The European Reference Network for Rare Neurological Diseases

While rare diseases (RDs) are by definition of low prevalence, the total number of patients suffering from an RD is high, and the majority of them have neurologic manifestations, involving central, peripheral nerve, and muscle. In 2017, 24 European Reference Networks (ERNs), each focusing on a speci...

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Hauptverfasser:	Reinhard, Carola, Bachoud-Lévi, Anne-Catherine, Bäumer, Tobias, Bertini, Enrico, Brunelle, Alicia, Buizer, Annemieke I, Federico, Antonio, Gasser, Thomas, Groeschel, Samuel, Hermanns, Sanja, Klockgether, Thomas, Krägeloh-Mann, Ingeborg, Landwehrmeyer, G. Bernhard, Leber, Isabelle, Macaya Ruiz, Alfons, Mariotti, Caterina, Meissner, Wassilios G, Molnar, Maria Judit, Nonnekes, Jorik, Ortigoza Escobar, Juan Dario, Pérez-Dueñas, Belén, Renna Linton, Lori, Schöls, Ludger, Schuele, Rebecca, Tijssen, Marina A. J, Vandenberghe, Rik, Volkmer, Anna, Wolf, Nicole I, Graessner, Holm, Universitat Autònoma de Barcelona
Format:	Artikel
Sprache:	eng
Schlagworte:	European reference network Rare neurological diseases Standards of care Training and education Virtual healthcare
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