Physical activity, respiratory physiotherapy practices, and nutrition among people with primary ciliary dyskinesia in Switzerland – a cross-sectional survey von Lam, Yin Ting, Pedersen, Eva S. L., Schreck, Leonie D., Hüsler, Leonie, Koppe, Helena, Belle, Fabiën N., Clarenbach, Christian, Latzin, Philipp, Kuehni, Claudia E., Goutaki, Myrofora

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SARS-CoV-2 variants of concern in children and adolescents with COVID-19: a systematic review von Wiedenmann, Margarethe, Ipekci, Aziz Mert, Araujo-Chaveron, Lucia, Prajapati, Nirmala, Lam, Yin Ting, Alam, Muhammad Irfanul, L'Huillier, Arnaud G, Zhelyazkov, Ivan, Heron, Leonie, Low, Nicola, Goutaki, Myrofora

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Ear and upper airway clinical outcome measures for use in primary ciliary dyskinesia research: a scoping review von Alexandru, Mihaela, Veil, Raphaël, Rubbo, Bruna, Goutaki, Myrofora, Kim, Sookyung, Lam, Yin Ting, Nevoux, Jérôme, Lucas, Jane S, Papon, Jean-François

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Study protocol: the ear–nose–throat (ENT) prospective international cohort of patients with primary ciliary dyskinesia (EPIC-PCD) von Goutaki, Myrofora, Lam, Yin Ting, Alexandru, Mihaela, Anagiotos, Andreas, Armengot, Miguel, Bequignon, Emilie, Boon, Mieke, Burgess, Andrea, Coste, Andre, Emiralioglu, Nagehan, Erdem, Ela, Haarman, Eric G, Harris, Amanda, Hool, Sara-Lynn, Karadag, Bulent, Kim, Sookyung, Latzin, Philipp, Lorent, Natalie, Ozcelik, Ugur, Reula, Ana, Roehmel, Jobst, van Gogh, Christine, Yiallouros, Panayiotis, Zappe, Soeren Marian, Papon, Jean Francois

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Priorities and barriers for research related to primary ciliary dyskinesia von Goutaki, Myrofora, Lam, Yin Ting, Rubbo, Bruna, Chalmers, James D, Kouis, Panayiotis, Marsh, Gemma, Papon, Jean-François, Raidt, Johanna, Robinson, Phil, Behan, Laura, Lucas, Jane S

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Respiratory symptoms of Swiss people with primary ciliary dyskinesia von Goutaki, Myrofora, Hüsler, Leonie, Lam, Yin Ting, Koppe, Helena M, Jung, Andreas, Lazor, Romain, Müller, Loretta, Pedersen, Eva S L, Kuehni, Claudia E

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Lack of Correlation of Sinonasal and Otologic Reported Symptoms With Objective Measurements Among Patients With Primary Ciliary Dyskinesia: An International Study von Lam, Yin Ting, Papon, Jean-François, Alexandru, Mihaela, Anagiotos, Andreas, Armengot, Miguel, Boon, Mieke, Burgess, Andrea, Caversaccio, Nathalie, Crowley, Suzanne, Dheyauldeen, Sinan Ahmed D, Emiralioglu, Nagehan, Erdem, Ela, Gogh, Christine van, Gokdemir, Yasemin, Gunaydın, Onder, Haarman, Eric G, Harris, Amanda, Hayn, Isolde, Ismail-Koch, Hasnaa, Karadag, Bulent, Kempeneers, Céline, Kim, Sookyung, Lorent, Natalie, Ozcelik, Ugur, Pioch, Charlotte, Poirrier, Anne-Lise Ml, Reula, Ana, Roehmel, Jobst, Yiallouros, Panayiotis, Goutaki, Myrofora

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Sinonasal disease among patients with primary ciliary dyskinesia: an international study von Lam, Yin Ting, Papon, Jean-François, Alexandru, Mihaela, Anagiotos, Andreas, Armengot, Miguel, Boon, Mieke, Burgess, Andrea, Crowley, Suzanne, Dheyauldeen, Sinan Ahmed D, Emiralioglu, Nagehan, Erdem Eralp, Ela, van Gogh, Christine, Gokdemir, Yasemin, Gunaydın, Onder, Haarman, Eric G, Harris, Amanda, Hayn, Isolde, Ismail-Koch, Hasnaa, Karadag, Bülent, Kempeneers, Céline, Kim, Sookyung, Latzin, Philipp, Lorent, Natalie, Ozcelik, Ugur, Pioch, Charlotte, Poirrier, Anne-Lise M L, Reula, Ana, Roehmel, Jobst, Yiallouros, Panayiotis, Goutaki, Myrofora

