Erdheim-Chester Disease: Investigating the Correlation between Targeted Treatment Therapy and Disease Outcomes von Wilcox, Sabrina R, Reynolds, Samuel B, Ahmed, Asra Z

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Abstract 4537: Erdheim Chester disease: A retrospective study characterizing the molecular and pathologic footprints with clinical presentation and comparative outcomes in the pres... von Wilcox, Sabrina R., Reynolds, Samuel B., Girard, Jennifer, Ahmed, Asra

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Abstract 4536: Investigating the correlation between molecular diagnostics, targeted therapies and treatment outcomes in Rosai Dorfman disease: a single-institution experience von Reynolds, Samuel B., Wilcox, Sabrina R., Talpaz, Moshe, Ahmed, Asra Z.

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A longitudinal study of CMT1A using Rasch analysis based CMT neuropathy and examination scores von Fridman, Vera, Sillau, Stefan, Acsadi, Gyula, Bacon, Chelsea, Dooley, Kimberly, Burns, Joshua, Day, John, Feely, Shawna, Finkel, Richard S., Grider, Tiffany, Gutmann, Laurie, Herrmann, David N., Kirk, Callyn A., Knause, Sarrah A., Laurá, Matilde, Lewis, Richard A., Li, Jun, Lloyd, Thomas E., Moroni, Isabella, Muntoni, Francesco, Pagliano, Emanuela, Pisciotta, Chiara, Piscosquito, Giuseppe, Ramchandren, Sindhu, Saporta, Mario, Sadjadi, Reza, Shy, Rosemary R., Siskind, Carly E., Sumner, Charlotte J., Walk, David, Wilcox, Janel, Yum, Sabrina W., Züchner, Stephan, Scherer, Steven S., Pareyson, Davide, Reilly, Mary M., Shy, Michael E.

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Validity, Reliability, and Differential Item Functioning of English and French Versions of the 10-Item Connor-Davidson Resilience Scale in Systemic Sclerosis: A Scleroderma Patient... von Neyer, Marieke A, Henry, Richard S, Carrier, Marie-Eve, Kwakkenbos, Linda, Wojeck, Robyn K, Gietzen, Amy, Gottesman, Karen, Guillot, Geneviève, Lawrie-Jones, Amanda, Mayes, Maureen D, Mouthon, Luc, Nielson, Warren R, Richard, Michelle, Worron-Sauvé, Maureen, Harel, Daphna, Malcarne, Vanessa L, Bartlett, Susan J, Thombs, Brett D

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Cardiorespiratory and sensory responses to exercise in adults with mild cystic fibrosis von Quon, Bradley S, Wilkie, Sabrina S, Molgat-Seon, Yannick, Schaeffer, Michele R, Ramsook, Andrew H, Wilcox, Pearce G, Guenette, Jordan A

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Differential Item Functioning on the Cochin Hand Function Scale among People with Systemic Sclerosis by Language, Sex, and Disease Subtype: a Scleroderma Patient-centered Intervent... von Xu, Mingyao, Harel, Daphna, Carrier, Marie-Eve, Kwakkenbos, Linda, Bartlett, Susan J, Gottesman, Karen, Guillot, Geneviève, Hummers, Laura, Malcarne, Vanessa L, Richard, Michelle, Thombs, Brett D

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Qualitative dimensions of exertional dyspnea in adults with cystic fibrosis von Quon, Bradley S, Wilkie, Sabrina S, Ramsook, Andrew H, Schaeffer, Michele R, Puyat, Joseph H, Wilcox, Pearce G, Guenette, Jordan A

