Adult North Star Network (ANSN): Consensus Guideline For The Standard Of Care Of Adults With Duchenne Muscular Dystrophy von Quinlivan, R., Messer, B., Murphy, P., Astin, R., Mukherjee, R., Khan, J., Emmanuel, A., Wong, S.C., Kulshresha, R., Willis, T., Pattni, J., Willis, D., Morgan, A., Savvatis, K., Keen, R., Bourke, J., Marini Bettolo, C., Hewamadduma, C.

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Clinical, histopathological and molecular aspects of glycogen storage disease type VII: A review of the UK experience von Godfrey, R, Scalco, R, Ellerton, C, Carruthers, R, Chatfield, S, Hansen, K, Michelson, J, Pattni, J, Holton, J, Quinlivan, R

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524P Grip strength in McArdle disease von Finnigan, P., Godfrey, R., Pattni, J., Mohamed, K., Quinlivan, R.

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T.P.25 von Chatfield, S, Pattni, J, Ellerton, C, Carruthers, R, Godfrey, R, Quinlivan, R

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Effect of a multi-disciplinary approach to diagnosis and management for non-lysosomal skeletal muscle glycogen storage disorders von Godfrey, R, Scalco, R, Booth, S, Ellerton, C, Kahraman, A, Chatfield, S, Desikan, M, Carruthers, R, Wakelin, A, Pattni, J, Quinlivan, R

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T.P.26 von Scalco, R.S, Chatfield, S, Pattni, J, Ellerton, C, Beggs, A, Godfrey, R, Holton, J.L, Quinlivan, R

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Sodium valproate for McArdle disease (glycogen storage disease type V – GSDV) von Scalco, R, Vissing, C, Godfrey, R, Chatfield, S, Løkken, N, Madsen, K, Pattni, J, Michalak, Z, Sewry, C, Fox, Z, McKenna, G, Samandouras, G, Holton, J, Howell, J, Haller, R, Vissing, J, Quinlivan, R

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Rhabdomyolysis due to unaccustomed exercise: Experiences from a multidisciplinary clinic von Chatfield, S., Godfrey, R., Pattni, J., Quinlivan, R.

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223P Mental health support for children and young people with Duchenne muscular dystrophy – who, when and how across the UK von Geagan, C., Sandhu, A., Bouquillon, L., Conn, R., Bindman, D., Pattni, J., Turner, C., McDonald, R., Alex, J., Rodney, S., Quinlivan, R., Guglieri, M., Straub, V.

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P.118Descriptions of pain in McArdle disease von Chatfield, S., Pattni, J., Booth, S., Godfrey, R., Quinlivan, R.

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P.117Rhabdomyolysis due to unaccustomed exercise: experiences from a multidisciplinary clinic von Chatfield, S., Pattni, J., Godfrey, R., Quinlivan, R.

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371P Screening for psychosocial needs in adults with Duchenne muscular dystrophy: preliminary findings on using the GAD7 and PHQ9 von Bouquillon, L., Pattni, J., Bindman, D., Geagan, C., Conn, R., McDonald, R., Turner, C., Rodney, S., Johnson, A., Guglieri, M., Straub, V., Quinlivan, R.

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OD17 - Referrals to psychology within a neuromuscular service: what do patients want to talk about? von Pattni, J., Clark, H., Desikan, M., Scalco, R., Quinlivan, R.

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Referrals to psychology within a neuromuscular service: what do patients want to talk about? von Pattni, J., Clark, H., Desikan, M., Scalco, R., Quinlivan, R.

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P.113 - Referrals to psychology within a neuromuscular service: what do patients want to talk about? von Pattni, J., Clark, H., Desikan, M., Scalco, R., Quinlivan, R.

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Referrals to psychology within a neuromuscular service: what do patients want to talk about? von Pattni, J., Clark, H., Desikan, M., Scalco, R., Quinlivan, R.

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P.121Development of a rowing ergometer protocol to test whole body VO2peak in McArdle disease von Godfrey, R., Newbury, J., Chatfield, S., Pattni, J., Wakelin, A., Quinlivan, R.

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P.116The existence of the `Third Wind' phenomenon in McArdle disease von Godfrey, R., Burman, J., Lees, G., Scalco, R., Chatfield, S., Pattni, J., Wakelin, A., Quinlivan, R.

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Evaluating the 12-minute walk test in McArdle disease von Chatfield, S., Booth, S., Godfrey, R., Pattni, J., Scalco, R., Quinlivan, R.

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OD06 - Evaluating the 12-minute walk test in McArdle disease von Chatfield, S., Booth, S., Godfrey, R., Pattni, J., Scalco, R., Quinlivan, R.

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