Advancing qualitative rare disease research methodology: a comparison of virtual and in-person focus group formats von Dwyer, Andrew A, Uveges, Melissa, Dockray, Samantha, Smith, Neil

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ACCESS: an empirically-based framework developed by the International Nursing CASCADE Consortium to address genomic disparities through the nursing workforce von Katapodi, Maria C, Pedrazzani, Carla, Barnoy, Sivia, Dagan, Efrat, Fluri, Muriel, Jones, Tarsha, Kim, Sue, Underhill-Blazey, Meghan L, Uveges, Melissa K, Dwyer, Andrew A

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The Benefits and Burdens of Pediatric Palliative Care and End-of-Life Research: A Systematic Review von Weaver, Meaghann S, Mooney-Doyle, Kim, Kelly, Katherine Patterson, Montgomery, Kathleen, Newman, Amy R, Fortney, Christine A, Bell, Cynthia J, Spruit, Jessica L, Kurtz Uveges, Melissa, Wiener, Lori, Schmidt, Cynthia M, Madrigal, Vanessa N, Hinds, Pamela S

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Reducing Preschool Behavior Problems in an Urban Mental Health Clinic: A Pragmatic, Non-Inferiority Trial von Gross, Deborah, Belcher, Harolyn M.E., Budhathoki, Chakra, Ofonedu, Mirian E., Dutrow, Daryl, Uveges, Melissa Kurtz, Slade, Eric

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Actionability of unanticipated monogenic disease risks in newborn genomic screening: Findings from the BabySeq Project von Green, Robert C., Shah, Nidhi, Genetti, Casie A., Yu, Timothy, Zettler, Bethany, Uveges, Melissa K., Ceyhan-Birsoy, Ozge, Lebo, Matthew S., Pereira, Stacey, Agrawal, Pankaj B., Parad, Richard B., McGuire, Amy L., Christensen, Kurt D., Schwartz, Talia S., Rehm, Heidi L., Holm, Ingrid A., Beggs, Alan H.

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Trisomy 21 and Congenital Heart Disease: Impact on Health and Functional Outcomes From Birth Through Adolescence: A Scientific Statement From the American Heart Association von Peterson, Jennifer K, Clarke, Shanelle, Gelb, Bruce D, Kasparian, Nadine A, Kazazian, Vanna, Pieciak, Karyn, Pike, Nancy A, Setty, Shaun P, Uveges, Melissa K, Rudd, Nancy A

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Does Parent Training Format Affect Treatment Engagement? A Randomized Study of Families at Social Risk von Gross, Deborah, Belcher, Harolyn M. E., Budhathoki, Chakra, Ofonedu, Mirian E., Uveges, Melissa K.

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Exploring Rare Disease Patient Attitudes and Beliefs regarding Genetic Testing: Implications for Person-Centered Care von Dwyer, Andrew A, Uveges, Melissa K, Dockray, Samantha, Smith, Neil

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It is Time to Screen for Homozygous Familial Hypercholesterolemia in the United States von Gidding, Samuel S, Ballantyne, Christie M, Cuchel, Marina, de Ferranti, Sarah, Hudgins, Lisa, Jamison, Allison, McGowan, Mary P, Peterson, Amy L, Steiner, Robert D, Uveges, Melissa K, Wang, Yunshu

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Employing a mobile health decision aid to improve decision-making for patients with advanced prostate cancer and their decision partners/proxies: the CHAMPION randomized controlled... von Carhuapoma, Lourdes R., Thayer, Winter M., Elmore, Catherine E., Gildersleeve, Jane, Singh, Tanmay, Shaukat, Farah, Uveges, Melissa K., Gray, Tamryn, Chu, Crystal, Song, Daniel, Hollen, Patricia J., Wenzel, Jennifer, Jones, Randy A.

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Strategies for success in a nursing PhD program and beyond von Fisher, Marlena C., Gray, Tamryn F., Uveges, Melissa K., Heinze, Katherine E., Pellathy, Tiffany P., Parrillo, Elaina, Hravnak, Marilyn, Nolan, Marie T.

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Mentoring in research-focused doctoral nursing programs and student perceptions of career readiness in the United States von Nersesian, Paula V., Starbird, Laura E., Wilson, Damali M., Marea, Christina X., Uveges, Melissa K., Choi, Scott Seung W., Szanton, Sarah L., Cajita, Maan Isabella

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Effects of participation in a U.S. trial of newborn genomic sequencing on parents at risk for depression von Schwartz, Talia S., Christensen, Kurt D., Uveges, Melissa K., Waisbren, Susan E., McGuire, Amy L., Pereira, Stacey, Robinson, Jill O., Beggs, Alan H., Green, Robert C., Bachmann, Gloria A., Rabson, Arnold B., Holm, Ingrid A.

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Patient navigation and clinical trial participation: A randomized controlled trial design von Uveges, Melissa Kurtz, Lansey, Dina George, Mbah, Olive, Gray, Tamryn, Sherden, Lisa, Wenzel, Jennifer

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Returning actionable genomic results in a research biobank: Analytic validity, clinical implementation, and resource utilization von Blout Zawatsky, Carrie L., Shah, Nidhi, Machini, Kalotina, Perez, Emma, Christensen, Kurt D., Zouk, Hana, Steeves, Marcie, Koch, Christopher, Uveges, Melissa, Shea, Janelle, Gold, Nina, Krier, Joel, Boutin, Natalie, Mahanta, Lisa, Rehm, Heidi L., Weiss, Scott T., Karlson, Elizabeth W., Smoller, Jordan W., Lebo, Matthew S., Green, Robert C.

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Applications of Grief and Bereavement Theory for Critical Care Nurses von Broden, Elizabeth G, Uveges, Melissa Kurtz

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Parents’ decision-making regarding whether to receive adult-onset only genetic findings for their children: Findings from the BabySeq Project von Pereira, Stacey, Gutierrez, Amanda M., Robinson, Jill Oliver, Christensen, Kurt D., Genetti, Casie A., Blout Zawatsky, Carrie L., Hsu, Rebecca L., Zettler, Bethany, Uveges, Melissa Kurtz, Parad, Richard B., Beggs, Alan H., Holm, Ingrid A., Green, Robert C., McGuire, Amy L.

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The Influence of Parents' Religiosity or Spirituality on Decision Making for Their Critically Ill Child: An Integrative Review von Uveges, Melissa Kurtz, Hamilton, Jill B, DePriest, Kelli, Boss, Renee, Hinds, Pamela S, Nolan, Marie T

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Everyday Clinical Ethics: Essential Skills and Educational Case Scenarios von Meyer, Elaine C, Lamiani, Giulia, Uveges, Melissa, McLeod-Sordjan, Renee, Mitchell, Christine, Truog, Robert D, Marron, Jonathan M, Kennedy, Kerri O, Ritholz, Marilyn, Teti, Stowe Locke, Milliken, Aimee B

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Mentoring in Research-focused Doctoral Nursing Programs, Desired Careers, and Student Perceptions of Career Readiness in the United States von Nersesian, Paula V., Starbird, Laura E., Wilson, Damali M., Marea, Christina X., Uveges, Melissa K., Choi, Scott Seung W., Szanton, Sarah L., Cajita, Maan Isabella

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