SP0195 Measurement Considerations in Cross-National Studies: Translation and Assessment of Metric Equivalencies von Kwakkenbos, L.

Volltext

Validity and reliability of the Swedish version of the Self-Efficacy for Managing Chronic Disease scale for individuals with systemic sclerosis von Mattsson, M., Sandqvist, G., Hesselstrand, R., Olsson, D., Kwakkenbos, L., Nordin, A., Boström, C.

Volltext

Development of a new patient‐reported outcome measure to assess activities and participation in people with systemic sclerosis: the Cochin 17‐item Scleroderma Functional scale von Daste, C., Abdoul, H., Foissac, F., Papelard, A., Alami, S., Kwakkenbos, L., Carrier, M.‐E., Lefèvre‐Colau, M.‐M., Thombs, B.D., Poiraudeau, S., Rannou, F., Mouthon, L., Nguyen, C.

Volltext

OP0224-HPR Identifying Clinically Significant Fatigue in Rheumatic Diseases: A Case-Definition Approach von Kwakkenbos, L., Minton, O., Stone, P., Alexander, S., Baron, M., Hudson, M., Thombs, B.

Volltext

SAT0465 Construct Validity of the Promis-29 in Systemic Sclerosis: Preliminary Results from the Scleroderma Patient-Centered Intervention Network (Spin) Cohort von Kwakkenbos, L., Thombs, B.D., Bartlett, S., Hudson, M., Mouthon, L., Malcarne, V., Sauvé, M., Khanna, D.

Volltext

SAT0641-HPR Three-Year Trajectories of Disability and Fatigue in Systemic Sclerosis: A Cohort Study von Willems, L., Kwakkenbos, L., Vonk, M.C., van den Hoogen, F.H., Vliet Vlieland, T.P., van den Ende, C.H.

Volltext

THU0488-HPR Health care utilization in patients with systemic sclerosis von Willems, L., Kwakkenbos, L., Bode, C., van den Hoogen, F.H., van den Ende, E.H.

Volltext

Systematic review of body image measures von Kling, Johanna, Kwakkenbos, Linda, Diedrichs, Phillippa C., Rumsey, Nichola, Frisén, Ann, Brandão, Maria Piedade, Silva, Anabela G., Dooley, Barbara, Rodgers, Rachel F., Fitzgerald, Amanda

Volltext

THU0593 Frequency and Impact of Disease Symptoms Experienced by Patients with Systemic Sclerosis: A Comparison among Five European Countries von Willems, L. M., Kwakkenbos, L., Leite, C., Thombs, B. D., van den Hoogen, F. H., Maia, A., van den Ende, C. H.

Volltext

Use and perceptions of nutrition information resources in systemic sclerosis: a Scleroderma Patient-centred Intervention Network (SPIN) cohort study von Østbø, Nora, Yakes Jimenez, Elizabeth, Carrier, Marie-Eve, Kwakkenbos, Linda, Thombs, Brett

Volltext

Mental health symptoms in scleroderma during COVID-19: a Scleroderma Patient-centred Intervention Network (SPIN) cohort longitudinal study von Henry, Richard S, Kwakkenbos, Linda, Carrier, Marie-Eve, Patten, Scott, Bartlett, Susan J, Mouthon, Luc, Varga, John, Benedetti, Andrea, Thombs, Brett D

Volltext

Effectiveness of Nonpharmacologic Interventions in Systemic Sclerosis: A Systematic Review von Willems, Linda M., Vriezekolk, Johanna E., Schouffoer, Anne A., Poole, Janet L., Stamm, Tanja A., Boström, Carina, Kwakkenbos, Linda, Vliet Vlieland, Theodora P. M., van den Ende, Cornelia H. M.

Volltext

Reporting transparency and completeness in trials: Paper 3 - trials conducted using administrative databases do not adequately report elements related to use of databases von Imran, M, McCord, K, McCall, SJ, Kwakkenbos, L, Sampson, M, Frobert, O, Gale, C, Hemkens, LG, Langan, SM, Moher, D, Relton, C, Zwarenstein, M, Juszczak, E, Thombs BD

Volltext

Reporting transparency and completeness in Trials: Paper 2 - reporting of randomised trials using registries was often inadequate and hindered the interpretation of results von Mc Cord, K, Imran, M, Rice, DB, McCall, SJ, Kwakkenbos, L, Sampson, M, Frobert, O, Gale, C, Landgan, SM, Moher, D, Relton, C, Zwarenstein, M, Juszczak, E, Thombs, BD, Hemkens, LG, On behalf of theCONSORT Extension for Trials Conducted Using Cohorts and Routinely Collected Data Group

