C3-PRO: Connecting ResearchKit to the Health System Using i2b2 and FHIR von Pfiffner, Pascal B, Pinyol, Isaac, Natter, Marc D, Mandl, Kenneth D

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The new Childhood Arthritis and Rheumatology Research Alliance (CARRA) registry: design, rationale, and characteristics of patients enrolled in the first 12 months von Beukelman, Timothy, Kimura, Yukiko, Ilowite, Norman T, Mieszkalski, Kelly, Natter, Marc D, Burrell, Grendel, Best, Brian, Jones, Jason, Schanberg, Laura E

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Claims-Based Algorithms for Identifying Patients With Pulmonary Hypertension: A Comparison of Decision Rules and Machine-Learning Approaches von Ong, Mei-Sing, Klann, Jeffrey G., Lin, Kueiyu Joshua, Maron, Bradley A., Murphy, Shawn N., Natter, Marc D., Mandl, Kenneth D.

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A Computable Phenotype Improves Cohort Ascertainment in a Pediatric Pulmonary Hypertension Registry von Geva, Alon, MD, MPH, Gronsbell, Jessica L., BA, Cai, Tianxi, ScD, Cai, Tianrun, MD, Murphy, Shawn N., MD, PhD, Lyons, Jessica C., MS, Heinz, Michelle M., BS, Natter, Marc D., MD, Patibandla, Nandan, MS, Bickel, Jonathan, MD, MS, Mullen, Mary P., MD, PhD, Mandl, Kenneth D., MD, MPH

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Characterisation of paediatric pulmonary hypertensive vascular disease from the PPHNet Registry von Abman, Steven H, Mullen, Mary P, Sleeper, Lynn A, Austin, Eric D, Rosenzweig, Erika B, Kinsella, John P, Ivy, Dunbar, Hopper, Rachel K, Raj, J Usha, Fineman, Jeffrey, Keller, Roberta L, Bates, Angela, Krishnan, Usha S, Avitabile, Catherine M, Davidson, Alexander, Natter, Marc D, Mandl, Kenneth D

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Case 17-2022: A 17-Year-Old Boy with Chest Pain von Arya, Puneeta, Westra, Sjirk J., Benavidez, Oscar J., Natter, Marc D., Murali, Mandakolathur R.

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Racial and Ethnic Differences in Pediatric Pulmonary Hypertension: An Analysis of the Pediatric Pulmonary Hypertension Network Registry von Ong, Mei-Sing, Abman, Steve, Austin, Eric D., Feinstein, Jeffrey A., Hopper, Rachel K., Krishnan, Usha S., Mullen, Mary P., Natter, Marc D., Raj, J. Usha, Rosenzweig, Erika B., Mandl, Kenneth D.

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Learning a Comorbidity-Driven Taxonomy of Pediatric Pulmonary Hypertension von Ong, Mei-Sing, Mullen, Mary P., Austin, Eric D., Szolovits, Peter, Natter, Marc D., Geva, Alon, Cai, Tianxi, Kong, Sek Won, Mandl, Kenneth D.

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A federated EHR network data completeness tracking system von Estiri, Hossein, Klann, Jeffrey G, Weiler, Sarah R, Alema-Mensah, Ernest, Joseph Applegate, R, Lozinski, Galina, Patibandla, Nandan, Wei, Kun, Adams, William G, Natter, Marc D, Ofili, Elizabeth O, Ostasiewski, Brian, Quarshie, Alexander, Rosenthal, Gary E, Bernstam, Elmer V, Mandl, Kenneth D, Murphy, Shawn N

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An i2b2-based, generalizable, open source, self-scaling chronic disease registry von Natter, Marc D, Quan, Justin, Ortiz, David M, Bousvaros, Athos, Ilowite, Norman T, Inman, Christi J, Marsolo, Keith, McMurry, Andrew J, Sandborg, Christy I, Schanberg, Laura E, Wallace, Carol A, Warren, Robert W, Weber, Griffin M, Mandl, Kenneth D

