Sex-based differences in the manifestations and complications of sickle cell disease: Report from the Sickle Cell Disease Implementation Consortium von Masese, Rita V, Bulgin, Dominique, Knisely, Mitchell R, Preiss, Liliana, Stevenson, Eleanor, Hankins, Jane S, Treadwell, Marsha J, King, Allison A, Gordeuk, Victor R, Kanter, Julie, Gibson, Robert, Glassberg, Jeffrey A, Tanabe, Paula, Shah, Nirmish

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Mental health and psychological resilience in sickle cell disease von Treadwell, Marsha J

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Sensitivity of alternative measures of functioning and wellbeing for adults with sickle cell disease: comparison of PROMIS® to ASCQ-Me von Keller, San, Yang, Manshu, Treadwell, Marsha J, Hassell, Kathryn L

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Looking ahead: ethical and social challenges of somatic gene therapy for sickle cell disease in Africa von Munung, Nchangwi Syntia, Nnodu, Obiageli E., Moru, Patrick Ohiani, Kalu, Akpaka A., Impouma, Benido, Treadwell, Marsha J., Wonkam, Ambroise

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Adult Sickle Cell Quality-of-Life Measurement Information System (ASCQ-Me): Conceptual Model Based on Review of the Literature and Formative Research von Treadwell, Marsha J, Hassell, Kathryn, Levine, Roger, Keller, San

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Perceptions and preferences for genetic testing for sickle cell disease or trait: a qualitative study in Cameroon, Ghana and Tanzania von Munung, Nchangwi Syntia, Kamga, Karen Kengne, Treadwell, Marsha J, Dennis-Antwi, Jemima, Anie, Kofi A, Bukini, Daima, Makani, Julie, Wonkam, Ambroise

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Perspectives of individuals with sickle cell disease on barriers to care von Phillips, Shannon, Chen, Yumei, Masese, Rita, Noisette, Laurence, Jordan, Kasey, Jacobs, Sara, Hsu, Lewis L, Melvin, Cathy L, Treadwell, Marsha, Shah, Nirmish, Tanabe, Paula, Kanter, Julie

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Patient reports of health outcome for adults living with sickle cell disease: development and testing of the ASCQ-Me item banks von Keller, San D, Yang, Manshu, Treadwell, Marsha J, Werner, Ellen M, Hassell, Kathryn L

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Barriers to hydroxyurea use from the perspectives of providers, individuals with sickle cell disease, and families: Report from a U.S. regional collaborative von Treadwell, Marsha J., Du, Lisa, Bhasin, Neha, Marsh, Anne M., Wun, Theodore, Bender, M. A., Wong, Trisha E., Crook, Nicole, Chung, Jong H., Norman, Shannon, Camilo, Nicolas, Cavazos, Judith, Nugent, Diane

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An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model von Treadwell, Marsha J., Mushiana, Swapandeep, Badawy, Sherif M., Preiss, Liliana, King, Allison A., Kroner, Barbara, Chen, Yumei, Glassberg, Jeffrey, Gordeuk, Victor, Shah, Nirmish, Snyder, Angela, Wun, Theodore

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The sickle cell disease implementation consortium: Translating evidence‐based guidelines into practice for sickle cell disease von DiMartino, Lisa D., Baumann, Ana A., Hsu, Lewis L., Kanter, Julie, Gordeuk, Victor R., Glassberg, Jeffrey, Treadwell, Marsha J., Melvin, Cathy L., Telfair, Joseph, Klesges, Lisa M., King, Allison, Wun, Ted, Shah, Nirmish, Gibson, Robert W., Hankins, Jane S.

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Quality of care in sickle cell disease: Cross-sectional study and development of a measure for adults reporting on ambulatory and emergency department care von Evensen, Christian T., Treadwell, Marsha J., Keller, San, Levine, Roger, Hassell, Kathryn L., Werner, Ellen M., Smith, Wally R.

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CureSCi Metadata Catalog-Making sickle cell studies findable von Pan, Huaqin, Ives, Cataia, Mandal, Meisha, Qin, Ying, Hendershot, Tabitha, Popovic, Jen, Brambilla, Donald, Stratford, Jeran, Treadwell, Marsha, Wu, Xin, Kroner, Barbara

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Emergency department utilization by Californians with sickle cell disease, 2005–2014 von Paulukonis, Susan T., Feuchtbaum, Lisa B., Coates, Thomas D., Neumayr, Lynne D., Treadwell, Marsha J., Vichinsky, Elliott P., Hulihan, Mary M.

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Transition from pediatric to adult care in sickle cell disease: Establishing evidence‐based practice and directions for research von Treadwell, Marsha, Telfair, Joseph, Gibson, Robert W., Johnson, Shirley, Osunkwo, Ifeyinwa

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Impact of Medicaid expansion on access and healthcare among individuals with sickle cell disease von Kayle, Mariam, Valle, Jhaqueline, Paulukonis, Susan, Holl, Jane L., Tanabe, Paula, French, Dustin D., Garg, Ravi, Liem, Robert I., Badawy, Sherif M., Treadwell, Marsha J.

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Identifying barriers to evidence-based care for sickle cell disease: results from the Sickle Cell Disease Implementation Consortium cross-sectional survey of healthcare providers i... von Smeltzer, Matthew P, Howell, Kristen E, Treadwell, Marsha, Preiss, Liliana, King, Allison A, Glassberg, Jeffrey A, Tanabe, Paula, Badawy, Sherif M, DiMartino, Lisa, Gibson, Robert, Kanter, Julie, Klesges, Lisa M, Hankins, Jane S

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Long-Term Pulmonary Function and Quality of Life in Children After Acute Respiratory Distress Syndrome: A Feasibility Investigation von Ward, Shan L, Turpin, Autumn, Spicer, Aaron C, Treadwell, Marsha J, Church, Gwynne D, Flori, Heidi R

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Barriers to Pediatric Sickle Cell Disease Guideline Recommendations von Cabana, Michael D., Kanter, Julie, Marsh, Anne M., Treadwell, Marsha J., Rowland, Michael, Stemmler, Peggy, Bardach, Naomi S.

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Assent, parental consent and reconsent for health research in Africa: thematic analysis of national guidelines and lessons from the SickleInAfrica registry von Munung, Nchangwi Syntia, Nembaware, Victoria, Osei-Tutu, Lawrence, Treadwell, Marsha, Chide, Okocha Emmanuel, Bukini, Daima, Tutuba, Hilda, Wonkam, Ambroise

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