Therapeutic Touch Is Not Therapeutic for Procedural Pain in Very Preterm Neonates: A Randomized Trial von Johnston, Celeste, Campbell-Yeo, Marsha, Rich, Bonnie, Whitley, Julie, Filion, Francoise, Cogan, Jennifer, Walker, Claire-Dominique

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Impact of Patient Navigation on Timely Cancer Care: The Patient Navigation Research Program von FREUND, Karen M, BATTAGLIA, Tracy A, MURRAY, David M, PATIERNO, Steven R, RAICH, Peter C, ROETZHEIM, Richard G, SIMON, Melissa, SNYDER, Frederick R, WARREN-MEARS, Victoria, WHITLEY, Elizabeth M, WINTERS, Paul, YOUNG, Gregory S, CALHOUN, Elizabeth, PASKETT, Electra D, DARNELL, Julie S, DUDLEY, Donald J, FISCELLA, Kevin, HARE, Martha L, LAVERDA, Nancy, LEE, Ji-Hyun, LEVINE, Paul

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Ability change across multiple domains in mucopolysaccharidosis (Sanfilippo syndrome) type IIIA von Shapiro, Elsa G., Eisengart, Julie B., Whiteman, David, Whitley, Chester B.

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Beneath the floor: re-analysis of neurodevelopmental outcomes in untreated Hurler syndrome von Shapiro, Elsa G, Whitley, Chester B, Eisengart, Julie B

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Enzyme Replacement is Associated with Better Cognitive Outcomes after Transplant in Hurler Syndrome von Eisengart, Julie B., PhD, Rudser, Kyle D., PhD, Tolar, Jakub, MD, PhD, Orchard, Paul J., MD, Kivisto, Teresa, RN, Ziegler, Richard S., PhD, Whitley, Chester B., PhD, MD, Shapiro, Elsa G., PhD

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Open versus Endovascular Repair of Abdominal Aortic Aneurysm von Lederle, Frank A, Kyriakides, Tassos C, Stroupe, Kevin T, Freischlag, Julie A, Padberg, Frank T, Matsumura, Jon S, Huo, Zhiping, Johnson, Gary R

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Noncoding Microdeletion in Mouse Hgf Disrupts Neural Crest Migration into the Stria Vascularis, Reduces the Endocochlear Potential, and Suggests the Neuropathology for Human Nonsyn... von Morell, Robert J, Olszewski, Rafal, Tona, Risa, Leitess, Samuel, Wafa, Talah T, Taukulis, Ian, Schultz, Julie M, Thomason, Elizabeth J, Richards, Keri, Whitley, Brittany N, Hill, Connor, Saunders, Thomas, Starost, Matthew F, Fitzgerald, Tracy, Wilson, Elizabeth, Ohyama, Takahiro, Friedman, Thomas B, Hoa, Michael

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Long-Term Comparison of Endovascular and Open Repair of Abdominal Aortic Aneurysm von Lederle, Frank A, Freischlag, Julie A, Kyriakides, Tassos C, Matsumura, Jon S, Padberg, Frank T, Kohler, Ted R, Kougias, Panagiotis, Jean-Claude, Jessie M, Cikrit, Dolores F, Swanson, Kathleen M

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Long-term outcomes of systemic therapies for Hurler syndrome: an international multicenter comparison von Eisengart, Julie B, Rudser, Kyle D, Xue, Yong, Orchard, Paul, Miller, Weston, Lund, Troy, Van der Ploeg, Ans, Mercer, Jean, Jones, Simon, Mengel, Karl Eugen, Gökce, Seyfullah, Guffon, Nathalie, Giugliani, Roberto, de Souza, Carolina F M, Shapiro, Elsa G, Whitley, Chester B

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Diffusion tensor imaging with free‐water correction reveals distinctions between severe and attenuated subtypes in Mucopolysaccharidosis type I von Svatkova, Alena, Pasternak, Ofer, Eisengart, Julie B., Rudser, Kyle D., Bednařík, Petr, Mueller, Bryon A., Delaney, Kathleen A., Shapiro, Elsa G., Whitley, Chester B., Nestrašil, Igor

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Continuous production of a chiral amine in a packed bed reactor with co-immobilized amine dehydrogenase and formate dehydrogenase von Franklin, Robert D., Whitley, Joshua A., Caparco, Adam A., Bommarius, Bettina R., Champion, Julie A., Bommarius, Andreas S.