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Changes in mental health symptoms from pre-COVID-19 to COVID-19 among participants with systemic sclerosis from four countries: A Scleroderma Patient-centered Intervention Network... von Thombs, Brett D., Kwakkenbos, Linda, Henry, Richard S., Carrier, Marie-Eve, Patten, Scott, Harb, Sami, Bourgeault, Angelica, Tao, Lydia, Bartlett, Susan J., Mouthon, Luc, Varga, John, Benedetti, Andrea, Fortuné, Catherine, Gietzen, Amy, Guillot, Geneviève, Lewis, Nancy, Richard, Michelle, Sauvé, Maureen, Welling, Joep, Fligelstone, Kim, Gottesman, Karen, Leite, Catarina, Pérez, Elisabet, Baron, Murray, Malcarne, Vanessa, Mayes, Maureen D., Nielson, Warren R., Riggs, Robert, Assassi, Shervin, Ells, Carolyn, van den Ende, Cornelia, Frech, Tracy, Harel, Daphna, Hinchcliff, Monique, Hudson, Marie, Johnson, Sindhu R., Larche, Maggie, Nguyen, Christelle, Pope, Janet, Rannou, François, Reyna, Tatiana Sofia Rodriguez, Schouffoer, Anne A., Suarez-Almazor, Maria E., Agard, Christian, Albert, Alexandra, Bernstein, Elana J., Berthier, Sabine, Bissonnette, Lyne, Bruns, Alessandra, Carreira, Patricia, Chaigne, Benjamin, Chung, Lorinda, Correia, Chase, Denton, Christopher, Dunne, James V., Dunogue, Bertrand, Farge-Bancel, Dominique, Fortin, Paul R., Gordon, Jessica, Granel-Rey, Brigitte, Hatron, Pierre-Yves, Herrick, Ariane L., Hoa, Sabrina, Jones, Niall, Fernandes, Artur Jose de B., Kafaja, Suzanne, Khalidi, Nader, Launay, David, Manning, Joanne, Marie, Isabelle, Martin, Maria, Mekinian, Arsene, Melchor, Sheila, Nikpour, Mandana, Olagne, Louis, Proudman, Susanna, Régent, Alexis, Rivière, Sébastien, Robinson, David, Rodriguez, Esther, Roux, Sophie, Sobanski, Vincent, Steen, Virginia, Sutton, Evelyn, Thorne, Carter, Wilcox, Pearce, Ayala, Mara Cañedo, Carboni-Jiménez, Andrea, Gagarine, Maria, Nordlund, Julia, Østbø, Nora, Rice, Danielle B., Turner, Kimberly A., Culos-Reed, Nicole, Dyas, Laura, El-Baalbaki, Ghassan, Hebblethwaite, Shannon, Bustamante, Laura, Duchek, Delaney, Ellis, Kelsey

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Ixazomib-Rituximab in Untreated Indolent B-NHL: An Effective, Very Low Toxicity Regimen von Graf, Solomon A., Lynch, Ryan C., Gooley, Ted A, Ujjani, Chaitra S., Wilcox, Peter, Wilcox, Sabrina, Coffey, David G., Cowan, Andrew J., Smith, Stephen D., Shadman, Mazyar, Warren, Edus H., Libby, Edward, Godwin, Colin D., Cassaday, Ryan D., Fromm, Jonathan R., Gopal, Ajay K.

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Moderators of Loneliness Trajectories in People with Systemic Sclerosis During the COVID-19 Pandemic: A SPIN COVID-19 Cohort Longitudinal Study von Rapoport, Chelsea S., Choi, Alyssa K., Kwakkenbos, Linda, Carrier, Marie-Eve, Henry, Richard S., Levis, Brooke, Bartlett, Susan J., Gietzen, Amy, Gottesman, Karen, Guillot, Geneviève, Lawrie-Jones, Amanda, Mayes, Maureen D., Mouthon, Luc, Richard, Michelle, Worron-Sauvé, Maureen, Benedetti, Andrea, Roesch, Scott C., Thombs, Brett D., Malcarne, Vanessa L.

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Randomized controlled trial of an internet-based self-guided hand exercise program to improve hand function in people with systemic sclerosis: the Scleroderma Patient-centered Inte... von Kwakkenbos, Linda, Carrier, Marie-Eve, Welling, Joep, Levis, Brooke, Levis, Alexander W, Sauve, Maureen, Turner, Kimberly A, Tao, Lydia, Aguila, Kylene, Carboni-Jiménez, Andrea, Cañedo-Ayala, Mara, Harb, Sami, van den Ende, Cornelia, Hudson, Marie, van Breda, Ward, Nguyen, Christelle, Boutron, Isabelle, Rannou, François, Thombs, Brett D, Mouthon, Luc

