>Georges, Hugues</creatorcontrib><creatorcontrib>Jourdain, Merce</creatorcontrib><creatorcontrib>Kouatchet, Achille</creatorcontrib><creatorcontrib>Lautrette, Alexandre</creatorcontrib><creatorcontrib>Legriel, Stephane</creatorcontrib><creatorcontrib>Regnier, Bernard</creatorcontrib><creatorcontrib>Renault, Anne</creatorcontrib><creatorcontrib>Thirion, Marina</creatorcontrib><creatorcontrib>Timsit, Jean-Francois</creatorcontrib><creatorcontrib>Toledano, Dany</creatorcontrib><creatorcontrib>Chevret, Sylvie</creatorcontrib><creatorcontrib>Pochard, Frédéric</creatorcontrib><creatorcontrib>Schlemmer, Benoît</creatorcontrib><creatorcontrib>Azoulay, Elie</creatorcontrib><title>Important questions asked by family members of intensive care unit patients</title><title>Critical care medicine</title><addtitle>Crit Care Med</addtitle><description>OBJECTIVES:Relatives often lack important information about intensive care unit patients. High-quality information is crucial to help relatives overcome the often considerable situational stress and to acquire the ability to participate in the decision-making process, most notably regarding the appropriate level of care. We aimed to develop a list of questions important for relatives of patients in the intensive care unit.
DESIGN, SETTING, AND PARTICIPANTS:This was a multicenter study. Questions asked by relatives of intensive care unit patients were collected from five different sources (literature, panel of 28 intensive care unit nurses and physicians, 1-wk survey of nurses and 1-wk survey of physicians in 14 intensive care units, and in-depth interviews with 14 families). After a qualitative analysis (framework approach and thematic analysis), questions were rated by 22 relatives and 14 intensive care unit physicians, and the ratings were analyzed using principal component analysis and hierarchical clustering.
RESULTS:The five sources produced 2,135 questions. Removal of duplicates and redundancies left 443 questions, which were distributed among nine predefined domains using a framework approach (“diagnosis,” “treatment,” “prognosis,” “comfort,” “interaction,” “communication,” “family,” “end of life,” and “postintensive care unit management”). Thematic analysis in each domain led to the identification of 46 themes, which were reworded as 46 different questions. Ratings by relatives and physicians showed that 21 of these questions were particularly important for relatives of intensive care unit patients.
CONCLUSION:This study increases knowledge about the informational needs of relatives of intensive care unit patients. This list of questions may prove valuable for both relatives and intensive care unit physicians as a tool for improving communication in the intensive care unit.</description><subject>Anesthesia. Intensive care medicine. Transfusions. Cell therapy and gene therapy</subject><subject>Biological and medical sciences</subject><subject>Cardiology and cardiovascular system</subject><subject>Clinical death. Palliative care. Organ gift and preservation</subject><subject>Communication</subject><subject>Critical Care</subject><subject>Decision Making</subject><subject>Emerging diseases</subject><subject>Family - psychology</subject><subject>Health Knowledge, Attitudes, Practice</subject><subject>Human health and pathology</subject><subject>Humans</subject><subject>Infectious diseases</subject><subject>Intensive care medicine</subject><subject>Life Sciences</subject><subject>Medical sciences</subject><subject>Needs Assessment</subject><subject>Professional-Family Relations</subject><subject>Pulmonology and respiratory tract</subject><subject>Toxicology</subject><issn>0090-3493</issn><issn>1530-0293</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2011</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNpdkN9rFDEQx4Mo9qz-ByJ5EfFh60ySzSaP5ai2eOKLPofs3oSL3R9nstty_72pd7ZgIIQJn-8M82HsLcIFgm0-rdffLqAFlCTRCBTQavOMrbCWUIGw8jlbAViopLLyjL3K-RcAqrqRL9mZQFkbaesV-3oz7Kc0-3HmvxfKc5zGzH2-pS1vDzz4IfYHPtDQUsp8CjyOM4053hHvfCK-jHHmez9HGuf8mr0Ivs_05vSes5-fr36sr6vN9y8368tN1SmsbWVIEBoQW0XgBSmtfBAK29AgbHUNWgewXd0G6xUGCgYwoG29KCGpmiDP2cdj353v3T7FwaeDm3x015cb9_AH0jRGGXmHhf1wZPdp-rugG2LuqO_9SNOSnWm0qYsWWUh1JLs05ZwoPLZGcA_GXTHu_jdeYu9OA5Z2oO1j6J_iArw_AT53vg_Jj13MT5xCo40QT_Pvp34utm_75Z6S25