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COVID-PCD: a participatory research study on the impact of COVID-19 in people with primary ciliary dyskinesia von Pedersen, Eva S L, Collaud, Eugénie N R, Mozun, Rebeca, Ardura-Garcia, Cristina, Lam, Yin Ting, Harris, Amanda, Lucas, Jane S, Copeland, Fiona, Manion, Michele, Rindlisbacher, Bernhard, Silberschmidt, Hansruedi, Goutaki, Myrofora, Kuehni, Claudia E

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COVID-19 Vaccinations: Perceptions and Behaviours in People with Primary Ciliary Dyskinesia von Pedersen, Eva S L, Mallet, Maria Christina, Lam, Yin Ting, Bellu, Sara, Cizeau, Isabelle, Copeland, Fiona, Fernandez, Trini Lopez, Manion, Michele, Harris, Amanda L, Lucas, Jane S, Santamaria, Francesca, Goutaki, Myrofora, Kuehni, Claudia E, Covid-Pcd Patient Advisory Group

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ERS International Congress 2021: highlights from the Paediatric Assembly von Ardura-Garcia, Cristina, Abellan, Alicia, Cuevas-Ocaña, Sara, Freitag, Nadine, Lam, Yin Ting, Makrinioti, Heidi, Slaats, Monique, Storti, Matteo, Williams, Emma E, Dassios, Theodore, Duijts, Liesbeth, Ersu, Refika H, Fustik, Stojka, Morty, Rory E, Proesmans, Marijke, Schramm, Dirk, Saglani, Sejal, Moeller, Alexander, Pijnenburg, Marielle W

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The BEAT-PCD (Better Experimental Approaches to Treat Primary Ciliary Dyskinesia) Clinical Research Collaboration von Goutaki, Myrofora, Crowley, Suzanne, Dehlink, Eleonora, Gaupmann, René, Horton, Katie L, Kouis, Panayiotis, Lam, Yin Ting, Loges, Niki T, Lucas, Jane S, Roehmel, Jobst F, Shoemark, Amelia

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Physical activity, respiratory physiotherapy practices, and nutrition among people with primary ciliary dyskinesia in Switzerland – a cross-sectional survey von Lam, Yin Ting, Pedersen, Eva S L, Schreck, Leonie Daria, Hüsler, Leonie, Koppe, Helena, Belle, Fabiën N, Clarenbach, Christian, Latzin, Philipp, Kuehni, Claudia E, Goutaki, Myrofora

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Characteristics of Otologic Disease Among Patients With Primary Ciliary Dyskinesia von Goutaki, Myrofora, Lam, Yin Ting, Alexandru, Mihaela, Anagiotos, Andreas, Armengot, Miguel, Boon, Mieke, Burgess, Andrea, Caversaccio, Nathalie, Crowley, Suzanne, Dheyauldeen, Sinan Ahmed D, Emiralioglu, Nagehan, Erdem, Ela, van Gogh, Christine, Gunaydin, Onder, Haarman, Eric G, Harris, Amanda, Hayn, Isolde, Ismail-Koch, Hasnaa, Karadag, Bulent, Kempeneers, Celine, Kim, Sookyung, Lorent, Natalie, Ozcelik, Ugur, Pioch, Charlotte, Poirrier, Anne-Lise M.L, Reula, Ana, Roehmel, Jobst, Yiallouros, Panayiotis, Yumusakhuylu, Ali Cemal, Papon, Jean-Francois

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Definition of sinonasal and otologic exacerbation in patients with primary ciliary dyskinesia - an expert consensus von Goutaki, Myrofora, Lam, Yin Ting, Anagiotos, Andreas, Armengot, Miguel, Burgess, Andrea, Campbell, Raewyn, Carlier, Mathilde, Caversaccio, Nathalie, Chadha, Neil K., Demir, Berat, Dheyauldeen, Sinan Ahmed D., Gunaydin, Onder, Harris, Amanda, Hayn, Isolde, Inal-Ince, Deniz, Levi, Eric, Fernandez, Trini Lopez, Lucas, Jane S., Maitre, Bernard, Poirrier, Anne-Lise ML, Schofield, Lynne, Takeuchi, Kazuhiko, van Gogh, Christine, Wolter, Nikolaus E., Papon, Jean-François