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Effect of inhaled anaesthetics on cognitive and psychiatric outcomes in critically ill adults: a systematic review and meta-analysis von Cuninghame, Sean, Jerath, Angela, Gorsky, Kevin, Sivajohan, Asaanth, Francoeur, Conall, Withington, Davinia, Burry, Lisa, Cuthbertson, Brian H., Orser, Beverley A., Martin, Claudio, Owen, Adrian M., Slessarev, Marat, Chapman, Martin, Scales, Damon, Nardi, Julie, Linseman, Beth, Lau, Phil, Yakubov, Boris, Carrier, François M., Charbonney, Emmanuel, Chassé, Michaël, Girard, Martin, Halwagi, Antoine, Plourde, Guillaume, Wang, Han T., Lafrance, Dominique, Corsilli, Danielle, Sokoloff, Catalina, D'Aragon, Frédérick, Tissot-Therrien, Maxime, Lamontagne, François, Bérard, Dominique, Cavayas, Yiorgos A., Albert, Martin, Bernard, Francis, Serri, Karim, Williamson, David, Williams, Virginie, Barrios, Patricia M., De Franca, Sabrina A., Couture, Etienne J., Côté, Adreanne, Simon, Mathieu, Lépine, Pierre-Alexis, Gleeton, Dave, Basmaji, John, Slessarev, Marat, Hegazy, Ahmed, Bentall, Tracey, Campbell, Eileen, Stephens, Michelle, Winterburn, Tim, Hatzakorzian, Roupen, Khwaja, Kosar, Goldberg, Peter, Shahin, Jason, Grushka, Jeremy R., Hooper, Jonathan, Microys, Sherissa, Meggison, Hilary, Leilipovitz, David, Haines, Jessica, Watpool, Irene, Porteous, Rebecca, Dunster, Stephanie, Bourbonnais, Sylvie, Goligher, Ewan, Del Sorbo, Lorenzo, Ferguson, Niall, Graham, Philip, Long, Michael, Yan, Tina, Morris, Denise, Kobylecky, Maria, Abdelhady, Hesham, Romagnuolo, Tina, Randall, Ian, Wilcox, Elizabeth, Jacka, Michael, Rewa, Oleksa, Lau, Vincent, Bagshaw, Sean, Baig, Nadia

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Factors associated with fears due to COVID-19: A Scleroderma Patient-centered Intervention Network (SPIN) COVID-19 cohort study von Wu, Yin, Kwakkenbos, Linda, Henry, Richard S., Carrier, Marie-Eve, Gagarine, Maria, Harb, Sami, Bourgeault, Angelica, Tao, Lydia, Negeri, Zelalem, Patten, Scott, Bartlett, Susan J., Mouthon, Luc, Varga, John, Benedetti, Andrea, Thombs, Brett D., Gietzen, Amy, Guillot, Geneviève, Lewis, Nancy, Richard, Michelle, Sauvé, Maureen, Welling, Joep, Fligelstone, Kim, Gottesman, Karen, Leite, Catarina, Pérez, Elisabet, Baron, Murray, Malcarne, Vanessa, Mayes, Maureen D., Nielson, Warren R., Riggs, Robert, Assassi, Shervin, Ells, Carolyn, van den Ende, Cornelia, Frech, Tracy, Harel, Daphna, Hinchcliff, Monique, Hudson, Marie, Johnson, Sindhu R., Larche, Maggie, Nguyen, Christelle, Pope, Janet, Rannou, François, Reyna, Tatiana Sofia Rodriguez, Schouffoer, Anne A., Suarez-Almazor, Maria E., Agard, Christian, Albert, Alexandra, Bernstein, Elana J., Berthier, Sabine, Bruns, Alessandra, Carreira, Patricia, Chaigne, Benjamin, Chung, Lorinda, Correia, Chase, Denton, Christopher, Domsic, Robyn, Dunne, James V., Dunogue, Bertrand, Farge-Bancel, Dominique, Fortin, Paul R., Gordon, Jessica, Granel-Rey, Brigitte, Hatron, Pierre-Yves, Herrick, Ariane L., Hoa, Sabrina, Jones, Niall, Fernandes, Artur Jose de B., Kafaja, Suzanne, Khalidi, Nader, Launay, David, Manning, Joanne, Marie, Isabelle, Martin, Maria, Mekinian, Arsene, Melchor, Sheila, Nikpour, Mandana, Olagne, Louis, Proudman, Susanna, Régent, Alexis, Rivière, Sébastien, Robinson, David, Rodriguez, Esther, Roux, Sophie, Sobanski, Vincent, Steen, Virginia, Sutton, Evelyn, Thorne, Carter, Wilcox, Pearce, Ayala, Mara Cañedo, Carboni-Jiménez, Andrea, Gagarine, Maria, Nordlund, Julia, Østbø, Nora, Rice, Danielle B., Turner, Kimberly A., Culos-Reed, Nicole, Dyas, Laura, Bustamante, Laura, Duchek, Delaney, Ellis, Kelsey