Hv552DcqRQuhKACLpUVblo5R9Zu5gK</recordid><startdate>201106</startdate><enddate>201106</enddate><creator>Peigne, Vincent</creator><creator>Chaize, Marine</creator><creator>Falissard, Bruno</creator><creator>Kentish-Barnes, Nancy</creator><creator>Rusinova, Katerina</creator><creator>Megarbane, Bruno</creator><creator>Bele, Nicolas</creator><creator>Cariou, Alain</creator><creator>Fieux, Fabienne</creator><creator>Garrouste-Orgeas, Maite</creator><creator>Georges, Hugues</creator><creator>Jourdain, Merce</creator><creator>Kouatchet, Achille</creator><creator>Lautrette, Alexandre</creator><creator>Legriel, Stephane</creator><creator>Regnier, Bernard</creator><creator>Renault, Anne</creator><creator>Thirion, Marina</creator><creator>Timsit, Jean-Francois</creator><creator>Toledano, Dany</creator><creator>Chevret, Sylvie</creator><creator>Pochard, Frédéric</creator><creator>Schlemmer, Benoît</creator><creator>Azoulay, Elie</creator><general>by the Society of Critical Care Medicine and Lippincott Williams & Wilkins</general><general>Lippincott Williams & Wilkins</general><general>Lippincott, Williams & Wilkins</general><scope>IQODW</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><scope>1XC</scope><orcidid>https://orcid.org/0000-0003-0699-8353</orcidid><orcidid>https://orcid.org/0000-0003-4545-7461</orcidid><orcidid>https://orcid.org/0000-0002-2522-2764</orcidid><orcidid>https://orcid.org/0000-0002-8162-1508</orcidid></search><sort><creationdate>201106</creationdate><title>Important questions asked by family members of intensive care unit patients</title><author>Peigne, Vincent ; Chaize, Marine ; Falissard, Bruno ; Kentish-Barnes, Nancy ; Rusinova, Katerina ; Megarbane, Bruno ; Bele, Nicolas ; Cariou, Alain ; Fieux, Fabienne ; Garrouste-Orgeas, Maite ; Georges, Hugues ; Jourdain, Merce ; Kouatchet, Achille ; Lautrette, Alexandre ; Legriel, Stephane ; Regnier, Bernard ; Renault, Anne ; Thirion, Marina ; Timsit, Jean-Francois ; Toledano, Dany ; Chevret, Sylvie ; Pochard, Frédéric ; Schlemmer, Benoît ; Azoulay, Elie</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c4159-8e2e1802d4e0a2e464af241bf710d65066f09c5bf9a41fef801f19ba2180347f3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2011</creationdate><topic>Anesthesia. Intensive care medicine. Transfusions. Cell therapy and gene therapy</topic><topic>Biological and medical sciences</topic><topic>Cardiology and cardiovascular system</topic><topic>Clinical death. Palliative care. Organ gift and preservation</topic><topic>Communication</topic><topic>Critical Care</topic><topic>Decision Making</topic><topic>Emerging diseases</topic><topic>Family - psychology</topic><topic>Health Knowledge, Attitudes, Practice</topic><topic>Human health and pathology</topic><topic>Humans</topic><topic>Infectious diseases</topic><topic>Intensive care medicine</topic><topic>Life Sciences</topic><topic>Medical sciences</topic><topic>Needs Assessment</topic><topic>Professional-Family Relations</topic><topic>Pulmonology and respiratory tract</topic><topic>Toxicology</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Peigne, Vincent</creatorcontrib><creatorcontrib>Chaize, Marine</creatorcontrib><creatorcontrib>Falissard, Bruno</creatorcontrib><creatorcontrib>Kentish-Barnes, Nancy</creatorcontrib><creatorcontrib>Rusinova, Katerina</creatorcontrib><creatorcontrib>Megarbane, Bruno</creatorcontrib><creatorcontrib>Bele, Nicolas</creatorcontrib><creatorcontrib>Cariou, Alain</creatorcontrib><creatorcontrib>Fieux, Fabienne</creatorcontrib><creatorcontrib>Garrouste-Orgeas, Maite</creatorcontrib><creatorcontrib>Georges, Hugues</creatorcontrib><creatorcontrib>Jourdain, Merce</creatorcontrib><creatorcontrib>Kouatchet, Achille</creatorcontrib><creatorcontrib>Lautrette, Alexandre</creatorcontrib><creatorcontrib>Legriel, Stephane</creatorcontrib><creatorcontrib>Regnier, Bernard</creatorcontrib><creatorcontrib>Renault, Anne</creatorcontrib><creatorcontrib>Thirion, Marina</creatorcontrib><creatorcontrib>Timsit, Jean-Francois</creatorcontrib><creatorcontrib>Toledano, Dany</creatorcontrib><creatorcontrib>Chevret, Sylvie</creatorcontrib><creatorcontrib>Pochard, Frédéric</creatorcontrib><creatorcontrib>Schlemmer, Benoît</creatorcontrib><creatorcontrib>Azoulay, Elie</creatorcontrib><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>Hyper