Development and outcomes of a patient driven cystic fibrosis quality of care improvement project von Noordhoek, Jacquelien J., Jeyaratnam, Joshena, Zomer, Domenique, Gulmans, Vincent A.M., van der Ent, Cornelis K., Heijerman, Harry G.M.

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Newborn blood spot screening for cystic fibrosis with a four-step screening strategy in the Netherlands von Dankert-Roelse, Jeannette E., Bouva, Marelle J., Jakobs, Bernadette S., Janssens, Hettie M., de Winter-de Groot, Karin M., Schönbeck, Yvonne, Gille, Johan J.P., Gulmans, Vincent A.M., Verschoof-Puite, Rendelien K., Schielen, Peter C.J.I., Verkerk, Paul H.

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Biobanking: towards increased access of biomaterials in cystic fibrosis. Report on the pre-conference meeting to the 13th ECFS Basic Science Conference, Pisa, 30 March-2 April, 201... von Beekman, Jeffrey M, Wang, Chiuhui Mary, Casati, Sara, Tuggle, Katherine L, Gulmans, Vincent A.M, Amaral, Margarida, De Boeck, Kris

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Aligning patients' needs and research priorities towards a comprehensive CF research program von Noordhoek, Jacquelien J., Gulmans, Vincent A.M., Heijerman, Harry G.M., van der Ent, Cornelis K.

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Long-term effectiveness of dual CFTR modulator treatment of cystic fibrosis von Muilwijk, Danya, Zomer-van Ommen, Domenique D, Gulmans, Vincent A M, Eijkemans, Marinus J C, van der Ent, Cornelis K

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Height Assessment in the Dutch-Origin Pediatric Cystic Fibrosis Population von Woestenenk, Janna W., Gulmans, Vincent A. M., van der Ent, Cornelis K., Houwen, Roderick H. J.

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Osteogenesis imperfecta : profiles of motor development as assessed by a postal questionnaire von ENGELBERT, R. H. H, UITERWAAL, C. S. P. M, GULMANS, V. A. M, PRUIJS, H. E. H, HELDERS, P. J. M

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Peripheral muscle weakness and exercise capacity in children with cystic fibrosis von DE MEER, K, GULMANS, V. A. M, VAN DER LAAG, J

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Osteogenesis imperfecta in childhood: Prognosis for walking von Engelbert, Raoul H.H., Uiterwaal, Cuno S.P.M., Gulmans, Vincent A.M., Pruijs, Hans, Helders, Paul J.M.

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Physiotherapy Quo Vadis: Towards an Evidence-based, Diagnosis-Related, Functional Approach von Paul J. M. Helders, Raoul H. H. Engelbert, Janjaap van derNet, Vincent A. M. Gulmans

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Does newborn screening influence the young cystic fibrosis cohort included in national registries? von De Boeck, Kris, Munck, Anne, de Monestrol, Isabelle, Gulmans, Vincent, Lemonnier, Lydie, Middleton, Peter G, Wanyama, Simeon, Thomas, Muriel

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Intestinal organoids and personalized medicine in cystic fibrosis: a successful patient-oriented research collaboration von Noordhoek, Jacquelien, Gulmans, Vincent, van der Ent, Kors, Beekman, Jeffrey M

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A multinational report to characterise SARS-CoV-2 infection in people with cystic fibrosis von Cosgriff, Rebecca, Ahern, Susannah, Bell, Scott C., Brownlee, Keith, Burgel, Pierre-Régis, Byrnes, Cass, Corvol, Harriet, Cheng, Stephanie Y., Elbert, Alexander, Faro, Albert, Goss, Christopher H., Gulmans, Vincent, Marshall, Bruce C., McKone, Edward, Middleton, Peter G., Ruseckaite, Rasa, Stephenson, Anne L., Carr, Siobhán B, Reid, David, Wark, Peter, Daneau, Géraldine, Boussaud, Véronique, Brinchault, Graziella, Coirier-Duet, Emmanuelle, Dubus, Jean-Christophe, Grenet, Dominique, Miranda, Sandra de, Beaumont, Laurence, Kanaan, Reem, Lauraens, Muriel, Martin, Clémence, Mittaine, Marie, Prévotat, Anne, Reynaud-Gaubert, Martine, Sermet-Gaudelus, Isabelle, Tatopoulos, Aurelie, Nährlich, Lutz, Plant, Barry, Gunaratnam, Cedric, Jackson, Abaigeal, Groot, Karin M. de Winter-de, Luijk, Bart, Wesseling, Geertjan, Allenby, Mark, Duckers, Jamie, Gunn, Elaine, Jones, Andrew, Ketchell, Robert Ian, Madge, Susan L., Maitra, Anirban, Mujtaba, Ghulam, Rodgers, Helen, Shafi, Nadia, Simmonds, Nicholas, Southern, Kevin, Watson, Danie, Rizvi, Samar, Seguin, Julie, Garbarz, Janet, Rosamilia, Kristen, Berdella, Maria, Nick, Jerry A., Belkin, Richard, Gilmore, Diana, McBennett, Kim, Padoan, Rita, Salvatore, Marco

