P‐017: POINT‐OF‐CARE DIAGNOSTIC FOR QUANTIFICATION OF FOETAL HAEMOGLOBIN (HB F) LEVELS IN MONITORING HYDROXYUREA THERAPY FOR CHILDREN WITH SICKLE CELL DISEASE (SCD) IN GHANA von C., SEGBEFIA, Y., DEI‐ADOMAKOH, E., MENSAH, P., THOTA, I., ODAME

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5612992 SICKLE CELL HEALTH AWARENESS, PERSPECTIVES, AND EXPERIENCES (SHAPE) SURVEY: FINDINGS ON THE BURDEN OF SICKLE CELL DISEASE AND IMPACT ON THE QUALITY OF LIFE OF PATIENTS AND... von Inusa, B.P.D., James, J., Tinga, B., Ba, D., Ingoli, E., Hartfield, R., Anderson, A., Costa, F.F., Jastaniah, W., Kunz, J.B., Odame, I., Beaubrun, A., Lartey, B., Montalembert, M.

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S129: IMPLEMENTATION OF HYDROXYUREA THERAPY FOR SICKLE CELL DISEASE ON A LARGE SCALE IN GHANA von Ohene‐Frempong, K, Segbefia, C, Spector, J, Amoah, E, Asubonteng, A, Hammond‐Addo, R, Odame, I, Odame, I

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P1487: SICKLE CELL HEALTH AWARENESS, PERSPECTIVES AND EXPERIENCES (SHAPE) SURVEY: FINDINGS ON THE BURDEN OF SICKLE CELL DISEASE ON PATIENTS AND THEIR UNMET NEEDS AS REPORTED BY HEA... von Montalembert, M., Anderson, A., Costa, F., Jastaniah, W., Kunz, J. B., Odame, I., Beaubrun, A., Lartey, B., Inusa, B. P.

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Genetic analysis of inherited bone marrow failure syndromes from one prospective, comprehensive and population-based cohort and identification of novel mutations von Tsangaris, E, Klaassen, R, Fernandez, C V, Yanofsky, R, Shereck, E, Champagne, J, Silva, M, Lipton, J H, Brossard, J, Michon, B, Abish, S, Steele, M, Ali, K, Dower, N, Athale, U, Jardine, L, Hand, J P, Odame, I, Canning, P, Allen, C, Carcao, M, Beyene, J, Roifman, C M, Dror, Y

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O‐10: SICKLE CELL HEALTH AWARENESS, PERSPECTIVES AND EXPERIENCES (SHAPE) SURVEY: FINDINGS ON THE BURDEN OF SICKLE CELL DISEASE AND UNMET NEEDS AS REPORTED BY PATIENTS AND CAREGIVER... von I., ODAME, A., ANDERSON, F., COSTA, B., INUSA, W., JASTANIAH, J., KUNZ, Z., AL KADHEM, B., TINGA, D., BA, E., INGOLI, J., JAMES, A., CLARK, A., BEAUBRUN, B., LARTEY, M., DE MONTALEMBERT

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P‐002: MULTISPECTRAL IMAGING FOR MICROCHIP ELECTROPHORESIS ENABLES POINT‐OF‐CARE NEWBORN HEMOGLOBIN VARIANT SCREENING von R., AN, Y., HUANG, A., ROCHELEAU, A., AVANAKI, P., THOTA, Q., ZHANG, Y., MAN, Z., SEKYONDA, C., SEGBEFIA, Y., DEI‐ADOMAKOH, E., MENSAH, K., OHENE‐FREMPONG, I., ODAME, A., OWUSU‐ANSAH, U., GURKAN

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S122: SAFETY AND EFFICACY OF CRIZANLIZUMAB IN ADOLESCENTS WITH SICKLE CELL DISEASE (SCD): INITIAL DATA FROM THE PHASE II, MULTICENTER, OPEN‐LABEL SOLACE‐KIDS TRIAL von Heeney, M, Rees, D, Montalembert, M, Odame, I, Brown, C, Wali, Y, Nguyen, T, Lam, D, Pfender, N, Kanter, J

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Epidemiological survey of central nervous system germ cell tumors in Canadian children von Keene, D, Johnston, D, Strother, D, Fryer, C, Carret, A S, Crooks, B, Eisenstat, D, Moghrabi, A, Wilson, B, Brossard, J, Mpofu, C, Odame, I, Zelcer, S, Silva, M, Samson, Y, Hand, J, Bouffet, E

