High levels of caregiver burden in Prader-Willi syndrome von Kayadjanian, Nathalie, Schwartz, Lauren, Farrar, Evan, Comtois, Katherine Anne, Strong, Theresa V

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Safety and Tumor Specificity of Cetuximab-IRDye800 for Surgical Navigation in Head and Neck Cancer von Rosenthal, Eben L, Warram, Jason M, de Boer, Esther, Chung, Thomas K, Korb, Melissa L, Brandwein-Gensler, Margie, Strong, Theresa V, Schmalbach, Cecelia E, Morlandt, Anthony B, Agarwal, Garima, Hartman, Yolanda E, Carroll, William R, Richman, Joshua S, Clemons, Lisa K, Nabell, Lisle M, Zinn, Kurt R

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Characteristics and relationship between hyperphagia, anxiety, behavioral challenges and caregiver burden in Prader-Willi syndrome von Kayadjanian, Nathalie, Vrana-Diaz, Caroline, Bohonowych, Jessica, Strong, Theresa V., Morin, Josee, Potvin, Diane, Schwartz, Lauren

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Analysis of Hyperphagia Questionnaire for Clinical Trials (HQ-CT) scores in typically developing individuals and those with Prader-Willi syndrome von Matesevac, Lisa, Vrana-Diaz, Caroline J., Bohonowych, Jessica E., Schwartz, Lauren, Strong, Theresa V.

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The Prader-Willi Syndrome Anxiousness and Distress Behaviors Questionnaire: Development and Psychometric Validation von Cotter, Sara P., Schwartz, Lauren, Strong, Theresa V., Bender, Randall H., Fehnel, Sheri E.

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Suicidality in individuals with Prader-Willi syndrome: a review of registry survey data von Peleggi, Analise, Bohonowych, Jessica, Strong, Theresa V., Schwartz, Lauren, Kim, Soo-Jeong

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Toxicity and Pharmacokinetic Profile for Single-Dose Injection of ABY-029: a Fluorescent Anti-EGFR Synthetic Affibody Molecule for Human Use von Samkoe, Kimberley S., Gunn, Jason R., Marra, Kayla, Hull, Sally M., Moodie, Karen L., Feldwisch, Joachim, Strong, Theresa V., Draney, Daniel R., Hoopes, P. Jack, Roberts, David W., Paulsen, Keith, Pogue, Brian W.

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Magel2 truncation alters select behavioral and physiological outcomes in a rat model of Schaaf-Yang syndrome von Reznik, Derek L, Yang, Mingxiao V, Albelda de la Haza, Pedro, Jain, Antrix, Spanjaard, Melanie, Theiss, Susanne, Schaaf, Christian P, Malovannaya, Anna, Strong, Theresa V, Veeraragavan, Surabi, Samaco, Rodney C

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Variability and change over time of weight and BMI among adolescents and adults with Prader-Willi syndrome: a 6-month text-based observational study von Vrana-Diaz, Caroline J., Balasubramanian, Priya, Kayadjanian, Nathalie, Bohonowych, Jessica, Strong, Theresa V.

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Caregiver‐based perception of disease burden in Schaaf‐Yang syndrome von Dötsch, Laura, Matesevac, Lisa, Strong, Theresa V., Schaaf, Christian P.

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Age of diagnosis for children with chromosome 15q syndromes von Wheeler, Anne C, Gantz, Marie G, Cope, Heidi, Strong, Theresa V, Bohonowych, Jessica E, Moore, Amanda, Vogel-Farley, Vanessa

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IND-Directed Safety and Biodistribution Study of Intravenously Injected Cetuximab-IRDye800 in Cynomolgus Macaques von Zinn, Kurt R., Korb, Melissa, Samuel, Sharon, Warram, Jason M., Dion, David, Killingsworth, Cheryl, Fan, Jinda, Schoeb, Trenton, Strong, Theresa V., Rosenthal, Eben L.

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Incidence of strabismus, strabismus surgeries, and other vision conditions in Prader-Willi syndrome: data from the Global Prader-Willi Syndrome Registry von Bohonowych, Jessica E., Vrana-Diaz, Caroline J., Miller, Jennifer L., McCandless, Shawn E., Strong, Theresa

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Behavioral changes in patients with Prader-Willi syndrome receiving diazoxide choline extended-release tablets compared to the PATH for PWS natural history study von Strong, Theresa V, Miller, Jennifer L, McCandless, Shawn E, Gevers, Evelien, Yanovski, Jack A, Matesevac, Lisa, Bohonowych, Jessica, Ballal, Shaila, Yen, Kristen, Hirano, Patricia, Cowen, Neil M, Bhatnagar, Anish

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The High Direct Medical Costs of Prader-Willi Syndrome von Shoffstall, Andrew J., PhD, Gaebler, Julia A., PhD, Kreher, Nerissa C., MD, Niecko, Timothy, MS, Douglas, Diah, MD, Strong, Theresa V., PhD, Miller, Jennifer L., MD, Stafford, Diane E., MD, Butler, Merlin G., MD, PhD

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Neural stem cell delivery of an oncolytic adenovirus in newly diagnosed malignant glioma: a first-in-human, phase 1, dose-escalation trial von Fares, Jawad, Ahmed, Atique U, Ulasov, Ilya V, Sonabend, Adam M, Miska, Jason, Lee-Chang, Catalina, Balyasnikova, Irina V, Chandler, James P, Portnow, Jana, Tate, Matthew C, Kumthekar, Priya, Lukas, Rimas V, Grimm, Sean A, Adams, Ann K, Hébert, Charles D, Strong, Theresa V, Amidei, Christina, Arrieta, Victor A, Zannikou, Markella, Horbinski, Craig, Zhang, Hui, Burdett, Kirsten Bell, Curiel, David T, Sachdev, Sean, Aboody, Karen S, Stupp, Roger, Lesniak, Maciej S

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Use of Mobile Devices to Measure Outcomes in Clinical Research, 2010–2016: A Systematic Literature Review von Perry, Brian, Herrington, Will, Goldsack, Jennifer C., Grandinetti, Cheryl A., Vasisht, Kaveeta P., Landray, Martin J., Bataille, Lauren, DiCicco, Robert A., Bradley, Corey, Narayan, Ashish, Papadopoulos, Elektra J., Sheth, Nirav, Skodacek, Ken, Stem, Komathi, Strong, Theresa V., Walton, Marc K., Corneli, Amy

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The Global Prader-Willi Syndrome Registry: Development, Launch, and Early Demographics von Bohonowych, Jessica, Miller, Jennifer, McCandless, Shawn E, Strong, Theresa V

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The motivations and methods behind sharing a pediatric Prader–Willi syndrome diagnosis von Moy, Victoria F., Denton, Jessica J., Bohonowych, Jessica E., Strong, Theresa V.

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Neuromodulation for the treatment of Prader-Willi syndrome – A systematic review von Qiu, Liming, Chang, Andrew, Ma, Ruoyu, Strong, Theresa V., Okun, Michael S., Foote, Kelly D., Wexler, Anna, Gunduz, Aysegul, Miller, Jennifer L., Halpern, Casey H.

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