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The Association of Black Cardiologists (ABC) Cardiovascular Implementation Study (CVIS): A Research Registry Integrating Social Determinants to Support Care for Underserved Patient... von Ofili, Elizabeth O, Schanberg, Laura E, Hutchinson, Barbara, Sogade, Felix, Fergus, Icilma, Duncan, Phillip, Hargrove, Joe, Artis, Andre, Onyekwere, Osita, Batchelor, Wayne, Williams, Marcus, Oduwole, Adefisayo, Onwuanyi, Anekwe, Ojutalayo, Folake, Cross, Jo Ann, Seto, Todd B, Okafor, Henry, Pemu, Priscilla, Immergluck, Lilly, Foreman, Marilyn, Mensah, Ernest Alema, Quarshie, Alexander, Mubasher, Mohamed, Baker, Almelida, Ngare, Alnida, Dent, Andrew, Malouhi, Mohamad, Tchounwou, Paul, Lee, Jae, Hayes, Traci, Abdelrahim, Muna, Sarpong, Daniel, Fernandez-Repollet, Emma, Sodeke, Stephen O, Hernandez, Adrian, Thomas, Kevin, Dennos, Anne, Smith, David, Gbadebo, David, Ajuluchikwu, Janet, Kong, B Waine, McCollough, Cassandra, Weiler, Sarah R, Natter, Marc D, Mandl, Kenneth D, Murphy, Shawn

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Supporting Multi-sourced Medication Information in i2b2 von Klann, Jeffrey G, Pfiffner, Pascal B, Natter, Marc D, Conner, Emily, Blazejewski, Paul, Murphy, Shawn N, Mandl, Kenneth D

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Case 17-2022: A 17-Year-Old Boy with Chest Pain von Taheri, Saeed, Natter, Marc D., Arya, Puneeta D., Murali, Mandakolathur R.

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Next-generation registries: fusion of data for care, and research von Mandl, Kenneth D, Edge, Stephen, Malone, Chad, Marsolo, Keith, Natter, Marc D

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Case 17-2022: A 17-Year-Old Boy with Chest Pain. Reply von Natter, Marc D, Arya, Puneeta D, Murali, Mandakolathur R

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The childhood arthritis & rheumatology research alliance network registry: demographics and characteristics of the initial 6-month cohort von Natter, Marc D, Winsor, Jane R, Fox, Kathleen A, Ilowite, Norman T, Mandl, Kenneth D, Mieszkalski, Kelly L, Sandborg, Christy I, Sundy, John S, Wallace, Carol A, Schanberg, Laura E

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C3-PRO: Connecting ResearchKit to the Health System Using i2b2 and FHIR von Pfiffner, Pascal B, Pinyol, Isaac, Natter, Marc D, Mandl, Kenneth D

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A167: Variations in Patterns of Care Across Pediatric Rheumatic Diseases in the Childhood Arthritis & Rheumatology Alliance Network Registry von Natter, Marc D., Ong, Mei‐Sing, Ilowite, Norman T., Mandl, Kenneth D., Mieszkalski, Kelly L., Sandborg, Christy I., Wallace, Carol, Schanberg, Laura E.

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An i2b2-based, generalizable, open source, self-scaling chronic disease registry von Natter, Marc D, Quan, Justin, Ortiz, David M, Bousvaros, Athos, Ilowite, Norman T, Inman, Christi J, Marsolo, Keith, McMurry, Andrew J, Sandborg, Christy I, Schanberg, Laura E, Wallace, Carol A, Warren, Robert W, Weber, Griffin M, Mandl, Kenneth D

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Association between pediatric psoriasis and the metabolic syndrome von Au, Shiu-chung, MD, Goldminz, Ari M., BA, Loo, Daniel S., MD, Dumont, Nicole, Levine, Danielle, MD, Volf, Eva, MD, Michelon, Melissa, MD, Wang, Andrew, MD, Kim, Noori, MD, Yaniv, Shimrat, BA, Lizzul, Paul F., MD, PhD, MBA, MPH, Kerensky, Todd, MD, Lopez-Benitez, Jorge M., MD, Natter, Marc, MD, Miller, Laurie, MD, Pelajo, Christina F., MD, MSc, Davis, Trevor, MD, Gottlieb, Alice B., MD, PhD

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