A conceptual framework to develop a patient-reported experience questionnaire on the cystic fibrosis journey in France: the ExPaParM collaborative study von Pougheon Bertrand, D, Fanchini, A, Lombrail, P, Rault, G, Chansard, A, Le Breton, N, Frenod, C, Milon, F, Royer, C Heymes, Segretain, D, Silber, M, Therouanne, S, Haesebaert, J, Llerena, C, Michel, P, Reynaud, Q

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Collaborative research protocol to define patient-reported experience measures of the cystic fibrosis care pathway in France: the ExPaParM study von Pougheon Bertrand, D, Fanchini, A, Lombrail, P, Rault, G, Chansard, A, Le Breton, N, Frenod, C, Milon, F, Heymes-Royer, C, Segretain, D, Silber, M, Therouanne, S, Haesebaert, J, Llerena, C, Michel, P, Reynaud, Q

Volltext

Collaborative research protocol to define patient-reported experience measures of the cystic fibrosis care pathway in France: the ExPaParM study von Pougheon Bertrand, D., Fanchini, A., Lombrail, P., Rault, G., Chansard, A., Le Breton, N., Frenod, C., Milon, F., Heymes-Royer, C., Segretain, D., Silber, M., Therouanne, S., Haesebaert, J., Llerena, C., Michel, P., Reynaud, Q.

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