Evolving observational registries: an evidence based approach to understanding data availability in the "Sanofi Genzyme Rare Disease Registries" von Dong, Danielle, Batista, Julie, Belk, Katherine, Cizmarik, Marta, Clatterbuck, Cinde, Faherty, Kathleen, Findlay, Hugh, Foster, Jean, Glaetzer, Anja, Gruskin, Daniel, Hartman, Bill, Ioschpe, Rafael, Loisel, Betsy, Ludin, Zarla, Massey, Linda, McMillin, Virginia, Moy, Kristin, O’Neil, Virginia, Sparks, Susan, Denzel, Christiane

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