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MARK2 variants cause autism spectrum disorder via the downregulation of WNT/β-catenin signaling pathway von Gong, Maolei, Li, Jiayi, Qin, Zailong, Machado Bressan Wilke, Matheus Vernet, Liu, Yijun, Li, Qian, Liu, Haoran, Liang, Chen, Morales-Rosado, Joel A., Cohen, Ana S.A., Hughes, Susan S., Sullivan, Bonnie R., Waddell, Valerie, van den Boogaard, Marie-José H., van Jaarsveld, Richard H., van Binsbergen, Ellen, van Gassen, Koen L., Wang, Tianyun, Hiatt, Susan M., Amaral, Michelle D., Kelley, Whitley V., Zhao, Jianbo, Feng, Weixing, Ren, Changhong, Yu, Yazhen, Boczek, Nicole J., Ferber, Matthew J., Lahner, Carrie, Elliott, Sherr, Ruan, Yiyan, Mignot, Cyril, Keren, Boris, Xie, Hua, Wang, Xiaoyan, Popp, Bernt, Zweier, Christiane, Piard, Juliette, Coubes, Christine, Mau-Them, Frederic Tran, Safraou, Hana, Innes, A. Micheil, Gauthier, Julie, Michaud, Jacques L., Koboldt, Daniel C., Sylvie, Odent, Willems, Marjolaine, Tan, Wen-Hann, Cogne, Benjamin, Rieubland, Claudine, Braun, Dominique, McLean, Scott Douglas, Platzer, Konrad, Zacher, Pia, Oppermann, Henry, Evenepoel, Lucie, Blanc, Pierre, El Khattabi, Laïla, Haque, Neshatul, Dsouza, Nikita R., Zimmermann, Michael T., Urrutia, Raul, Klee, Eric W., Shen, Yiping, Du, Hongzhen, Rappaport, Leonard, Liu, Chang-Mei, Chen, Xiaoli

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Quantifying medical manifestations in Hurler syndrome with the infant physical symptom score: associations with long-term physical and adaptive outcomes von Ahmed, Alia, Rudser, Kyle, King, Kelly E., Eisengart, Julie B., Orchard, Paul J., Shapiro, Elsa, Whitley, Chester B.

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Consensus definition of essential, optimal, and suggested components of a pediatric sickle cell disease center von Hulbert, Monica L., Manwani, Deepa, Meier, Emily Riehm, Alvarez, Ofelia A., Brown, R. Clark, Callaghan, Michael U., Campbell, Andrew D., Coates, Thomas D., Frei‐Jones, Melissa J., Hankins, Jane S., Heeney, Matthew M., Hsu, Lewis L., Lebensburger, Jeffrey D., Quinn, Charles T., Shah, Nirmish, Smith‐Whitley, Kim, Thornburg, Courtney, Kanter, Julie

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Inequities in organ and tissue donation and transplantation for sexual orientation and gender identity diverse people: A scoping review von Leeies, Murdoch, Collister, David, Ho, Julie, Trachtenberg, Aaron, Gruber, Jackie, Weiss, Matthew J., Chandler, Jennifer A., Mooney, Owen, Carta, Tricia, Klassen, Ben, Draenos, Chris, Sutha, Ken, Randell, Shane, Strang, Matthew, Partain, Billy, Whitley, Cameron T., Cuvelier, Susan, MacKenzie, Lauren J., Shemie, Sam D., Hrymak, Carmen

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Assessing What Matters Most in Older Adults With Multicomplexity von Moye, Jennifer, Driver, Jane A, Owsiany, Montgomery T, Chen, Li Qing, Whitley, Jessica Cruz, Auguste, Elizabeth J, Paik, Julie M

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Changes in CSF GAG after intravenous enzyme replacement therapy von Lund, Troy, Braunlin, Elizabeth, Gupta, Ashish, Orchard, Paul J., Miller, Bradley, Long, Susie, Whitley, Chester B., Eisengart, Julie B.

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Determining the longitudinal validity and meaningful differences in HRQL of the PedsQL™ Sickle Cell Disease Module von Panepinto, Julie A, Paul Scott, J, Badaki-Makun, Oluwakemi, Darbari, Deepika S, Chumpitazi, Corrie E, Airewele, Gladstone E, Ellison, Angela M, Smith-Whitley, Kim, Mahajan, Prashant, Sarnaik, Sharada A, Charles Casper, T, Cook, Larry J, Leonard, Julie, Hulbert, Monica L, Powell, Elizabeth C, Liem, Robert I, Hickey, Robert, Krishnamurti, Lakshmanan, Hillery, Cheryl A, Brousseau, David C

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Bone marrow transplantation reverses metabolic alterations in multiple sulfatase deficiency: a case series von Pillai, Nishitha R., Liu, Ning, Li, Xiyuan, Li, Xiqi, Ahrens-Nicklas, Rebecca, Adang, Laura, Eisengart, Julie B., Bronken, Grace, Gupta, Ashish, Lund, Troy C., Whitley, Chester B., Elsea, Sarah H., Orchard, Paul J.

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A multicenter randomized controlled trial of intravenous magnesium for sickle cell pain crisis in children von Brousseau, David C., Scott, J. Paul, Badaki-Makun, Oluwakemi, Darbari, Deepika S., Chumpitazi, Corrie E., Airewele, Gladstone E., Ellison, Angela M., Smith-Whitley, Kim, Mahajan, Prashant, Sarnaik, Sharada A., Casper, T. Charles, Cook, Lawrence J., Dean, J. Michael, Leonard, Julie, Hulbert, Monica L., Powell, Elizabeth C., Liem, Robert I., Hickey, Robert, Krishnamurti, Lakshmanan, Hillery, Cheryl A., Nimmer, Mark, Panepinto, Julie A.

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