Construction of a Quality of Life Questionnaire for slowly progressive neuromuscular disease

Purpose To build a questionnaire to assess health-related quality of life (HRQL) in patients suffering from slowly progressive neuromuscular disease (NMD) using item response theory (IRT). Methods A pool of 64 items and a validated questionnaire (WHOQOL-BREF) were administered to 159 patients recrui...

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Veröffentlicht in:	Quality of life research 2015-11, Vol.24 (11), p.2615-2623
Hauptverfasser:	Dany, Antoine, Barbe, Coralie, Rapin, Amandine, Réveillère, Christian, Hardouin, Jean-Benoit, Morrone, Isabella, Wolak-Thierry, Aurore, Dramé, Moustapha, Calmus, Arnaud, Sacconi, Sabrina, Bassez, Guillaume, Tiffreau, Vincent, Richard, Isabelle, Gallais, Benjamin, Prigent, Hélène, Taiar, Redha, Jolly, Damien, Novella, Jean-Luc, Boyer, François Constant
Format:	Artikel
Sprache:	eng
Schlagworte:	Activities of daily living Adult Aged Classical test theory Cronbach's alpha Disease Disease Progression Female Health Status Hospitals Humanities and Social Sciences Humans INSTRUMENT DEVELOPMENT Item response theory Male Medicine Medicine & Public Health Middle Aged Neuromuscular diseases Neuromuscular Diseases - psychology Patients Principal components analysis Psychology Psychometrics Public Health Quality of life Quality of Life - psychology Quality of Life Research Quantitative psychology Questionnaires Self Concept Self image Sociology Statistical methods Surveys and Questionnaires
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