Patients' priorities and expectations on an EU registry for rare bone and mineral conditions von Javaid, Muhammad Kassim, Mordenti, Marina, Boarini, Manila, Sangiorgi, Luca, Westerheim, Ingunn, Alves, Inês, Skarberg, Rebecca Tvedt, Appelman-Dijkstra, Natasha M, Grasemann, Corinna

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Establishing the first pan-European Registry for rare bone and mineral disorders: EuRR-Bone von Grasemann, Corinna, Mordenti, Marina, Alves, Inês, Skarberg, Rebecca, Soucek, Ondrej, Roos, Marco, Javaid, M. Kassim, Ahmed, S. Faisal, Lignart, Agnès, Mohnike, Klaus, Högler, Wolfgang, Sangiorgi, Luca, Appelman-Dijkstra, Natasha M.

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The European Registry for Rare Bone and Mineral Conditions (EuRR-Bone): First year experience of the use of an e-reporting tool von Zurita, Ana Luisa Priego, Linglart, Agnès, Alves, Inês, Auriemma, Renata Simona, Boarini, Manila, Bryce, Jillian, DeSanctis, Luisa, Ertl, Diana-Alexandra, Gan, Hoong-Wei, Grasemann, Corinna, Högler, Wolfgang, Javaid, M. Kassim, Mohnike, Klaus, Mordenti, Marina, Raimann, Adalbert, Sangiorgi, Luca, Roos, Marco, Skarberg, Rebecca, Soucek, Ondrej, Toke, Judit, van den Akker, Erica, Vicente, Almudena, Faisal, Ahmed S., Appelman-Dijkstra, Natasha

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New cases of rare bone and mineral conditions reported within the first 18 months of the European registry for rare bone and mineral conditions von Zurita, Ana Luisa Priego, Bryce, Jillian, Alves, Inês, Boarini, Manila, Grasemann, Corinna, Högler, Wolfgang, Javaid, M. Kassim, Linglart, Agnès, Mohnike, Klaus, Mordenti, Marina, Mortier, Geert, Roos, Marco, Sangiorgi, Luca, Skarberg, Rebecca, Soucek, Ondrej, Ahmed, S. Faisal, Appelman-Dijkstra, Natasha

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Additional file 2 of Patients’ priorities and expectations on an EU registry for rare bone and mineral conditions von Javaid, Muhammad Kassim, Mordenti, Marina, Boarini, Manila, Sangiorgi, Luca, Westerheim, Ingunn, Alves, Inês, Skarberg, Rebecca Tvedt, Appelman-Dijkstra, Natasha M., Grasemann, Corinna

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