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SickKids-Caribbean Initiative: collaborating to improve the diagnosis and care of children with cancer and serious blood disorders in the Caribbean von Reece-Mills, M., Alexis, C., Allen, U., Bodkyn, C., Bird, J., Boyle, R., de Young, S., Fleming-Carroll, B., Gibson, T., Gupta, S., Ingram-Martin, P., Knight-Madden, J., Mclean-Salmon, S., Manley, M., Odame, I., Read, S., Sin Quee-Brown, C., Smith, B., Thame, M., Warner, H., Wharfe, G., Williams, D., Blanchette, V.

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Associations between birth weight and adult apolipoproteins: The LifeGene cohort von Sharma, Shantanu, Bennet, Louise, Laucyte-Cibulskiene, Agne, Christensson, Anders, Nilsson, Peter M

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Disease progression in recently diagnosed patients with inherited marrow failure syndromes: A Canadian inherited marrow failure registry (CIMFR) report von Steele, J.M., Sung, L., Klaassen, R., Fernandez, C.V., Yanofsky, R., Wu, J., Odame, I., Silva, M., Champagne, J., Ali, K., Brossard, J., Samson, Y., Abish, S., Le, D., Jardine, L., Hand, J.P., Lipton, J.H., Charpentier, K., Stephens, D., Freedman, M., Dror, Y.

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Risk of disability among adult leprosy cases and determinants of delay in diagnosis in five states of India: A case-control study von Srinivas, Govindarajulu, Muthuvel, Thirumugam, Lal, Vivek, Vaikundanathan, Kanagasabapathy, Schwienhorst-Stich, Eva-Maria, Kasang, Christa

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S129: IMPLEMENTATION OF HYDROXYUREA THERAPY FOR SICKLE CELL DISEASE ON A LARGE SCALE IN GHANA von Ohene-Frempong, K, Segbefia, C, Spector, J, Amoah, E, Asubonteng, A, Hammond-Addo, R, Odame, I

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D50 PEDIATRIC RARE LUNG DISEASES: Effect Of Hydroxyurea On Pulmonary Function Decline In Children With Sickle Cell Disease von McLaren, A, Klingel, M, Behera, S, Kirby-Allen, M, Odame, I, Grasemann, H

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Synthesis of findings from the literature and a qualitative research study on the impacts of gender, disability, and ethnicity in Neglected Tropical Diseases programs von Arney, Jennifer K, Headland, Maureen K, Bertone, Andrea M, Meite, Aboulaye, Ettiegne-Traore, Virginie, Asemanyi-Mensah, Kofi, Dede Teiko Dzathor, Irene, Kargbo-Labour, Ibrahim, Jalloh, Umu, Houck, Patricia, Stukel, Diana

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Patterns of obesity in boys and girls after treatment for acute lymphoblastic leukaemia von Odame, I, Reilly, J J, Gibson, B E, Donaldson, M D

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PERSPECTIVAS DOS MÉDICOS BRASILEIROS SOBRE A DOENÇA FALCIFORME E SEU TRATAMENTO: RESULTADOS DA PESQUISA DE CONHECIMENTO, PERSPECTIVAS E EXPERIÊNCIAS EM SAÚDE DA DOENÇA FALCIFORME (... von Costa, FF, Montalembert, M, Anderson, A, Jastaniah, W, Kunz, JB, Odame, I, Beaubrun, A, Montealegre-Golcher, F, Lartey, B, Inusa, BPD

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IMPACTO DA DOENÇA FALCIFORME NA QUALIDADE DE VIDA DE PACIENTES BRASILEIROS E SEUS CUIDADORES: ACHADOS DA PESQUISA DE PERCEPÇÃO, PERSPECTIVAS E EXPERIÊNCIAS EM SAÚDE FALCIFORME von Costa, FF, Odame, I, Anderson, A, Inusa, BPD, Jastaniah, W, Kunz, JB, Soares, MZ, Montealegre-Golcher, F, Lartey, B, Montalembert, M

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Active case detection methods for crusted scabies and leprosy: A systematic review von Glennie, Miriam, Gardner, Karen, Dowden, Michelle, Currie, Bart J.

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