Validation of a new pediatric joint scoring system from the International Hemophilia Prophylaxis Study Group: Validity of the hemophilia joint health score von Feldman, Brian M., Funk, Sharon M., Bergstrom, Britt‐Marie, Zourikian, Nichan, Hilliard, Pamela, van der Net, Janjaap, Engelbert, Raoul, Petrini, Pia, van den Berg, H. Marijke, Manco‐Johnson, Marilyn J., Rivard, Georges E., Abad, Audrey, Blanchette, Victor S.

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Global Hemostatic Methods to Tailor Treatment With Bypassing Agents in Hemophilia A With Inhibitors- A Single-Center, Pilot Study von Chaireti, Roza, Soutari, Nida, Holmström, Margareta, Petrini, Pia, Magnusson, Maria, Ranta, Susanna, Pruner, Iva, Antovic, Jovan P

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Bleeding before prophylaxis in severe hemophilia: paradigm shift over two decades von Nijdam, Annelies, Altisent, Carmen, Carcao, Manuel D, Cid, Ana R, Claeyssens-Donadel, Ségolène, Kurnik, Karin, Ljung, Rolf, Nolan, Beatrice, Petrini, Pia, Platokouki, Helen, Rafowicz, Anne, Thomas, Angela E, Fischer, Kathelijn

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Intermediate-dose versus high-dose prophylaxis for severe hemophilia: comparing outcome and costs since the 1970s von Fischer, Kathelijn, Steen Carlsson, Katarina, Petrini, Pia, Holmström, Margareta, Ljung, Rolf, van den Berg, H. Marijke, Berntorp, Erik

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HRQoL and psychosocial aspects of burden on caregivers to children with moderate or severe von Willebrand disease von Olsson, Anna, Petrini, Pia, Engman Grahn, Emma, Myrin Westesson, Linda

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Burden on parents of children with moderate or severe von Willebrand disease: The impact of clinical data von Westesson, Linda Myrin, Petrini, Pia, Grahn, Emma Engman, Olsson, Anna

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Identifying and overcoming barriers to prophylaxis in the management of haemophilia von PETRINI, P.

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Intensity of factor VIII treatment and inhibitor development in children with severe hemophilia A: the RODIN study von Gouw, Samantha C., van den Berg, H. Marijke, Fischer, Kathelijn, Auerswald, Günter, Carcao, Manuel, Chalmers, Elizabeth, Chambost, Hervé, Kurnik, Karin, Liesner, Ri, Petrini, Pia, Platokouki, Helen, Altisent, Carmen, Oldenburg, Johannes, Nolan, Beatrice, Garrido, Rosario Pérez, Mancuso, M. Elisa, Rafowicz, Anne, Williams, Mike, Clausen, Niels, Middelburg, Rutger A., Ljung, Rolf, van der Bom, Johanna G.

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Haemophilia care in adolescents - compliance and lifestyle issues von PETRINI, P., SEUSER, A.

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Implications of coagulation factor VIII and IX pharmacokinetics in the prophylactic treatment of haemophilia von COLLINS, P. W., FISCHER, K., MORFINI, M., BLANCHETTE, V. S., BJÖRKMAN, S.

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Haemophilia A and B – evaluation of the Swedish prophylactic regimen by magnetic resonance imaging von Lundin, Björn, Baghaei, Fariba, Holmström, Margareta, Petrini, Pia, Müller, Gunilla, Månsson, Sven, Ljung, Rolf

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An MRI scale for assessment of haemophilic arthropathy from the International Prophylaxis Study Group von Lundin, B., Manco-Johnson, M. L., Ignas, D. M., Moineddin, R., Blanchette, V. S., Dunn, A. L., Gibikote, S. V., Keshava, S. N., Ljung, R., Manco-Johnson, M. J., Miller, S. F., Rivard, G. E., Doria, A. S.

