Additional file 2 of 10 years of CEMARA database in the AnDDI-Rares network: a unique resource facilitating research and epidemiology in developmental disorders in France

Additional file 2: Figure S1. Access to care and referrals. A: Map of the network: RCRD (round)/CERD (triangles) of the network, with inactive centers for entering patients in the CEMARA database in yellow. B: Number of patients with a developmental disorder referred to an AnDDI-Rares RCRD/CERD vari...

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Hauptverfasser: Messiaen, Claude, Racine, Caroline, Khatim, Ahlem, Soussand, Louis, Odent, Sylvie, Lacombe, Didier, Manouvrier, Sylvie, Edery, Patrick, Sigaudy, Sabine, Geneviève, David, Thauvin-Robinet, Christel, Pasquier, Laurent, Petit, Florence, Rossi, Massimiliano, Willems, Marjolaine, Attié-Bitach, Tania, Roux-Levy, Pierre-Henry, Demougeot, Laurent, Slama, Lilia Ben, Landais, Paul, Jannot, Anne-Sophie, Binquet, Christine, Sandrin, Arnaud, Verloes, Alain, Faivre, Laurence
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Zusammenfassung:Additional file 2: Figure S1. Access to care and referrals. A: Map of the network: RCRD (round)/CERD (triangles) of the network, with inactive centers for entering patients in the CEMARA database in yellow. B: Number of patients with a developmental disorder referred to an AnDDI-Rares RCRD/CERD varied according to the French departments. The map should be analyzed along with supplementary figure 1A. C: Distance necessary to access to an expert consultation in the total population, and for the four diseases of interest (Rubinstein-Taybi, Cornelia de Lange, 22q11 and Williams syndromes). A median of 25.1 km was found (Q1: 6.3 km – Q3: 64.2 km) for the total population
DOI:10.6084/m9.figshare.15110031