Impact of compounded drugs on the caregivers’ burden of home therapy management in pediatric palliative care: A descriptive study von Burlo, Francesca, Zanon, Davide, Passone, Eva, Toniutti, Maristella, Ponis, Giuliano, Barbi, Egidio, Taucar, Valentina, De Zen, Lucia

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Prevalence of sickle cell disease, hemoglobin S, and hemoglobin C among Haitian newborns von Rotz, Seth, Arty, Genevieve, Dall'Amico, Roberto, Zen, Lucia, Zanolli, Francesco, Bodas, Prasad

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Off-label drugs use in pediatric palliative care von De Zen, Lucia, Marchetti, Federico, Barbi, Egidio, Benini, Franca

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Pediatricians' awareness of galenic drugs for children with special needs: a regional survey von Burlo, Francesca, Zanon, Davide, Minghetti, Paola, Taucar, Valentina, Benericetti, Giulia, Bennati, Giada, Barbi, Egidio, De Zen, Lucia

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An estimation of the number of children requiring pediatric palliative care in Italy von Benini, Franca, Bellentani, Mariadonata, Reali, Laura, Lazzarin, Pierina, De Zen, Lucia, Pellegatta, Federico, Aprile, Pierangelo Lora, Scaccabarozzi, Gianlorenzo

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The ongoing impact of Covid-19 pandemic on children with medical complexity: the experience of an Italian pediatric palliative care network von Grigoletto, Veronica, Nardin, Bianca, Taucar, Valentina, Barbi, Egidio, De Zen, Lucia

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Safety and family satisfaction of a home-delivered chemotherapy program for children with cancer von De Zen, Lucia, Del Rizzo, Irene, Ronfani, Luca, Barbieri, Francesca, Rabusin, Marco, Dall'Amico, Roberto, Barbi, Egidio, Robazza, Margherita

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Timeline of diagnosed pain causes in children with severe neurological impairment von Peri, Francesca, Magni, Elena, Pigani, Filippo, Romoli, Raffaella, Vetrella, Simona, De Zen, Lucia, Sagredini, Raffaella, Barbi, Egidio, Cozzi, Giorgio

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A consensus conference report on defining the eligibility criteria for pediatric palliative care in Italy von Jankovic, Momcilo, De Zen, Lucia, Pellegatta, Federico, Lazzarin, Pierina, Bertolotti, Marina, Manfredini, Luca, Aprea, Antonino, Memo, Luigi, Del Vecchio, Antonio, Agostiniani, Rino, Benini, Franca

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Dexmedetomidine at Home for Intractable Dystonia and Insomnia in Children With Special Needs: A Case Series von De Zen, Lucia, Divisic, Antuan, Molinaro, Grazia, Solidoro, Sara, Barbi, Egidio

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International Standards for Pediatric Palliative Care: From IMPaCCT to GO-PPaCS von Benini, Franca, Papadatou, Danai, Bernadá, Mercedes, Craig, Finella, De Zen, Lucia, Downing, Julia, Drake, Ross, Friedrichsdorf, Stefan, Garros, Daniel, Giacomelli, Luca, Lacerda, Ana, Lazzarin, Pierina, Marceglia, Sara, Marston, Joan, Muckaden, Mary Ann, Papa, Simonetta, Parravicini, Elvira, Pellegatta, Federico, Wolfe, Joanne

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Home Intranasal Dexmedetomidine for Refractory Dystonia in Pediatric Palliative Care von De Zen, Lucia, Della Paolera, Sara, Del Rizzo, Irene, Taucar, Valentina, Skabar, Aldo, Barbi, Egidio

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Safety and Feasibility of Home Transfusions in Pediatric Palliative Care: A Preliminary Report von De Zen, Lucia, Del Rizzo, Irene, Vendrametto, Vittoria, Nicolardi, Francesca, Vaccher, Silvia, Dall'Amico, Roberto, Rabusin, Marco, Barbi, Egidio, Passone, Eva

