Access to palliative care services by people with learning disabilities: is there equity?

This paper explores access to palliative care services by people with learning disabilities. It is based on a study of specialist palliative care professionals in London, involving 32 semi-structured interviews and 543 postal questionnaires. We focus on one aspect of the findings, related to the cur...

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Veröffentlicht in:Advances in mental health and intellectual disabilities 2008-06, Vol.2 (2), p.42-48
Hauptverfasser: Tuffrey-Wijne, Irene, Curfs, Leopold, Hollins, Sheila
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creator Tuffrey-Wijne, Irene
Curfs, Leopold
Hollins, Sheila
description This paper explores access to palliative care services by people with learning disabilities. It is based on a study of specialist palliative care professionals in London, involving 32 semi-structured interviews and 543 postal questionnaires. We focus on one aspect of the findings, related to the current use of specialist palliative care services by people with learning disabilities. The results indicate that such services are under-used by this group. We discuss possible reasons for low referral rates, including late diagnosis and lack of understanding among both learning disability services and palliative care services about each other's roles. We highlight the importance of collaboration, and the need for further staff training.
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2044-1290
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source Applied Social Sciences Index & Abstracts (ASSIA); Standard: Emerald eJournal Premier Collection
subjects Access to Health Care
Cancer
Disability
Equity
Equity of services
Evidence
Health Personnel
Illnesses
Interviews
Learning disabilities
Literature Reviews
Medical personnel
Medical screening
Mental health
Palliative care
Patients
Professional Personnel
Professionals
Questionnaires
Referral
Residential Care
Screening Tests
Semi Structured Interviews
Structured Interviews
Survey
title Access to palliative care services by people with learning disabilities: is there equity?
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