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Incidence of SARS-CoV-2 in people with cystic fibrosis in Europe between February and June 2020 von Naehrlich, Lutz, Orenti, Annalisa, Dunlevy, Fiona, Kasmi, Irena, Harutyunyan, Satenik, Pfleger, Andreas, Keegan, Svetlana, Daneau, Géraldine, Petrova, Guergana, Tješić-Drinković, Duška, Yiallouros, Panayiotis, Bilkova, Alena, Olesen, Hanne Vebert, Burgel, Pierre-Régis, Parulava, Tsitsino, Diamantea, Filia, Párniczky, Andrea, McKone, Edward F, Mei-Zahav, Meir, Salvatore, Marco, Colombo, Carla, Aleksejeva, Elina, Malakauskas, Kestutis, Schlesser, Marc, Fustik, Stojka, Turcu, Oxana, Zomer-van Ommen, Domenique, Wathne, Anita Senstad, Woźniacki, Łukasz, Pereira, Luísa, Pop, Liviu, Kashirskaya, Nataliya, Rodić, Milan, Kayserova, Hana, Krivecs, Uro, Mondejar-Lopez, Pedro, de Monestrol, Isabelle, Dogru, Deniz, Makukh, Halyna, Cosgriff, Rebecca, van Koningsbruggen-Rietschel, Silke, Jung, Andreas, Bobrovnichy, Vladimir, Bambir, Ivan, Vukic, Andrea Dugac, Drevinek, Pavel, Jr, Milan Macek, Corvol, Harriet, Lemonnier-Videau, Lydie, Hatziagorou, Elpis, Fletcher, Godfrey, Padoan, Rita, Gulmans, Vincent, Bakkeheim, Egil, Kondratyeva, Elena, Amelina, Elena, Zhekaite, Elena, Simonova, Olga, Pastor-Vivero, Maria Dolores, Lindblad, Anders, Gökdemir, Yasemin, Pekcan, Sevgi, Brownlee, Keith, McClenaghan, Elliott, Carr, Siobhán, Lammertyn, Elise, Zolin, Anna, Fox, Alice, Krasnyk, Marko, Van Rens, Jacqui

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Mini-guts in a dish: Perspectives of adult Cystic Fibrosis (CF) patients and parents of young CF patients on organoid technology von Boers, Sarah N., de Winter-de Groot, Karin M., Noordhoek, Jacquelien, Gulmans, Vincent, van der Ent, Cornelis K., van Delden, Johannes J.M., Bredenoord, Annelien L.

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COVID-19 vaccine prioritisation for people with cystic fibrosis von Carr, Siobhán B, Cosgriff, Rebecca, Harutyunyan, Satenik, Middleton, Peter G, Ruseckaite, Rasa, Ahern, Susannah, Daneau, Géraldine, Filho, Luiz Vicente R F da Silva, Stephenson, Anne L, Cheng, Stephanie Y, Melo, Joel, Corvol, Harriet, Burgel, Pierre-Régis, Nährlich, Lutz, McKone, Edward, Colombo, Carla, Salvatore, Marco, Padoan, Rita, Abdrakhmanov, Olzhas, Gulmans, Vincent, Byrnes, Catherine A, Amelina, Elena, Kondratyeva, Elena, Zhekayte, Elena, Kashirskaya, Nataliya, Zampoli, Marco, Pastor-Vivero, M Dolores, Mondejar-Lopez, Pedro, de Monestrol, Isabelle, Jung, Andeas, McClenaghan, Elliot, Brownlee, Keith, Rizvi, Samar, Goss, Christopher H, Elbert, Alexander, Faro, Albert, Gutierrez, Hector, Marshall, Bruce C

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Factors for severe outcomes following SARS-CoV-2 infection in people with cystic fibrosis in Europe von Jung, Andreas, Orenti, Annalisa, Dunlevy, Fiona, Aleksejeva, Elina, Bakkeheim, Egil, Bobrovnichy, Vladimir, Carr, Siobhan B., Colombo, Carla, Corvol, Harriet, Cosgriff, Rebecca, Daneau, Geraldine, Dogru, Deniz, Drevinek, Pavel, Vukic, Andrea Dugac, Fajac, Isabelle, Fox, Alice, Fustik, Stojka, Gulmans, Vincent, Harutyunyan, Satenik, Hatziagorou, Elpis, Kasmi, Irena, Kayserova, Hana, Kondratyeva, Elena, Krivec, Uros, Makukh, Halyna, Malakauskas, Kestutis, McKone, Edward F., Mei-Zahav, Meir, de Monestrol, Isabelle, Olesen, Hanne Vebert, Padoan, Rita, Parulava, Tsitsino, Pastor-Vivero, Maria Dolores, Pereira, Luisa, Petrova, Guergana, Pfleger, Andreas, Pop, Liviu, van Rens, Jacqui G., Rodic, Milan, Schlesser, Marc, Storms, Valerie, Turcu, Oxana, Wozniacki, Lukasz, Yiallouros, Panayiotis, Zolin, Anna, Downey, Damian G., Naehrlich, Lutz

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Risk factors for forced expiratory volume in 1 s decline in European patients with cystic fibrosis: data from the European Cystic Fibrosis Society Patient Registry von Hatziagorou, Elpis, Fieuws, Steffen, Orenti, Annalisa, Naehrlich, Lutz, Krivec, Uros, Mei-Zahav, Meir, Jung, Andreas, De Boeck, Kris

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