Direct-to-Consumer Genetic Testing: Value and Risk von Majumder, Mary A, Guerrini, Christi J, McGuire, Amy L

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Citizen science, public policy von Guerrini, Christi J, Majumder, Mary A, Lewellyn, Meaganne J, McGuire, Amy L

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Beyond Our Borders? Public Resistance to Global Genomic Data Sharing von Majumder, Mary A, Cook-Deegan, Robert, McGuire, Amy L

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Do privacy and security regulations need a status update? Perspectives from an intergenerational survey von Pereira, Stacey, Robinson, Jill Oliver, Peoples, Hayley A, Gutierrez, Amanda M, Majumder, Mary A, McGuire, Amy L, Rothstein, Mark A

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Donors, authors, and owners: how is genomic citizen science addressing interests in research outputs? von Guerrini, Christi J, Lewellyn, Meaganne, Majumder, Mary A, Trejo, Meredith, Canfield, Isabel, McGuire, Amy L

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Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons von Deverka, Patricia A., Gilmore, Dierdre, Richmond, Jennifer, Smith, Zachary, Mangrum, Rikki, Koenig, Barbara A., Cook-Deegan, Robert, Villanueva, Angela G., Majumder, Mary A., McGuire, Amy L.

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Fresh takes on five health data sharing domains: Quality, privacy, equity, incentives, and sustainability von Guerrini, Christi J, Majumder, Mary A, Robinson, Jill O, Cook-Deegan, Robert, Blank, Matthew, Bollinger, Juli, Geary, Janis, Gutierrez, Amanda M, Shrikant, Maya, McGuire, Amy L

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Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium von Gutierrez, Amanda M, Robinson, Jill O, Outram, Simon M, Smith, Hadley S, Kraft, Stephanie A, Donohue, Katherine E, Biesecker, Barbara B, Brothers, Kyle B, Chen, Flavia, Hailu, Benyam, Hindorff, Lucia A, Hoban, Hannah, Hsu, Rebecca L, Knight, Sara J, Koenig, Barbara A, Lewis, Katie L, Lich, Kristen Hassmiller, O'Daniel, Julianne M, Okuyama, Sonia, Tomlinson, Gail E, Waltz, Margaret, Wilfond, Benjamin S, Ackerman, Sara L, Majumder, Mary A

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Large-scale genotype prediction from RNA sequence data necessitates a new ethical and policy framework von Majumder, Mary A., Leek, Jeffrey T., Hansen, Kasper D., Razi, Afrooz, McGuire, Amy L.

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Translational Research and Health Equity: Gene Therapies for Sickle Cell Disease as a Case Study von Majumder, Mary A., Fasipe, Titilope

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An Ethical Framework for Disclosing the Training Status and Roles of Resident-Level Surgeons to Patients von Le, Nhon T., Brandt, Mary L., Majumder, Mary A.

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Ethical Analysis as a Tool for Addressing Treatment Controversies: Radiotherapy Timing in Children With Orbital Rhabdomyosarcoma as a Case Example von Farnia, Benjamin, BA, Majumder, Mary A., JD, PhD, Paulino, Arnold C., MD

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Patient-to-patient encounters: Benefits and challenges von Bruce, Courtenay R., JD, MA, Majumder, Mary A., JD, PhD, Loebe, Matthias, MD, PhD

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Data Sharing in the Context of Health-Related Citizen Science von Majumder, Mary A., McGuire, Amy L.

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Myriad take two: Can genomic databases remain secret? von Guerrini, Christi J., McGuire, Amy L., Majumder, Mary A.

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Legal Barriers to Adolescent Participation in Research About HIV and Other Sexually Transmitted Infections von Moore, Quianta L, Paul, Mary E, McGuire, Amy L, Majumder, Mary A

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Introduction: Sharing Data in a Medical Information Commons von Cook-Deegan, Robert, Majumder, Mary A., McGuire, Amy L.

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Sharing data under the 21st Century Cures Act von Majumder, Mary A, Guerrini, Christi J, Bollinger, Juli M, Cook-Deegan, Robert, McGuire, Amy L

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Genomic sequencing research in pediatric cancer care: Decision making, attitudes, and perceived utility among adolescents and young adults and their parents von Gutierrez, Amanda M., Robinson, Jill O., Smith, Hadley S., Desrosiers-Battu, Lauren R., Scollon, Sarah R., Canfield, Isabel, Hsu, Rebecca L., Schneider, Nicole M., Parsons, D. Williams, Plon, Sharon E., Allen-Rhoades, Wendy, Majumder, Mary A., Malek, Janet, McGuire, Amy L.

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Benefits of sharing neurophysiology data from the BRAIN Initiative Research Opportunities in Humans Consortium von Rahimzadeh, Vasiliki, Jones, Kathryn Maxson, Majumder, Mary A, Kahana, Michael J, Rutishauser, Ueli, Williams, Ziv M, Cash, Sydney S, Paulk, Angelique C, Zheng, Jie, Beauchamp, Michael S, Collinger, Jennifer L, Pouratian, Nader, McGuire, Amy L, Sheth, Sameer A

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