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International consensus on sleep problems in pediatric palliative care: Paving the way von Mercante, Anna, Owens, Judith, Bruni, Oliviero, Nunes, Magda L., Gringras, Paul, Li, Shirley Xin, Papa, Simonetta, Kreicbergs, Ulrika, Wolfe, Joanne, Zernikow, Boris, Lacerda, Ana, Benini, Franca, Li, Albert, Wolfson, Amy R., Marinetto, Anna, Santini, Anna, Zanin, Anna, Kuhn, Brett R., Angelhoff, Charlotte, Santos, Cristiane Fumo dos, Goh, Daniel Y.T., Verrillo, Elisabetta, Zhou, Eric S., Ferreira, Esther Angélica Luiz, Bergstraesser, Eva, Pizza, Fabio, Nilsson, Frans, Plazzi, Giuseppe, Wang, Guanghai, Traslaviña, Guillermo Andrey Ariza, Moreira, Gustavo Antonio, Siden, Hal, Hauch, Holger, Huijer, Huda Abu-Saad, Catalano, Igor, Narang, Indra, Avagnina, Irene, Lopez, Jaime Gutierrez Del Alamo, Wille, Joakim, Mindell, Jodi, Bogetz, Jori, Downing, Julia, Hauer, Julie, Streuli, Jürg, Baker, Justin, Spruyt, Karen, Chan, Kate Ching Ching, Soster, Leticia Azevedo, Oliveira, Lia, Ragsdale, Lindsay, Nobili, Lino, Matlen, Lisa, Nosetti, Luana, De Zen, Lucia, Strambi, Luigi Ferini, Stenmarker, Margaretha, Lopes, Maria Cecilia, Blankenburg, Markus, Rios, Marta, Bernadá, Mercedes, Farquhar, Michael, Frühwald, Michael, Gradisar, Michael, Simakajornboon, Narong, Lazzarin, Pierina, Chong, Poh-Heng, Ferri, Raffaele, Martino-Alba, Ricardo, Findling, Robert L., Ferreira, Rosário, Bin-Hasan, Saadoun, Kudchadkar, Sapna R., Mercadante, Sebastiano, Amarri, Sergio, Keenan, Sharon, Noce, Silvia, de Oliveira Iglesias, Simone Brasil, Fagondes, Simone, Suh, Sooyeon, Sheldon, Stephen H., Sejersen, Thomas, Ceranoglu, Tolga Atilla, Crabtree, Valerie, Castronovo, Vincenza

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Home Use of Intranasal Dexmedetomidine in a Child With An Intractable Sleep Disorder von De Zen, Lucia, Del Rizzo, Irene, Robazza, Margherita, Barbieri, Francesca, Campagna, Marta, Vaccher, Silvia, Barbi, Egidio, Dall'Amico, Roberto

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The specialized pediatric palliative care service in Italy: how is it working? Results of the nationwide PalliPed study von Benini, Franca, Mercante, Anna, Di Nunzio, Sara, Papa, Simonetta

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Barriers to the development of pediatric palliative care in Italy von Benini, Franca, Orzalesi, Marcello, de Santi, Anna, Congedi, Sabrina, Lazzarin, Pierina, Pellegatta, Federico, De Zen, Lucia, Spizzichino, Marco, Alleva, Enrico

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Prevalence of Sickle Cell Disease, Hemoglobin S, and Hemoglobin C Among Haitian Newborns: Feasibility of Newborn Screening for Hemoglobinopathies in Haiti von Arty, Genevieve, Seth, Rotz, Bodas, Prasad, De Zen, Lucia, Zanolli, Francesco Angelo, Dall'Amico, Roberto

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Lessons learned from the H1N1 pandemic: The need to improve systematic vaccination in Sickle Cell Disease children. A multi center survey in Italy von Colombatti, Raffaella, Perrotta, Silverio, Masera, Nicoletta, Palazzi, Giovanni, Notarangelo, Lucia Dora, Pusiol, Anna, Bonetto, Elisa, De Zen, Lucia, Nocerino, Agostino, Samperi, Piera, Russo-Mancuso, Giovanna, Sainati, Laura

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New methodologic approaches for immunophenotyping acute leukemias von Basso, G, Buldini, B, De Zen, L, Orfao, A

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