Cirrhosis associated with decreased survival and a 10-year lower median age at death of cystic fibrosis patients in the Netherlands von Pals, F.H., Verkade, H.J., Gulmans, V.A.M., De Koning, B.A.E., Koot, B.G.P., De Meij, T.G.J., Hendriks, D.M., Gierenz, N., Vreugdenhil, A.C.E., Houwen, R.H.J., Bodewes, F.A.J.A.

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Determinants of functional independence and quality of life in children with spina bifida von Schoenmakers, M AGC, Uiterwaal, C SPM, Gulmans, V AM, Gooskens, R HJM, Helders, P JM

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WS03.1 Positive effects of a coaching program for parents after the diagnosis of CF following newborn screening von Noordhoek, J, Kuijer, Y, Broekmans, M, Gulmans, V

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Peripheral muscle weakness and exercise capacity in children with cystic fibrosis von DE MEER, K, GULMANS, V. A. M, VAN DER LAAG, J

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Spina bifida at the sacral level: more than minor gait disturbances von Schoenmakers, M AGC, Gulmans, V AM, Gooskens, R HJM, Helders, P JM

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ePS01.1 Asian patients with CF: Does ethnicity influence our diagnostic criteria? von Bosch, B, Bilton, D, Sosnay, P, Amaral, M, Ishiguro, T, Gulmans, V, Cuppens, H, De Boeck, K

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Spinal fusion in children with spina bifida: influence on ambulation level and functional abilities von Schoenmakers, M A G C, Gulmans, V A M, Gooskens, R H J M, Pruijs, J E H, Helders, P J M

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WS4.2 How different is the cohort of young CF children included in national registries of countries with and without newborn screening? von Thomas, M, Munck, A, Gulmans, V, Lemonnier, L, de Monestrol, I, Middleton, P.G, Wanyama, S, De Boeck, K

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Osteogenesis imperfecta in childhood: Perceived competence in relation to impairment and disability von Engelbert, Raoul H., Gulmans, V.A., Uiterwaal, C.S., Helders, Paul J.

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The six-minute walking test in children with cystic fibrosis: Reliability and validity von Gulmans, V.A.M., van Veldhoven, N.H.M.J., de Meer, K., Helders, P.J.M.

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Motor performance and disability in Dutch children with haemophilia: a comparison with their healthy peers von Schoenmakers, M. A. G. C., Gulmans, V. A. M., Helders, P. J. M., Van Den Berg, H. M.

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158 Validation of the Q-Life app: An individualized patient-reported outcome measure to assess quality of life von Muilwijk, D., van Paridon, T., Gulmans, V., Heijerman, H., van der Ent, C.

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Survival estimates in European cystic fibrosis patients and the impact of socioeconomic factors: a retrospective registry Cohort study von McKone, Edward F, Ariti, Cono, Jackson, Abaigeal, Zolin, Anna, Carr, Siobhán B, Orenti, Annalisa, van Rens, Jacqui, Lemonnier, Lydie, Macek, Jr, Milan, Keogh, Ruth H, Naehrlich, Lutz

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WS3.2 Who is reported in the Belgian, Dutch and French CF registries? von Thomas, M, Castellani, C, Cuppens, H, Gulmans, V, Lemonnier, L, Norek, A, Vermeulen, F, De Boeck, K

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Efficiency of oxidative work performance of skeletal muscle in patients with cystic fibrosis von de Meer, K, Jeneson, J A, Gulmans, V A, van der Laag, J, Berger, R

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Outpatient exercise training in children with cystic fibrosis: Physiological effects, perceived competence, and acceptability von Gulmans, V.A.M., de Meer, K., Brackel, H.J.L., Faber, J.A.J., Berger, R., Helders, P.J.M.

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38: Real-world longitudinal trends in clinical outcomes in people with cystic fibrosis using lumacaftor/ivacaftor and tezacaftor/ivacaftor von Muilwijk, D., Zomer-van Ommen, D., Gulmans, V., Eijkemans, R., van der Ent, C.

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Incidence of SARS-CoV-2 in people with cystic fibrosis in Europe between February and June 2020 von Naehrlich, Lutz, Orenti, Annalisa, Dunlevy, Fiona, Kasmi, Irena, Harutyunyan, Satenik, Pfleger, Andreas, Keegan, Svetlana, Daneau, Géraldine, Petrova, Guergana, Tješić-Drinković, Duška, Yiallouros, Panayiotis, Bilkova, Alena, Olesen, Hanne Vebert, Burgel, Pierre-Régis, Parulava, Tsitsino, Diamantea, Filia, Párniczky, Andrea, McKone, Edward F, Mei-Zahav, Meir, Salvatore, Marco, Colombo, Carla, Aleksejeva, Elina, Malakauskas, Kestutis, Schlesser, Marc, Fustik, Stojka, Turcu, Oxana, Zomer-van Ommen, Domenique, Wathne, Anita Senstad, Woźniacki, Łukasz, Pereira, Luísa, Pop, Liviu, Kashirskaya, Nataliya, Rodić, Milan, Kayserova, Hana, Krivecs, Uro, Mondejar-Lopez, Pedro, de Monestrol, Isabelle, Dogru, Deniz, Makukh, Halyna, Cosgriff, Rebecca, van Koningsbruggen-Rietschel, Silke, Jung, Andreas, Bobrovnichy, Vladimir, Bambir, Ivan, Vukic, Andrea Dugac, Drevinek, Pavel, Jr, Milan Macek, Corvol, Harriet, Lemonnier-Videau, Lydie, Hatziagorou, Elpis, Fletcher, Godfrey, Padoan, Rita, Gulmans, Vincent, Bakkeheim, Egil, Kondratyeva, Elena, Amelina, Elena, Zhekaite, Elena, Simonova, Olga, Pastor-Vivero, Maria Dolores, Lindblad, Anders, Gökdemir, Yasemin, Pekcan, Sevgi, Brownlee, Keith, McClenaghan, Elliott, Carr, Siobhán, Lammertyn, Elise, Zolin, Anna, Fox, Alice, Krasnyk, Marko, Van Rens, Jacqui

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Epidemiology and management of nontuberculous mycobacterial disease in people with cystic fibrosis, the Netherlands von Zomer, Domenique, van Ingen, Jakko, Hofland, Regina, Akkerman, O.W., Altenburg, J., Bakker, M., Bannier, M.A.G.E., Conemans, L.H., Gulmans, V.A.M., Heijerman, H.G.M., Hoek, R.A.S., Janssens, H.M., van der Meer, R., Merkus, P.J.F.M., Noordhoek, J.J., Nuijsink, M., Terheggen-Lagro, S.W.J., van der Vaart, H., de Winter-de Groot, K.M.

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P051 Improved opportunities for trial participation via the Dutch CF Trial Consortium von Paalvast, I., Michel, S., Geel, A., Adriaens, N., Keijzers, N., Gulmans, V., Zwitserloot, A., Bannier, M., van der, R. Meer, Zomer, D.

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