Article en Ligne (HAL)</collection><jtitle>Critical care medicine</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Peigne, Vincent</au><au>Chaize, Marine</au><au>Falissard, Bruno</au><au>Kentish-Barnes, Nancy</au><au>Rusinova, Katerina</au><au>Megarbane, Bruno</au><au>Bele, Nicolas</au><au>Cariou, Alain</au><au>Fieux, Fabienne</au><au>Garrouste-Orgeas, Maite</au><au>Georges, Hugues</au><au>Jourdain, Merce</au><au>Kouatchet, Achille</au><au>Lautrette, Alexandre</au><au>Legriel, Stephane</au><au>Regnier, Bernard</au><au>Renault, Anne</au><au>Thirion, Marina</au><au>Timsit, Jean-Francois</au><au>Toledano, Dany</au><au>Chevret, Sylvie</au><au>Pochard, Frédéric</au><au>Schlemmer, Benoît</au><au>Azoulay, Elie</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Important questions asked by family members of intensive care unit patients</atitle><jtitle>Critical care medicine</jtitle><addtitle>Crit Care Med</addtitle><date>2011-06</date><risdate>2011</risdate><volume>39</volume><issue>6</issue><spage>1365</spage><epage>1371</epage><pages>1365-1371</pages><issn>0090-3493</issn><eissn>1530-0293</eissn><coden>CCMDC7</coden><abstract>OBJECTIVES:Relatives often lack important information about intensive care unit patients. High-quality information is crucial to help relatives overcome the often considerable situational stress and to acquire the ability to participate in the decision-making process, most notably regarding the appropriate level of care. We aimed to develop a list of questions important for relatives of patients in the intensive care unit.
DESIGN, SETTING, AND PARTICIPANTS:This was a multicenter study. Questions asked by relatives of intensive care unit patients were collected from five different sources (literature, panel of 28 intensive care unit nurses and physicians, 1-wk survey of nurses and 1-wk survey of physicians in 14 intensive care units, and in-depth interviews with 14 families). After a qualitative analysis (framework approach and thematic analysis), questions were rated by 22 relatives and 14 intensive care unit physicians, and the ratings were analyzed using principal component analysis and hierarchical clustering.
RESULTS:The five sources produced 2,135 questions. Removal of duplicates and redundancies left 443 questions, which were distributed among nine predefined domains using a framework approach (“diagnosis,” “treatment,” “prognosis,” “comfort,” “interaction,” “communication,” “family,” “end of life,” and “postintensive care unit management”). Thematic analysis in each domain led to the identification of 46 themes, which were reworded as 46 different questions. Ratings by relatives and physicians showed that 21 of these questions were particularly important for relatives of intensive care unit patients.
CONCLUSION:This study increases knowledge about the informational needs of relatives of intensive care unit patients. This list of questions may prove valuable for both relatives and intensive care unit physicians as a tool for improving communication in the intensive care unit.</abstract><cop>Hagerstown, MD</cop><pub>by the Society of Critical Care Medicine and Lippincott Williams & Wilkins</pub><pmid>21358395</pmid><doi>10.1097/CCM.0b013e3182120b68</doi><tpages>7</tpages><orcidid>https://orcid.org/0000-0003-0699-8353</orcidid><orcidid>https://orcid.org/0000-0003-4545-7461</orcidid><orcidid>https://orcid.org/0000-0002-2522-2764</orcidid><orcidid>https://orcid.org/0000-0002-8162-1508</orcidid></addata></record> |
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subjects | Anesthesia. Intensive care medicine. Transfusions. Cell therapy and gene therapy Biological and medical sciences Cardiology and cardiovascular system Clinical death. Palliative care. Organ gift and preservation Communication Critical Care Decision Making Emerging diseases Family - psychology Health Knowledge, Attitudes, Practice Human health and pathology Humans Infectious diseases Intensive care medicine Life Sciences Medical sciences Needs Assessment Professional-Family Relations Pulmonology and respiratory tract Toxicology |
title | Important questions asked by family members of intensive care unit patients |
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