Actions and Uncertainty: How Prenatally Diagnosed Variants of Uncertain Significance Become Actionable von Werner‐Lin, Allison, Mccoyd, Judith L. M., Bernhardt, Barbara A.

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“They Can't Find Anything Wrong with Him, Yet”: Mothers’ experiences of parenting an infant with a prenatally diagnosed copy number variant (CNV) von Werner‐Lin, Allison, Walser, Sarah, Barg, Frances K., Bernhardt, Barbara A.

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How do young people with a hereditary cancer predisposition syndrome understand and experience cancer survivorship? “With Li‐Fraumeni syndrome, it’s just an intermission” von Werner‐Lin, Allison, Forbes Shepherd, Rowan, Rising, Camella J., Thompson, Ashley S., Huelsnitz, Chloe, Wilsnack, Catherine, Boyd, Patrick, Sleight, Alix G., Hutson, Sadie, Khincha, Payal P.

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Gratitude, protective buffering, and cognitive dissonance: How families respond to pediatric whole exome sequencing in the absence of actionable results von Werner‐Lin, Allison, Zaspel, Lori, Carlson, Mae, Mueller, Rebecca, Walser, Sarah A., Desai, Ria, Bernhardt, Barbara A.

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Family Health Leaders: Lessons on Living with Li‐Fraumeni Syndrome across Generations von Pantaleao, Ashley, Young, Jennifer L., Epstein, Norman B., Carlson, Mae, Bremer, Renée C., Khincha, Payal P., Peters, June A., Greene, Mark H., Roy, Kevin, Achatz, Maria Isabel, Savage, Sharon A., Werner‐Lin, Allison

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Health professionals’ practice for young people with, or at risk of, Li–Fraumeni syndrome: An Australasian survey von Forbes Shepherd, Rowan, Keogh, Louise A., Werner‐Lin, Allison, Delatycki, Martin B., Forrest, Laura E.

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Talking with Children About Adult-Onset Hereditary Cancer Risk: A Developmental Approach for Parents von Werner-Lin, Allison, Merrill, Shana L., Brandt, Amanda C.

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In their own words: treating very young BRCA1/2 mutation-positive women with care and caution von Hoskins, Lindsey M, Werner-Lin, Allison, Greene, Mark H

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Waiting and “weighted down”: the challenge of anticipatory loss for individuals and families with Li-Fraumeni Syndrome von Werner-Lin, Allison, Young, Jennifer L., Wilsnack, Catherine, Merrill, Shana L., Groner, Victoria, Greene, Mark H., Khincha, Payal P.

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Expert Knowledge Influences Decision-Making for Couples Receiving Positive Prenatal Chromosomal Microarray Testing Results von Rubel, M. A., Werner-Lin, A., Barg, F. K., Bernhardt, B. A.

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“Something Extra on Chromosome 5”: Parents’ Understanding of Positive Prenatal Chromosomal Microarray Analysis (CMA) Results von Walser, Sarah A., Werner-Lin, Allison, Russell, Amita, Wapner, Ronald J., Bernhardt, Barbara A.

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Incorporating information regarding preimplantation genetic diagnosis into discussions concerning testing and risk management for BRCA1/2 mutations von Hurley, Karen, Rubin, Lisa R., Werner‐Lin, Allison, Sagi, Michal, Kemel, Yelena, Stern, Rikki, Phillips, Aliza, Cholst, Ina, Kauff, Noah, Offit, Kenneth

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Balancing Genetics (Science) and Counseling (Art) in Prenatal Chromosomal Microarray Testing von Werner-Lin, Allison, McCoyd, Judith L. M., Bernhardt, Barbara A.

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"Crying in the Wilderness"-The Use of Web-Based Support in Telomere Biology Disorders: Thematic Analysis von Pearce, Emily Eidenier, Majid, Alina, Brown, Toniya, Shepherd, Rowan Forbes, Rising, Camella, Wilsnack, Catherine, Thompson, Ashley S, Gilkey, Melissa B, Ribisl, Kurt M, Lazard, Allison J, Han, Paul Kj, Werner-Lin, Allison, Hutson, Sadie P, Savage, Sharon A

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A Survey of Genetic Counselors About the Needs of 18–25 Year Olds from Families with Hereditary Breast and Ovarian Cancer Syndrome von Werner-Lin, Allison, Ratner, Rachel, Hoskins, Lindsey M., Lieber, Caroline

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Living with rare genetic disease during the COVID-19 pandemic: A qualitative study of adolescents and young adults with Li-Fraumeni syndrome von Werner-Lin, Allison, Khincha, Payal P., Thompson, Ashley S., Rising, Camella, Sleight, Alix, Wilsnack, Catherine, Boyd, Patrick, Feldman, Alexandra, Shepherd, Rowan Forbes, Savage, Sharon A.

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Danger Zones: Risk Perceptions of Young Women From Families With Hereditary Breast and Ovarian Cancer von WERNER-LIN, ALLISON V.

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A “rotating menu” of medical uncertainty for families affected by telomere biology disorders: A qualitative interview study von Pearce, Emily E., Majid, Alina, Brown, Toniya, Wilsnack, Catherine, Rising, Camella, Thompson, Ashley S., Forbes Shepherd, Rowan, Niknafs, Arman, Werner-Lin, Allison, Gilkey, Melissa B., Ribisl, Kurt M., Hutson, Sadie P., Han, Paul K.J., Savage, Sharon A.

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A Multi-Case Report of the Pathways To and Through Genetic Testing and Cancer Risk Management for BRCA Mutation-Positive Women Aged 18–25 von Hoskins, Lindsey M., Werner-Lin, Allison

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Benefits and burdens of risk management for young people with inherited cancer: A focus on Li-Fraumeni syndrome von bes Shepherd, Rowan, Keogh, Louise A, Werner-Lin, Allison, Delatycki, Martin B, rest, Laura E

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