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Multicenter Diagnostic Evaluation of a Novel Coronavirus Antigen Lateral Flow Test among Symptomatic Individuals in Brazil and the United Kingdom von Faffe, Debora S, Byrne, Rachel L, Body, Richard, Castiñeiras, Terezinha Marta P, Castiñeiras, Anna P, Finch, Lorna S, Kontogianni, Konstantina, Bengey, Daisy, Galliez, Rafael Mello, Ferreira, Jr, Orlando C, Mariani, Diana, da Silva, Bianca Ortiz, Ribeiro, Sabrina Santana, de Vos, Margaretha, Escadafal, Camille, Adams, Emily R, Tanuri, Amilcar, Cubas Atienzar, Ana I

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Physiological mechanisms of dyspnea relief following ivacaftor in cystic fibrosis: A case report von Quon, Bradley S, Schaeffer, Michele R, Molgat-Seon, Yannick, Wilkie, Sabrina S, Wilcox, Pearce G, Guenette, Jordan A

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Patterns of patient-reported symptoms and association with sociodemographic and systemic sclerosis disease characteristics: a scleroderma Patient-centered Intervention Network (SPI... von Wojeck, Robyn K., Knisely, Mitchell R., Bailey, Donald E., Somers, Tamara J., Kwakkenbos, Linda, Carrier, Marie-Eve, Nielson, Warren R., Bartlett, Susan J., Malcarne, Vanessa L., Hudson, Marie, Levis, Brooke, Benedetti, Andrea, Mouthon, Luc, Thombs, Brett D., Silva, Susan G., Adams, Claire E., Henry, Richard S., Fortuné, Catherine, Gottesman, Karen, Guillot, Geneviève, Hummers, Laura K., Lawrie-Jones, Amanda, Mayes, Maureen D., Richard, Michelle, Sauvé, Maureen, Assassi, Shervin, El-Baalbaki, Ghassan, Fligelstone, Kim, Frech, Tracy, Gietzen, Amy, Harel, Daphna, Hinchcliff, Monique, Johnson, Sindhu R., Larche, Maggie, Leite, Catarina, Nguyen, Christelle, Nielsen, Karen, Pope, Janet, Rodriguez-Reyna, Tatiana Sofia, Schouffoer, Anne A., Suarez-Almazor, Maria E., Agard, Christian, Abdallah, Nassim Ait, André, Marc, Bernstein, Elana J., Bruns, Alessandra, Carreira, Patricia, Casadevall, Marion, Chaigne, Benjamin, Crichi, Benjamin, Denton, Christopher, Dunne, James V., Dunogue, Bertrand, Fare, Regina, Farge-Bancel, Dominique, Fortin, Paul R., Granel-Rey, Brigitte, Guffroy, Aurélien, Gyger, Genevieve, Hachulla, Eric, Hoa, Sabrina, Ikic, Alena, Kafaja, Suzanne, Khalidi, Nader, Lakin, Kimberly, Lambert, Marc, Launay, David, Lee, Yvonne C., Maillard, Hélène, Maltez, Nancy, Manning, Joanne, Marie, Isabelle, Lopez, Maria Martin, Masetto, Ariel, Maurier, François, Mekinian, Arsene, Díaz, Sheila Melchor, Nikpour, Mandana, Poindron, Vincent, Proudman, Susanna, Régent, Alexis, Rivière, Sébastien, Robinson, David, Almazar, Esther Rodríguez, Roux, Sophie, Smets, Perrine, Sobanski, Vincent, Spiera, Robert, Steen, Virginia, Sutton, Evelyn, Thorne, Carter, Wilcox, Pearce, Ayala, Mara Cañedo, Cook, Vanessa, Hu, Sophie, Matthews, Bianca, Nassar, Elsa-Lynn, Neyer, Marieke Alexandra, Nordlund, Julia, Provencher, Sabrina

