Impact of spinal fusion on severity health status in scoliotic adolescents with polyhandicap von Bessaguet, Hugo, Rousseau, Marie-Christine, Gautheron, Vincent, Ojardias, Etienne, Dohin, Bruno

Volltext

Parents' experiences of parenting a child with profound intellectual and multiple disabilities in France: A qualitative study von Aim, Marie‐Anastasie, Rousseau, Marie‐Christine, Hamouda, Ilyes, Anzola, Any Beltran, Villemeur, Thierry Billette, Milh, Mathieu, Maincent, Kim, Lind, Katia, Auquier, Pascal, Baumstarck, Karine, Dany, Lionel

Volltext

The French EVAL-PLH cohort of persons with polyhandicap von Hamouda, Ilyes, Rousseau, Marie-Christine, Beltran Anzola, Any, Aim, Marie-Anastasie, de Villemeur, Thierry Billette, Auquier, Pascal, Baumstarck, Karine

Volltext

Health care management adequacy among French persons with severe profound intellectual and multiple disabilities: a longitudinal study von Baumstarck, Karine, Hamouda, Ilyes, Aim, Marie-Anastasie, Anzola, Any Beltran, Khaldi-Cherif, Sherezad, Felce, Agnès, Maincent, Kim, Lind, Katia, Auquier, Pascal, Billette de Villemeur, Thierry, Rousseau, Marie-Christine

Volltext

Adequacy of care management of patients with polyhandicap in the French health system: A study of 782 patients von Rousseau, Marie-Christine, Billette de Villemeur, Thierry, Khaldi-Cherif, Sherezad, Brisse, Catherine, Felce, Agnès, Baumstarck, Karine, Auquier, Pascal

Volltext

Impact of severe polyhandicap on parents' quality of life: A large French cross-sectional study von Rousseau, Marie-Christine, Baumstarck, Karine, Khaldi-Cherif, Sherezad, Brisse, Catherine, Felce, Agnès, Moheng, Benjamin, Loundou, Anderson, Billette de Villemeur, Thierry, Auquier, Pascal

Volltext

Impact of caring for patients with severe and complex disabilities on health care workers’ quality of life: determinants and specificities von Rousseau, Marie‐Christine, Baumstarck, Karine, Leroy, Tanguy, Khaldi‐Cherif, Cherazad, Brisse, Catherine, Boyer, Laurent, Resseguier, Noémie, Morando, Claire, Billette De Villemeur, Thierry, Auquier, Pascal

Volltext

Healthcare of Persons With Complex Developmental Disabilities From Three European Experiences: France, Italy, and Norway von Rousseau, Marie‐Christine, Dagois, Jean‐Francois, Lausecker, Claire, Humbertclaude, Eric, Dominique, Alain, Hamouda, Ilyes, Auquier, Pascal, Billette de Villemeur, Thierry, Baumstarck, Karine

Volltext

Impact of severe polyhandicap cared for at home on French informal caregivers’ burden: a cross-sectional study von Rousseau, Marie-Christine, Baumstarck, Karine, Valkov, Maria, Felce, Agnés, Brisse, Catherine, Khaldi-Cherif, Sherezad, Loundou, Anderson, Auquier, Pascal, Billette de Villemeur, Thierry

Volltext

Exploring the perceptions of physicians, caregivers and families towards artificial nutrition and hydration for people in permanent vegetative state: How can a photo-elicitation me... von Cretin, Elodie, Pazart, Lionel, Rousseau, Marie-Christine, Noé, Alain, Decavel, Pierre, Chassagne, Aline, Godard-Marceau, Aurélie, Trimaille, Hélène, Mathieu-Nicot, Florence, Beaussant, Yvan, Gabriel, Damien, Daneault, Serge, Aubry, Régis

Volltext

Evaluation of quality of life in complete locked-in syndrome patients von Rousseau, Marie-Christine, Pietra, Stephane, Nadji, Mohammed, Billette de Villemeur, Thierry

Volltext

Evaluation of quality of life in individuals with severe chronic motor disability: A major challenge von Rousseau, Marie-Christine, Baumstarck, Karine, Villemeur, Thierry Billette de, Auquier, Pascal

Volltext

Health status of individuals with polyhandicap across a 5-year follow-up period von Rousseau, Marie-Christine, Hamouda, Ilyes, Aim, Marie-Anastasie, Anzola, Any Beltran, Maincent, Kim, Lind, Katia, Felce, Agnès, Auquier, Pascal, De Villemeur, Thierry Billette, Baumstarck, Karine

Volltext

Development and initial validation of the quality of life questionnaire for persons with polyhandicap (PolyQoL) von Hamouda, Ilyes, Rousseau, Marie-Christine, Aim, Marie-Anastasie, Anzola, Any Beltran, Loundou, Anderson, De Villemeur, Thierry Billette, Auquier, Pascal, Baumstarck, Karine

Volltext

Quality of life of ALS and LIS patients with and without invasive mechanical ventilation von Rousseau, Marie-Christine, Pietra, Stéphane, Blaya, José, Catala, Anne

Volltext

Quality of life in patients with locked-in syndrome: Evolution over a 6-year period von Rousseau, Marie-Christine, Baumstarck, Karine, Alessandrini, Marine, Blandin, Véronique, Billette de Villemeur, Thierry, Auquier, Pascal

Volltext

Importance of health indicators: Update for people with polyhandicap von Baumstarck, Karine, Hamouda, Ilyes, Beltran, Any, Del Luca, Sibylle, El Ouazzani, Houria, Rousseau, Marie-Christine

Volltext

Development and initial validation of a screening tool for visual ability/performance of people with polyhandicap von Rousseau, Marie-Christine, Challe, Georges, Charbonnier, Soizic, Jacquier, Marie-Thérèse, Valkov, Maria, Tourbier, Valérie, Lemaire, Sophie, Guilluy, Etienne, Khaldi-Cherif, Nafissa, Nkam, Lionelle, Baumstarck, Karine, de Villemeur, Thierry Billette, Aegerter, Philippe

Volltext

Impact of caring for patients with polyhandicap on institutional health care workers' quality of life: a cross-sectional and longitudinal evaluation von Rousseau, Marie-Christine, Beltran, Any, Hamouda, Ilyes, Aim, Marie-Anastasie, Felce, Agnès, Lind, Katia, Khaldi, Nafissa, El Ouazzani, Houria, Auquier, Pascal, de Villemeur, Thierry Billette, Baumstarck, Karine

Volltext

Polyhandicap and aging von Rousseau, Marie-Christine, de Villemeur, Thierry Billette, Khaldi-Cherif, Sherezad, Brisse, Catherine, Felce, Agnès, Loundou, Anderson, Baumstarck, Karine, Auquier, Pascal

Volltext