Long-term effects of glucocorticoids on function, quality of life, and survival in patients with Duchenne muscular dystrophy: a prospective cohort study von McDonald, Craig M, Henricson, Erik K, Abresch, Richard T, Duong, Tina, Joyce, Nanette C, Hu, Fengming, Clemens, Paula R, Hoffman, Eric P, Cnaan, Avital, Gordish-Dressman, Heather, Vishwanathan, Vijay, Chidambaranathan, S, Biggar, W. Douglas, McAdam, Laura C., Mah, Jean K., Tulinius, Mar, Cnaan, Avital, Morgenroth, Lauren P., Leshner, Robert, Tesi-Rocha, Carolina, Thangarajh, Mathula, Duong, Tina, Kornberg, Andrew, Ryan, Monique, Nevo, Yoram, Dubrovsky, Alberto, Clemens, Paula R., Abdel-Hamid, Hoda, Connolly, Anne M., Pestronk, Alan, Teasley, Jean, Bertorin, Tulio E., Webster, Richard, Kolski, Hanna, Kuntz, Nancy, Driscoll, Sherilyn, Bodensteiner, John B., Carlo, Jose, Gorni, Ksenija, Lotze, Timothy, Day, John W., Karachunski, Peter, Henricson, Erik K., Abresch, Richard T., Joyce, Nanette C., McDonald, Craig M.

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Rehabilitation interventions in Rett syndrome: a scoping review von Lim, Jan, Greenspoon, Dayna, Hunt, Anne, McAdam, Laura

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Cheer in Health Care Practice: What It Excludes and Why It Matters von Setchell, Jenny, Abrams, Thomas, McAdam, Laura C., Gibson, Barbara E.

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Glucocorticoid Treatment for the Prevention of Scoliosis in Children with Duchenne Muscular Dystrophy: Long-Term Follow-up von Lebel, David E, Corston, John A, McAdam, Laura C, Biggar, W Douglas, Alman, Benjamin A

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Enhancing human aspects of care with young people with muscular dystrophy: An evaluation of a participatory qualitative study with clinicians von Setchell, Jenny, Mosleh, Donya, McAdam, Laura, Thille, Patricia, Abrams, Thomas, McMillan, Hugh J, Mistry, Bhavnita, Gibson, Barbara E

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Understanding the experiences of lung volume recruitment among boys with Duchenne muscular dystrophy: A multicenter qualitative study von Katz, Sherri L., Blinder, Henrietta, Newhook, Dennis, BMUS, Leana Azerrad, Nicholls, Stuart, McMillan, Hugh J., Mah, Jean K., Campbell, Craig, McAdam, Laura C., Zielinski, David, Toupin‐April, Karine, Momoli, Franco, McKim, Douglas A.

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Enhancing the human dimensions of children’s neuromuscular care: piloting a methodology for fostering team reflexivity von Thille, Patricia, Gibson, Barbara E., Abrams, Thomas, McAdam, Laura C., Mistry, Bhavnita, Setchell, Jenny

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The Accuracy of an Ambulatory Level III Sleep Study Compared to a Level I Sleep Study for the Diagnosis of Sleep-Disordered Breathing in Children With Neuromuscular Disease von Fishman, Haley, Massicotte, Colin, Li, Rhonda, Zabih, Weeda, McAdam, Laura C, Al-Saleh, Suhail, Amin, Reshma

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Enablers and barriers of men with Duchenne muscular dystrophy transitioning from an adult clinic within a pediatric hospital von Lindsay, Sally, PhD, McAdam, Laura, MD, Mahendiran, Tania, BSc(Candidate)

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Twice-Weekly Outpatient Rehabilitation Intervention for Young Children With Spinal Muscular Atrophy Treated With Genetic-Based Therapies: Protocol for a Feasibility Study von Ippolito, Christina, Canthiya, Lathushikka, Floreani, Amanda, Luckhart, Kathleen, Hoffman, Andrea, McAdam, Laura

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Fat Embolism Syndrome following minor trauma in Duchenne muscular dystrophy von McAdam, Laura C, Rastogi, Anjali, Macleod, Kathleen, Douglas Biggar, W

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Evidence for ACTN3 as a genetic modifier of Duchenne muscular dystrophy von Hogarth, Marshall W., Houweling, Peter J., Thomas, Kristen C., Gordish-Dressman, Heather, Bello, Luca, Pegoraro, Elena, Hoffman, Eric P., Head, Stewart I., North, Kathryn N.

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“It’s all about the beaches”: Sargassum algae, tourism, and coastal transformations along the Mexican Caribbean von McAdam-Otto, Laura K

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Telling My Tale: Reflections on the Process of Visual Storytelling for Children and Youth Living With Cystic Fibrosis and Muscular Dystrophy in Canada von Moola, Fiona J., Moothathamby, Nivatha, McAdam, Laura, Solomon, Melinda, Varadi, Robert, Tullis, Diana Elizabeth, Reisman, Joe

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Perspectives on and Experiences With Bullying From Youth With Neuromuscular Conditions von Chatur, Nurin, Ippolito, Christina, McAdam, Laura

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Local ecological knowledge and perception of the causes, impacts and effects of Sargassum massive influxes: a binational approach von Rosellón-Druker, Judith, McAdam-Otto, Laura, Suca, Justin J., Seary, Rachel, Gaytán-Caballero, Adriana, Escobar-Briones, Elva, Hazen, Elliott L., Muller-Karger, Frank

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Sleep disordered breathing in infants identified through newborn screening with spinal muscular atrophy von Chiang, Jackie, Xiao, Lena, Nigro, Elisa, St-Laurent, Aaron, Weinstock, Lauren, Law, Eugenia, Janevski, Joanna, Kuyntjes, Sarah, Cithiravel, Nisha, Tran, Tuyen, Wolter, Nikolaus E., Gonorazky, Hernan, Amin, Reshma, Dowling, James J., McKinnon, Nicole, Johnstone, Julie, McAdam, Laura

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Cognitive and Neurobehavioral Profile in Boys With Duchenne Muscular Dystrophy von Banihani, Rudaina, Smile, Sharon, Yoon, Grace, Dupuis, Annie, Mosleh, Maureen, Snider, Andrea, McAdam, Laura

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Development of a New Self-Reporting Instrument Measuring Benefits and Side Effects of Corticosteroids in Duchenne Muscular Dystrophy: Report from a Pilot Study von Hendriksen, Ruben G.F., Lionarons, Judith M., Hendriksen, Jos G.M., Vles, Johan S.H., McAdam, Laura C., Biggar, W. Douglas

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Being There While Not Being There: Reflections on Multi-sited Ethnography and Field Access in the Context of Forced Migration von McAdam-Otto, Laura K, Nimfuhr, Sarah

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