Delayed Diagnosis in Duchenne Muscular Dystrophy: Data from the Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet) von Ciafaloni, Emma, MD, Fox, Deborah J., MPH, Pandya, Shree, PT, MS, Westfield, Christina P., RN, BSN, Puzhankara, Soman, MS, Romitti, Paul A., PhD, Mathews, Katherine D., MD, Miller, Timothy M., MD, Matthews, Dennis J., MD, Miller, Lisa A., MD, MSPH, Cunniff, Christopher, MD, Druschel, Charlotte M., MD, MPH, Moxley, Richard T., MD

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Latent factors underlying the symptoms of adult-onset myotonic dystrophy type 1 during the clinical course von Zhang, Yanan, Wallace, Bailey, Cai, Bo, Johnson, Nicholas, Ciafaloni, Emma, Venkatesh, Yedatore Swamy, Westfield, Christina, McDermott, Suzanne

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Respiratory Care Received by Individuals With Duchenne Muscular Dystrophy From 2000 to 2011 von Andrews, Jennifer G, Soim, Aida, Pandya, Shree, Westfield, Christina P, Ciafaloni, Emma, Fox, Deborah J, Birnkrant, David J, Cunniff, Christopher M, Sheehan, Daniel W

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Trends in Tracheostomy in Duchenne Muscular Dystrophy (DMD): Data From the MD STARnet, 2006-2011 von Sheehan, Daniel, PhD, Westfield, Christina, RN, Kumar, Anil, Price, Elinora, Andrews, Jennifer, Fox, Deborah, Birnkrant, David, Cunniff, Christopher

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Noninvasive Respiratory Care Received by Individuals With Duchenne Muscular Dystrophy Since 1979-Reply von Andrews, Jennifer G, Soim, Aida, Pandya, Shree, Westfield, Christina P, Ciafaloni, Emma, Fox, Deborah J, Birnkrant, David J, Cunniff, Christopher M, Sheehan, Daniel W

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Muscular Dystrophy Surveillance, Tracking, and Research Network pilot: Population‐based surveillance of major muscular dystrophies at four U.S. sites, 2007–2011 von Do, ThuyQuynh N., Street, Natalie, Donnelly, Jennifer, Adams, Melissa M., Cunniff, Christopher, Fox, Deborah J., Weinert, Richard O., Oleszek, Joyce, Romitti, Paul A., Westfield, Christina P., Bolen, Julie

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Time to diagnosis of Duchenne muscular dystrophy remains unchanged: Findings from the Muscular Dystrophy Surveillance, Tracking, and Research Network, 2000‐2015 von Thomas, Shiny, Conway, Kristin M., Fapo, Olushola, Street, Natalie, Mathews, Katherine D., Mann, Joshua R., Romitti, Paul A., Soim, Aida, Westfield, Christina, Fox, Deborah J., Ciafaloni, Emma

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Secondary Conditions Among Males With Duchenne or Becker Muscular Dystrophy von Latimer, Rebecca, Street, Natalie, Conway, Kristin Caspers, James, Kathy, Cunniff, Christopher, Oleszek, Joyce, Fox, Deborah, Ciafaloni, Emma, Westfield, Christina, Paramsothy, Pangaja

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Health profile of a cohort of adults with Duchenne muscular dystrophy von Pandya, Shree, James, Katherine A., Westfield, Christina, Thomas, Shiny, Fox, Deborah J., Ciafaloni, Emma, Moxley, Richard T.

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Implementation of Duchenne Muscular Dystrophy Care Considerations von Andrews, Jennifer G, Conway, Kristin, Westfield, Christina, Trout, Christina, Meaney, F John, Mathews, Katherine, Ciafaloni, Emma, Cunniff, Christopher, Fox, Deborah J, Matthews, Dennis, Pandya, Shree

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Corticosteroid Treatment and Growth Patterns in Ambulatory Males with Duchenne Muscular Dystrophy von Lamb, Molly M., PhD, West, Nancy A., PhD, Ouyang, Lijing, PhD, Yang, Michele, MD, Weitzenkamp, David, PhD, James, Katherine, PhD, Ciafaloni, Emma, MD, Pandya, Shree, DPT, DiGuiseppi, Carolyn, MD, PhD

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A Pilot Study to Evaluate Adherence to the 2010 Care Considerations for Duchenne Muscular Dystrophy at Selected Clinics Identified by the Muscular Dystrophy Surveillance Tracking a... von Pandya, Shree, Caspers Conway, Kristin, Trout, Christina, Westfield, Christina, Fox, Deborah

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A Pilot Study to Evaluate Adherence to the 2010 Care Considerations for Duchenne Muscular Dystrophy (DMD) at Selected Clinics Identified by the Muscular Dystrophy Surveillance Trac... von Pandya, Shree, Caspers-Conway, Kristin, Trout, Christina, Westfield, Christina, Fox, Deborah

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A Pilot Survey Study of Adherence to Care Considerations for Duchenne Muscular Dystrophy von Conway, Kristin, Trout, Christina, Westfield, Christina, Fox, Deborah, Pandya, Shree

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Evaluating Implementation of the Updated Care Considerations for Duchenne Muscular Dystrophy von Ong, Katherine S, Kinnett, Kathi, Soelaeman, Rieza, Webb, Lauren, Bain, Jennifer S, Martin, Ann S, Westfield, Christina, Bolen, Julie, Street, Natalie

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Differentiation of Pediatric-Onset Duchenne and Becker Muscular Dystrophy Subphenotypes Using Data from the Muscular Dystrophy Surveillance Tracking and Research Network (MD STARne... von Andrews, Jennifer G., Lamb, Molly M., Conway, Kristin M., Street, Natalie, Westfield, Christina, Ciafaloni, Emma, Matthews, Dennis, Pandya, Shree

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Genetic Patterns of Selected Muscular Dystrophies in the Muscular Dystrophy Surveillance, Tracking, and Research Network von Kang, Peter B., Jorand-Fletcher, Magali, Zhang, Wanfang, McDermott, Suzanne W., Berry, Reba, Chambers, Chelsea, Wong, Kristen N., Mohamed, Yara, Thomas, Shiny, Venkatesh, Y Swamy, Westfield, Christina, Whitehead, Nedra, Johnson, Nicholas E.

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Secondary Health Conditions Among Males With Duchenne Or Becker Muscular Dystrophy (DBMD) (S36.003) von Napoliello, Rebecca, Street, Natalie, Caspers, Kristin, Ciafaloni, Emma, Cunniff, Christopher, Donnelly, Jennifer, Fox, Deborah, James, Kathy, Oleszek, Joyce, Westfield, Christina

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Cardiovascular health supervision for Duchenne Muscular Dystrophy; data from the MD STARnet von Wittlieb-Weber, Carol A., Pantea, Cristian, Krikov, Sergey, Westfield, Christina, Fox, Deborah J., Pandya, Shree, Bounsanga, Jerry, Johnson, Nicholas E., Butterfield, Russell J., Venkatesh, Y. Swamy, Ciafaloni, Emma

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Characterization of individuals with selected muscular dystrophies from the expanded pilot of the Muscular Dystrophy Surveillance, Tracking and Research Network (MD STARnet) in the... von Wallace, Bailey, Smith, K. Tiffany, Thomas, Shiny, Conway, Kristin M., Westfield, Christina, Andrews, Jennifer G., Weinert, Richard O., Do, Thuy Quynh N., Street, Natalie

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