Volltext

Nationwide comprehensive gastro-intestinal cancer cohorts: the 3P initiative von Coebergh van den Braak, R. R. J., van Rijssen, L. B., van Kleef, J. J., Vink, G. R., Berbee, M., van Berge Henegouwen, M. I., Bloemendal, H. J., Bruno, M. J., Burgmans, M. C., Busch, O. R. C., Coene, P. P. L. O., Coupé, V. M. H., Dekker, J. W. T., van Eijck, C. H. J., Elferink, M. A. G., Erdkamp, F. L. G., van Grevenstein, W. M. U., de Groot, J. W. B., van Grieken, N. C. T., de Hingh, I. H. J. T., Hulshof, M. C. C. M., Ijzermans, J. N. M., Kwakkenbos, L., Lemmens, V. E. P. P., Los, M., Meijer, G. A., Molenaar, I. Q., Nieuwenhuijzen, G. A. P., de Noo, M. E., van de Poll-Franse, L. V., Punt, C. J. A., Rietbroek, R. C., Roeloffzen, W. W. H., Rozema, T., Ruurda, J. P., van Sandick, J. W., Schiphorst, A. H. W., Schipper, H., Siersema, P. D., Slingerland, M., Sommeijer, D. W., Spaander, M. C. W., Sprangers, M. A. G., Stockmann, H. B. A. C., Strijker, M., van Tienhoven, G., Timmermans, L. M., Tjin-a-Ton, M. L. R., van der Velden, A. M. T., Verhaar, M. J., Verkooijen, H. M., Vles, W. J., de Vos-Geelen, J. M. P. G. M., Wilmink, J. W., Zimmerman, D. D. E., van Oijen, M. G. H., Koopman, M., Besselink, M. G. H., van Laarhoven, H. W. M.

Volltext

The association of sociodemographic and disease variables with hand function: a Scleroderma Patient-centered Intervention Network cohort study von Kwakkenbos, Linda, Sanchez, Tatiana A, Turner, Kimberly A, Mouthon, Luc, Carrier, Marie-Eve, Hudson, Marie, van den Ende, Cornelia H M, Schouffoer, Anne A, Welling, Joep J K C, Sauvé, Maureen, Thombs, Brett D

Volltext

Effects of non-pharmacological and non-surgical interventions on health outcomes in systemic sclerosis: protocol for a living systematic review von Discepola, Marie-Nicole, Carboni-Jiménez, Andrea, Kwakkenbos, Linda, Henry, Richard S, Boruff, Jill, Krishnan, Ankur, Boström, Carina, Culos-Reed, S Nicole, Hudson, Marie, Leader, David M, Mattsson, Malin, Mouthon, Luc, Wojeck, Robyn, Yakes Jimenez, Elizabeth, Sauve, Maureen, Welling, Joep, Guillot, Geneviève, Benedetti, Andrea, Thombs, Brett D

Volltext

Three-year trajectories of disability and fatigue in systemic sclerosis: a cohort study von Willems, Linda M, Kwakkenbos, Linda, Vonk, Madelon C, van den Hoogen, Frank H J, Vliet Vlieland, Theodora P M, van den Ende, Cornelia H M

Volltext

Methods and results used in the development of a consensus-driven extension to the Consolidated Standards of Reporting Trials (CONSORT) statement for trials conducted using cohorts... von Imran, M, Kwakkenbos, L, McCall, SJ, McCord, KA, Frobert, O, Hemkens, LG, Zwarenstein, M, Relton, C, Rice, DB, Langan, SM, Benchimol, E, Thabane, L, Campbell, MK, Sampson, M, Erlinge, D, Verkooijen, HM, Moher, D, Boutron, I, Ravaud, P, Nicholl, J, Uher, R, Sauve, M, Fletcher, J, Torgerson, D, Gale, C, Juszczak, E, Thombs, BD

Volltext

Opening the black box of non-pharmacological care in systemic sclerosis: a cross-sectional online survey of Dutch health professionals von Stöcker, Juliane K., Vonk, Madelon C., van den Hoogen, Frank H. J., Nijhuis-van der Sanden, Maria W. G., Spierings, Julia, Staal, J. Bart, Satink, Ton, van den Ende, Cornelia H. M.

Volltext