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Intracranial haemorrhage in children and adolescents with severe haemophilia A or B – the impact of prophylactic treatment von Andersson, Nadine G., Auerswald, Günter, Barnes, Chris, Carcao, Manuel, Dunn, Amy L., Fijnvandraat, Karin, Hoffmann, Marianne, Kavakli, Kaan, Kenet, Gili, Kobelt, Rainer, Kurnik, Karin, Liesner, Ri, Mäkipernaa, Anne, Manco‐Johnson, Marilyn J., Mancuso, Maria E., Molinari, Angelo C., Nolan, Beatrice, Perez Garrido, Rosario, Petrini, Pia, Platokouki, Helen E., Shapiro, Amy D., Wu, Runhui, Ljung, Rolf

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Sports participation and physical activity in adult Dutch and Swedish patients with severe haemophilia: A comparison between intermediate‐ and high‐dose prophylaxis von Versloot, Olav, Berntorp, Erik, Petrini, Pia, Ljung, Rolf, Astermark, Jan, Holmström, Margareta, de Kleijn, Piet, Fischer, Kathelijn

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Factor VIII gene (F8) mutation and risk of inhibitor development in nonsevere hemophilia A von Eckhardt, Corien L., van Velzen, Alice S., Peters, Marjolein, Astermark, Jan, Brons, Paul P., Castaman, Giancarlo, Cnossen, Marjon H., Dors, Natasja, Escuriola-Ettingshausen, Carmen, Hamulyak, Karly, Hart, Daniel P., Hay, Charles R.M., Haya, Saturnino, van Heerde, Waander L., Hermans, Cedric, Holmström, Margareta, Jimenez-Yuste, Victor, Keenan, Russell D., Klamroth, Robert, Laros-van Gorkom, Britta A.P., Leebeek, Frank W.G., Liesner, Ri, Mäkipernaa, Anne, Male, Christoph, Mauser-Bunschoten, Evelien, Mazzucconi, Maria G., McRae, Simon, Meijer, Karina, Mitchell, Michael, Morfini, Massimo, Nijziel, Marten, Oldenburg, Johannes, Peerlinck, Kathelijne, Petrini, Pia, Platokouki, Helena, Reitter-Pfoertner, Sylvia E., Santagostino, Elena, Schinco, Piercarla, Smiers, Frans J., Siegmund, Berthold, Tagliaferri, Annarita, Yee, Thynn T., Kamphuisen, Pieter Willem, van der Bom, Johanna G., Fijnvandraat, Karin

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Sports participation and physical activity in adult Dutch and Swedish patients with severe haemophilia: A comparison between intermediate- and high-dose prophylaxis von Versloot, Olav, Berntorp, Erik, Petrini, Pia, Ljung, Rolf, Astermark, Jan, Holmström, Margareta, de Kleijn, Piet, Fischer, Kathelijn

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Perioperative haemostasis in children with haemophilia and inhibitors during central venous catheter surgery: The Karolinska model von Hägglöf, Helena, Magnusson, Maria, Petrini, Pia, Frisk, Tony, Ranta, Susanna

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A ROTEM method using APTT reagent and tissue factor as the clotting activators may better define bleeding heterogeneity in moderate or severe haemophilia A (part I: Study in plasma... von He, Shu, Eelde, Anna, Petrini, Pia, Wallen, Håkan, Gabrielsson, Lena, Svensson, Jan, Blombäck, Margareta, Holmström, Margareta

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Increased inhibitor incidence in severe haemophilia A since 1990 attributable to more low titre inhibitors von Berg, H. Marijke van den, Hashemi, S. Mojtaba, Fischer, Kathelijn, Petrini, Pia, Ljung, Rolf, Rafowicz, Anne, Carcao, Manuel, Auerswald, Günter, Kurnik, Karin, Kenet, Gili, Santagostino, Elena

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Long-term prophylaxis in von Willebrand disease von Berntorp, Erik, Petrini, Pia

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