Return of individual genomic research results: are laws and policies keeping step? von Thorogood, Adrian, Dalpé, Gratien, Knoppers, Bartha Maria

Volltext

Policy-aware data lakes: a flexible approach to achieve legal interoperability for global research collaborations von Thorogood, Adrian

Volltext

Avoiding Liability and Other Legal Land Mines in the Evolving Genomics Landscape von Clayton, Ellen Wright, Tritell, Alex M, Thorogood, Adrian M

Volltext

Isolated Aerobic Exercise and Weight Loss: A Systematic Review and Meta-Analysis of Randomized Controlled Trials von Thorogood, Adrian, BSc, Mottillo, Salvatore, BSc, Shimony, Avi, MD, Filion, Kristian B., PhD, Joseph, Lawrence, PhD, Genest, Jacques, MD, Pilote, Louise, MD, MPH, PhD, Poirier, Paul, MD, PhD, Schiffrin, Ernesto L., MD, PhD, Eisenberg, Mark J., MD, MPH

Volltext

Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia von Milne, Richard, Morley, Katherine I., Howard, Heidi, Niemiec, Emilia, Nicol, Dianne, Critchley, Christine, Prainsack, Barbara, Vears, Danya, Smith, James, Steed, Claire, Bevan, Paul, Atutornu, Jerome, Farley, Lauren, Goodhand, Peter, Thorogood, Adrian, Kleiderman, Erika, Middleton, Anna

Volltext

Genomics: data sharing needs an international code of conduct von Phillips, Mark, Molnár-Gábor, Fruzsina, Korbel, Jan O., Thorogood, Adrian, Joly, Yann, Chalmers, Don, Townend, David, Knoppers, Bartha M.

Volltext

Attitudes of publics who are unwilling to donate DNA data for research von Middleton, Anna, Milne, Richard, Thorogood, Adrian, Kleiderman, Erika, Niemiec, Emilia, Prainsack, Barbara, Farley, Lauren, Bevan, Paul, Steed, Claire, Smith, James, Vears, Danya, Atutornu, Jerome, Howard, Heidi C., Morley, Katherine I.

Volltext

Canada: will privacy rules continue to favour open science? von Thorogood, Adrian

Volltext

A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research von Dalpé, Gratien, Thorogood, Adrian, Knoppers, Bartha Maria

Volltext

Parental Access to Children's Raw Genomic Data in Canada: Legal Rights and Professional Responsibility von Beauvais, Michael J. S., Thorogood, Adrian M., Szego, Michael J., Senecal, Karine, Zawati, M'an H., Knoppers, Bartha Maria

Volltext

International Coordination of Research Ethics Review: An Adequacy Model von Thorogood, Adrian, Beauvais, Michael J. S.

Volltext

APPLaUD: access for patients and participants to individual level uninterpreted genomic data von Thorogood, Adrian, Bobe, Jason, Prainsack, Barbara, Middleton, Anna, Scott, Erick, Nelson, Sarah, Corpas, Manuel, Bonhomme, Natasha, Rodriguez, Laura Lyman, Murtagh, Madeleine, Kleiderman, Erika

Volltext

Corrigendum: Parental Access to Children's Raw Genomic Data in Canada: Legal Rights and Professional Responsibility von Beauvais, Michael J. S., Thorogood, Adrian M., Szego, Michael J., Sénécal, Karine, Zawati, Ma'n H., Knoppers, Bartha Maria

Volltext

Genomic Sequencing Capacity, Data Retention, and Personal Access to Raw Data in Europe von Narayanasamy, Shaman, Markina, Varvara, Thorogood, Adrian, Blazkova, Adriana, Shabani, Mahsa, Knoppers, Bartha M., Prainsack, Barbara, Koesters, Robert

Volltext

Correction to: Canada: will privacy rules continue to favour open science? von Thorogood, Adrian

Volltext

International federation of genomic medicine databases using GA4GH standards von Thorogood, Adrian, Rehm, Heidi L., Goodhand, Peter, Page, Angela J.H., Joly, Yann, Baudis, Michael, Rambla, Jordi, Navarro, Arcadi, Nyronen, Tommi H., Linden, Mikael, Dove, Edward S., Fiume, Marc, Brudno, Michael, Cline, Melissa S., Birney, Ewan

Volltext

Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons von McGuire, Amy L., Majumder, Mary A., Villanueva, Angela G., Bardill, Jessica, Bollinger, Juli M., Boerwinkle, Eric, Bubela, Tania, Deverka, Patricia A., Evans, Barbara J., Garrison, Nanibaa' A., Glazer, David, Goldstein, Melissa M., Greely, Henry T., Kahn, Scott D., Knoppers, Bartha M., Koenig, Barbara A., Lambright, J. Mark, Mattison, John E., O'Donnell, Christopher, Rai, Arti K., Rodriguez, Laura L., Simoncelli, Tania, Terry, Sharon F., Thorogood, Adrian M., Watson, Michael S., Wilbanks, John T., Cook-Deegan, Robert

Volltext

'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods von Middleton, Anna, Niemiec, Emilia, Prainsack, Barbara, Bobe, Jason, Farley, Lauren, Steed, Claire, Smith, James, Bevan, Paul, Bonhomme, Natasha, Kleiderman, Erika, Thorogood, Adrian, Schickhardt, Christoph, Garattini, Chiara, Vears, Danya, Littler, Katherine, Banner, Natalie, Scott, Erick, Kovalevskaya, Nadezda V, Levin, Elissa, Morley, Katherine I, Howard, Heidi Carmen

Volltext

Responsible sharing of biomedical data and biospecimens via the “Automatable Discovery and Access Matrix” (ADA-M) von Woolley, J. Patrick, Kirby, Emily, Leslie, Josh, Jeanson, Francis, Cabili, Moran N., Rushton, Gregory, Hazard, James G., Ladas, Vagelis, Veal, Colin D., Gibson, Spencer J., Tassé, Anne-Marie, Dyke, Stephanie O. M., Gaff, Clara, Thorogood, Adrian, Knoppers, Bartha Maria, Wilbanks, John, Brookes, Anthony J.

Volltext

Population Biobanking and International Collaboration von Zawati, Ma''n H., Knoppers, Bartha, Thorogood, Adrian

Volltext