A multiperspective on the broad dissemination of research findings to past research participants and the community-at-large
Abstract Dissemination of research findings to past research participants and the community-at-large is a critical element to improving health outcomes, yet it is often overlooked by researchers. Few studies have explored how to provide study findings to the community, and no studies have investigat...
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Veröffentlicht in: | Translational behavioral medicine 2022-01, Vol.12 (1), p.15 |
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creator | Mayo-Gamble, Tilicia L Cunningham-Erves, Jennifer Kas-Osoka, Chioma Johnson, George W Frazier, Nicole Joosten, Yvonne |
description | Abstract
Dissemination of research findings to past research participants and the community-at-large is a critical element to improving health outcomes, yet it is often overlooked by researchers. Few studies have explored how to provide study findings to the community, and no studies have investigated how community members can be involved in this process. This study explored views on the broad dissemination of research findings to community members and the role of the community in the dissemination process. We conducted a comparative analysis from the perspective of researchers, community members, and program officers (POs) from national health research funding agencies. Semistructured interviews were conducted with community members (African American, N = 10; Latino, N = 10), academic researchers (N = 10), and POs (N = 5). Thematic analysis was utilized in which codes and themes were created. One cross-cutting theme was identified, Views on Disseminating Research Findings to Communities. There were three additional themes identified among community members, five among researchers, and four among POs. All groups perceived the value of dissemination to communities as meaningful and ethical. Groups differed in their perceptions of prioritization of dissemination audiences. This study highlighted consensus on the value of broad dissemination to the community-at-large and identified areas of insufficiency in the translational research continuum that could be expanded or improved to ensure targeted groups receive the intended benefits of positive research findings. The long-term benefit of disseminating findings to the community-at-large is increased acceptability of interventions and reduced mistrust in research and researchers. |
doi_str_mv | 10.1093/tbm/ibab095 |
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Dissemination of research findings to past research participants and the community-at-large is a critical element to improving health outcomes, yet it is often overlooked by researchers. Few studies have explored how to provide study findings to the community, and no studies have investigated how community members can be involved in this process. This study explored views on the broad dissemination of research findings to community members and the role of the community in the dissemination process. We conducted a comparative analysis from the perspective of researchers, community members, and program officers (POs) from national health research funding agencies. Semistructured interviews were conducted with community members (African American, N = 10; Latino, N = 10), academic researchers (N = 10), and POs (N = 5). Thematic analysis was utilized in which codes and themes were created. One cross-cutting theme was identified, Views on Disseminating Research Findings to Communities. There were three additional themes identified among community members, five among researchers, and four among POs. All groups perceived the value of dissemination to communities as meaningful and ethical. Groups differed in their perceptions of prioritization of dissemination audiences. This study highlighted consensus on the value of broad dissemination to the community-at-large and identified areas of insufficiency in the translational research continuum that could be expanded or improved to ensure targeted groups receive the intended benefits of positive research findings. The long-term benefit of disseminating findings to the community-at-large is increased acceptability of interventions and reduced mistrust in research and researchers.</description><identifier>ISSN: 1869-6716</identifier><identifier>EISSN: 1613-9860</identifier><identifier>DOI: 10.1093/tbm/ibab095</identifier><identifier>PMID: 34244808</identifier><language>eng</language><publisher>US: Oxford University Press</publisher><subject>African Americans ; Analysis ; Evidence-based medicine ; Humans ; Information behavior ; Medical research ; Medicine, Experimental ; Research Personnel ; Translational Research, Biomedical</subject><ispartof>Translational behavioral medicine, 2022-01, Vol.12 (1), p.15</ispartof><rights>Society of Behavioral Medicine 2021. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com. 2021</rights><rights>Society of Behavioral Medicine 2021. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.</rights><rights>COPYRIGHT 2022 Oxford University Press</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c387t-da7a86eb6ab81a9c89e5f00f5348dada0321d9f98996004ee57814c73807f3ef3</citedby><cites>FETCH-LOGICAL-c387t-da7a86eb6ab81a9c89e5f00f5348dada0321d9f98996004ee57814c73807f3ef3</cites><orcidid>0000-0002-9303-5266</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,780,784,1584,27924,27925</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/34244808$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Mayo-Gamble, Tilicia L</creatorcontrib><creatorcontrib>Cunningham-Erves, Jennifer</creatorcontrib><creatorcontrib>Kas-Osoka, Chioma</creatorcontrib><creatorcontrib>Johnson, George W</creatorcontrib><creatorcontrib>Frazier, Nicole</creatorcontrib><creatorcontrib>Joosten, Yvonne</creatorcontrib><title>A multiperspective on the broad dissemination of research findings to past research participants and the community-at-large</title><title>Translational behavioral medicine</title><addtitle>Transl Behav Med</addtitle><description>Abstract