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The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized controlled feasibility trial... von Nordlund, Julia, Henry, Richard S., Kwakkenbos, Linda, Carrier, Marie-Eve, Levis, Brooke, Nielson, Warren R., Bartlett, Susan J., Dyas, Laura, Tao, Lydia, Fedoruk, Claire, Nielsen, Karen, Hudson, Marie, Pope, Janet, Frech, Tracy, Gholizadeh, Shadi, Johnson, Sindhu R., Piotrowski, Pamela, Jewett, Lisa R., Gordon, Jessica, Chung, Lorinda, Bilsker, Dan, Levis, Alexander W., Turner, Kimberly A., Cumin, Julie, Welling, Joep, Fortune, Catherine, Leite, Catarina, Gottesman, Karen, Sauve, Maureen, Rodriguez-Reyna, Tatiana Sofia, Larche, Maggie, van Breda, Ward, Suarez-Almazor, Maria E., Wurz, Amanda, Culos-Reed, Nicole, Malcarne, Vanessa L., Mayes, Maureen D., Boutron, Isabelle, Mouthon, Luc, Benedetti, Andrea, Thombs, Brett D.

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Pain levels and associated factors in the Scleroderma Patient-centered Intervention Network (SPIN) cohort: a multicentre cross-sectional study von Lee, Yvonne C, Fox, Rina S, Kwakkenbos, Linda, Levis, Brooke, Carrier, Marie-Eve, Welling, Joep, Sauvé, Maureen, Mouthon, Luc, Benedetti, Andrea, Bartlett, Susan J, Varga, John, Thombs, Brett D, Henry, Richard S., Gottesman, Karen, Hudson, Marie, Hummers, Laura K., Malcarne, Vanessa L., Mayes, Maureen D., Nielson, Warren R., Riggs, Robert, Assassi, Shervin, El-Baalbaki, Ghassan, Ells, Carolyn, Fligelstone, Kim, Fortuné, Catherine, Frech, Tracy, Gietzen, Amy, Guillot, Geneviève, Harel, Daphna, Hinchcliff, Monique, Johnson, Sindhu R., Larche, Maggie, Leite, Catarina, Nguyen, Christelle, Nielsen, Karen, Pope, Janet, Rannou, François, Richard, Michelle, Rodriguez-Reyna, Tatiana Sofia, Suarez-Almazor, Maria E., Agard, Christian, Ait Abdallah, Nassim, Albert, Alexandra, André, Marc, Bernstein, Elana J., Berthier, Sabine, Bruns, Alessandra, Carreira, Patricia, Casadevall, Marion, Chaigne, Benjamin, Correia, Chase, Crichi, Benjamin, Denton, Christopher, Domsic, Robyn, Dunne, James V., Dunogue, Bertrand, Fare, Regina, Farge-Bancel, Dominique, Fortin, Paul R., Gordon, Jessica, Gyger, Genevieve, Hachulla, Eric, Herrick, Ariane L, Hoa, Sabrina, Jones, Niall, Kafaja, Suzanne, Lambert, Marc, Launay, David, Maillard, Hélène, Maltez, Nancy, Manning, Joanne, Marie, Isabelle, Martin, Maria, Masetto, Ariel, Maurier, François, Mekinian, Arsene, Melchor, Sheila, Nikpour, Mandana, Olagne, Louis, Poindron, Vincent, Proudman, Susanna, Régent, Alexis, Rivière, Sébastien, Robinson, David, Rodriguez, Esther, Roux, Sophie, Smets, Perrine, Sobanski, Vincent, Spiera, Robert, Steen, Virginia, Sutton, Evelyn, Thorne, Carter, Wilcox, Pearce, Bourgeault, Angelica, Cañedo Ayala, Mara, Carboni Jiménez, Andrea, Discepola, Marie-Nicole, Gagarine, Maria, Nordlund, Julia, Østbø, Nora

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Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program von Kwakkenbos, Linda, Østbø, Nora, Carrier, Marie-Eve, Nielson, Warren R, Fedoruk, Claire, Levis, Brooke, Henry, Richard S, Pope, Janet, Frech, Tracy, Gholizadeh, Shadi, Johnson, Sindhu R, Piotrowski, Pamela, Jewett, Lisa R, Gordon, Jessica, Chung, Lorinda, Bilsker, Dan, Tao, Lydia, Turner, Kimberly A, Cumin, Julie, Welling, Joep, Fortuné, Catherine, Leite, Catarina, Gottesman, Karen, Sauvé, Maureen, Reyna, Tatiana Sofia Rodriguez, Hudson, Marie, Larche, Maggie, van Breda, Ward, Suarez-Almazor, Maria E, Bartlett, Susan J, Malcarne, Vanessa L, Mayes, Maureen D, Boutron, Isabelle, Mouthon, Luc, Benedetti, Andrea, Thombs, Brett D

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