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Respiratory symptoms of Swiss people with primary ciliary dyskinesia von Goutaki, Myrofora, Hüsler, Leonie, Lam, Yin Ting, Koppe, Helena M, Jung, Andreas, Lazor, Romain, Müller, Loretta, Swiss PCD Research Group, Pedersen, Eva S L, Kuehni, Claudia E

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Study protocol: the ear-nose-throat (ENT) prospective international cohort of patients with primary ciliary dyskinesia (EPIC-PCD) von Goutaki, Myrofora, Lam, Yin Ting, Alexandru, Mihaela, Anagiotos, Andreas, Armengot, Miguel, Bequignon, Emilie, Boon, Mieke, Burgess, Andrea, Coste, Andre, Emiralioglu, Nagehan, Erdem, Ela, Haarman, Eric G, Harris, Amanda, Hool, Sara-Lynn, Karadag, Bulent, Kim, Sookyung, Latzin, Philipp, Lorent, Natalie, Ozcelik, Ugur, Reula, Ana, Roehmel, Jobst, van Gogh, Christine, Yiallouros, Panayiotis, Zappe, Soeren Marian, Papon, Jean Francois

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Lack of Correlation of Sinonasal and Otologic Reported Symptoms With Objective Measurements Among Patients With Primary Ciliary Dyskinesia: An International Study von Lam, Yin Ting, Papon, Jean-Francois, Alexandru, Mihaela, Anagiotos, Andreas, Armengot, Miguel, Boon, Mieke, Burgess, Andrea, Caversaccio, Nathalie, Crowley, Suzanne, Dheyauldeen, Sinan Ahmed D, Emiralioglu, Nagehan, Erdem, Ela, van Gogh, Christine, Gokdemir, Yasemin, Gunaydin, Onder, Haarman, Eric G, Harris, Amanda, Hayn, Isolde, Ismail-Koch, Hasnaa, Karadag, Bulent, Kempeneers, Celine, Kim, Sookyung, Lorent, Natalie, Ozcelik, Ugur, Pioch, Charlotte, Poirrier, Anne-Lise M.L, Reula, Ana, Roehmel, Jobst, Yiallouros, Panayiotis, Goutaki, Myrofora

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Association between upper and lower respiratory disease among patients with primary ciliary dyskinesia: an international study von Lam, Yin Ting, Papon, Jean-Francois, Alexandru, Mihaela, Anagiotos, Andreas, Armengot, Miguel, Boon, Mieke, Burgess, Andrea, Calmes, Doriane, Crowley, Suzanne, Dheyauldeen, Sinan Ahmed D, Emiralioglu, Nagehan, Eralp, Ela Erdem, van Gogh, Christine, Gokdemir, Yasemin, Haarman, Eric G, Harris, Amanda, Hayn, Isolde, Ismail-Koch, Hasnaa, Karadag, Bulent, Kempeneers, Celine, Kieninger, Elisabeth, Kim, Sookyung, Lorent, Natalie, Ozcelik, Ugur, Pioch, Charlotte, Raidt, Johanna, Reula, Ana, Roehmel, Jobst, Kennelly, Synne Sperstad, Yiallouros, Panayiotis, Goutaki, Myrofora

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Association between upper and lower respiratory disease among patients with primary ciliary dyskinesia: an international study von Lam, Yin Ting, Papon, Jean-François, Alexandru, Mihaela, Anagiotos, Andreas, Armengot, Miguel, Boon, Mieke, Burgess, Andrea, Calmes, Doriane, Crowley, Suzanne, Dheyauldeen, Sinan Ahmed D, Emiralioglu, Nagehan, Erdem Eralp, Ela, van Gogh, Christine, Gokdemir, Yasemin, Haarman, Eric G, Harris, Amanda, Hayn, Isolde, Ismail-Koch, Hasnaa, Karadag, Bülent, Kempeneers, Céline, Kieninger, Elisabeth, Kim, Sookyung, Lorent, Natalie, Ozcelik, Ugur, Pioch, Charlotte, Raidt, Johanna, Reula, Ana, Roehmel, Jobst, Sperstad Kennelly, Synne, Yiallouros, Panayiotis, Goutaki, Myrofora

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