Dissemination of research findings to past research participants and the community-at-large is a critical element to improving health outcomes, yet it is often overlooked by researchers. Few studies have explored how to provide study findings to the community, and no studies have investigated how community members can be involved in this process. This study explored views on the broad dissemination of research findings to community members and the role of the community in the dissemination process. We conducted a comparative analysis from the perspective of researchers, community members, and program officers (POs) from national health research funding agencies. Semistructured interviews were conducted with community members (African American, N = 10; Latino, N = 10), academic researchers (N = 10), and POs (N = 5). Thematic analysis was utilized in which codes and themes were created. One cross-cutting theme was identified, Views on Disseminating Research Findings to Communities. There were three additional themes identified among community members, five among researchers, and four among POs. All groups perceived the value of dissemination to communities as meaningful and ethical. Groups differed in their perceptions of prioritization of dissemination audiences. This study highlighted consensus on the value of broad dissemination to the community-at-large and identified areas of insufficiency in the translational research continuum that could be expanded or improved to ensure targeted groups receive the intended benefits of positive research findings. The long-term benefit of disseminating findings to the community-at-large is increased acceptability of interventions and reduced mistrust in research and researchers.</description><subject>African Americans</subject><subject>Analysis</subject><subject>Evidence-based medicine</subject><subject>Humans</subject><subject>Information behavior</subject><subject>Medical research</subject><subject>Medicine, Experimental</subject><subject>Research Personnel</subject><subject>Translational Research, Biomedical</subject><issn>1869-6716</issn><issn>1613-9860</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2022</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp9kc1rGzEQxUVJSEySU-5FUMilbCxZa610NCH9AEMuyXmZlUaOildaJLkQ-s9Hjt2UQunoMGL0ew9Gj5Brzm4502JehnHuBxiYXn4gMy65aLSS7KTeldSN7Lg8J1c5_2C1WrngHT8j56JdtK1iakZ-rei42xY_YcoTmuJ_Io2BlmekQ4pgqfU54-gDFF_n0dGEGSGZZ-p8sD5sMi2RTpDLn5cJUvHGTxBKphDsm52J47gLvrw0UJotpA1eklMH24xXx35Bnr7cP959a9YPX7_frdaNEaorjYUOlMRBwqA4aKM0Lh1jbilaZcECEwtutdNKa1l3RFx2iremE4p1TqATF-TTwXcDW-x9cLEkMKPPpl91bP9di1ZU6vYfVD22rm9iQOfr_C_B54PApJhzQtdPyY-QXnrO-n04fQ2nP4ZT6Y8HetoNI9p39ncUFbg5AHE3_dfpFTFjmao</recordid><startdate>20220101</startdate><enddate>20220101</enddate><creator>Mayo-Gamble, Tilicia L</creator><creator>Cunningham-Erves, Jennifer</creator><creator>Kas-Osoka, Chioma</creator><creator>Johnson, George W</creator><creator>Frazier, Nicole</creator><creator>Joosten, Yvonne</creator><general>Oxford University Press</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><orcidid>https://orcid.org/0000-0002-9303-5266</orcidid></search><sort><creationdate>20220101</creationdate><title>A multiperspective on the broad dissemination of research findings to past research participants and the community-at-large</title><author>Mayo-Gamble, Tilicia L ; Cunningham-Erves, Jennifer ; Kas-Osoka, Chioma ; Johnson, George W ; Frazier, Nicole ; Joosten, Yvonne</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c387t-da7a86eb6ab81a9c89e5f00f5348dada0321d9f98996004ee57814c73807f3ef3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2022</creationdate><topic>African Americans</topic><topic>Analysis</topic><topic>Evidence-based medicine</topic><topic>Humans</topic><topic>Information behavior</topic><topic>Medical research</topic><topic>Medicine, Experimental</topic><topic>Research Personnel</topic><topic>Translational Research, Biomedical</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Mayo-Gamble, Tilicia L</creatorcontrib><creatorcontrib>Cunningham-Erves, Jennifer</creatorcontrib><creatorcontrib>Kas-Osoka, Chioma</creatorcontrib><creatorcontrib>Johnson, George W</creatorcontrib><creatorcontrib>Frazier, Nicole</creatorcontrib><creatorcontrib>Joosten, Yvonne</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><jtitle>Translational behavioral medicine</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Mayo-Gamble, Tilicia L</au><au>Cunningham-Erves, Jennifer</au><au>Kas-Osoka, Chioma</au><au>Johnson, George W</au><au>Frazier, Nicole</au><au>Joosten, Yvonne</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>A multiperspective on the broad dissemination of research findings to past research participants and the community-at-large</atitle><jtitle>Translational behavioral medicine</jtitle><addtitle>Transl Behav Med</addtitle><date>2022-01-01</date><risdate>2022</risdate><volume>12</volume><issue>1</issue><spage>15</spage><pages>15-</pages><issn>1869-6716</issn><eissn>1613-9860</eissn><abstract>Abstract
Dissemination of research findings to past research participants and the community-at-large is a critical element to improving health outcomes, yet it is often overlooked by researchers. Few studies have explored how to provide study findings to the community, and no studies have investigated how community members can be involved in this process. This study explored views on the broad dissemination of research findings to community members and the role of the community in the dissemination process. We conducted a comparative analysis from the perspective of researchers, community members, and program officers (POs) from national health research funding agencies. Semistructured interviews were conducted with community members (African American, N = 10; Latino, N = 10), academic researchers (N = 10), and POs (N = 5). Thematic analysis was utilized in which codes and themes were created. One cross-cutting theme was identified, Views on Disseminating Research Findings to Communities. There were three additional themes identified among community members, five among researchers, and four among POs. All groups perceived the value of dissemination to communities as meaningful and ethical. Groups differed in their perceptions of prioritization of dissemination audiences. This study highlighted consensus on the value of broad dissemination to the community-at-large and identified areas of insufficiency in the translational research continuum that could be expanded or improved to ensure targeted groups receive the intended benefits of positive research findings. The long-term benefit of disseminating findings to the community-at-large is increased acceptability of interventions and reduced mistrust in research and researchers.</abstract><cop>US</cop><pub>Oxford University Press</pub><pmid>34244808</pmid><doi>10.1093/tbm/ibab095</doi><orcidid>https://orcid.org/0000-0002-9303-5266</orcidid></addata></record> |
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subjects | African Americans Analysis Evidence-based medicine Humans Information behavior Medical research Medicine, Experimental Research Personnel Translational Research, Biomedical |
title | A multiperspective on the broad dissemination of research findings to past research participants and the community-at-large |
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