COVID‐19 and children with cancer: Parents’ experiences, anxieties and support needs von Darlington, Anne‐Sophie E., Morgan, Jessica E., Wagland, Richard, Sodergren, Samantha C., Culliford, David, Gamble, Ashley, Phillips, Bob

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The importance of a collaborative health‐related quality of life measurement strategy for adolescents and young adults with cancer von Husson, Olga, Sodergren, Samantha C., Darlington, Anne‐Sophie

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COVID‐19: Impact, experiences, and support needs of children and young adults with cystic fibrosis and parents von Collaço, Nicole, Legg, Julian, Day, Maria, Culliford, David, Campion, Anna, West, Carolyn, Darlington, Anne‐Sophie

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Rare use of patient-reported outcomes in childhood cancer clinical trials – a systematic review of clinical trial registries von Riedl, David, Rothmund, Maria, Darlington, Anne-Sophie, Sodergren, Samantha, Crazzolara, Roman, de Rojas, Teresa

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Assessing cognitive toxicity in early phase trials ‐ What are we missing? von Stapleton, Sarah E., Darlington, Anne‐Sophie, Minchom, Anna, Pal, Abhijit, Raynaud, Florence, Wiseman, Theresa

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Parents' Experiences of Pediatric Palliative Care and the Impact on Long-Term Parental Grief von van der Geest, Ivana M.M., BSc, Darlington, Anne-Sophie E., PhD, Streng, Isabelle C., MSc, Michiels, Erna M.C., MD, PhD, Pieters, Rob, MD, PhD, van den Heuvel-Eibrink, Marry M., MD, PhD

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The social and physical environmental factors associated with the play of children living with life threatening/limiting conditions: A Q methodology study von Jasem, Zainab A., Lambrick, Danielle, Randall, Duncan C., Darlington, Anne‐Sophie

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Psychosocial consequences of surviving cancer diagnosed and treated in childhood versus in adolescence/young adulthood: A call for clearer delineation between groups von Darlington, Anne‐Sophie E., Wakefield, Claire E., Erp, Loes M. E., Graaf, Winette T. A., Cohn, Richard J., Grootenhuis, Martha A.

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Experiences of families post treatment for childhood brain tumours during medical clinic consultations regarding health‐related quality of life, unmet needs and communication barri... von Bull, Kim S., Stubley, Shelly, Freeman, Anita, Liossi, Christina, Darlington, Anne‐Sophie E., Grootenhuis, Martha A., Hargrave, Darren, Morris, Christopher, Walker, David A., Kennedy, Colin R.

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Recommendations on the use of item libraries for patient-reported outcome measurement in oncology trials: findings from an international, multidisciplinary working group von Piccinin, Claire, Basch, Ethan, Bhatnagar, Vishal, Calvert, Melanie, Campbell, Alicyn, Cella, David, Cleeland, Charles S, Coens, Corneel, Darlington, Anne-Sophie, Dueck, Amylou C, Groenvold, Mogens, Herold, Ralf, King-Kallimanis, Bellinda L, Kluetz, Paul G, Kuliś, Dagmara, O'Connor, Daniel, Oliver, Kathy, Pe, Madeline, Reeve, Bryce B, Reijneveld, Jaap C, Wang, Xin Shelley, Bottomley, Andrew

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Disparities in intensity of treatment at end‐of‐life among children according to the underlying cause of death von Wolff, Sanne, Christiansen, Christian Fynbo, Johnsen, Soeren Paaske, Schroeder, Soeren, Darlington, Anne‐Sophie, Neergaard, Mette Asbjorn

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Preterm birth during the COVID‐19 pandemic: Parental experience von Marino, Luise V., Collaço, Nicole, Johnson, Mark J., Darlington, Anne‐Sophie

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Decision-making in childhood cancer: parents’ and adolescents’ views and perceptions von Robertson, Eden G., Wakefield, Claire E., Shaw, Joanne, Darlington, Anne-Sophie, McGill, Brittany C., Cohn, Richard J., Fardell, Joanna E.

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Palliative and end of life care for a child: Understanding parents’ coping strategies von Darlington, Anne‐Sophie, Randall, Duncan, Leppard, Lisa, Koh, Michelle

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Patient-reported outcomes are under-utilised in evaluating supportive therapies in paediatric oncology - A systematic review of clinical trial registries von Rothmund, Maria, Lehmann, Jens, Moser, Wiebke, de Rojas, Teresa, Sodergren, Samantha C, Darlington, Anne-Sophie, Riedl, David

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COVID-19: experiences of lockdown and support needs in children and young adults with kidney conditions von Tse, Yincent, Darlington, Anne-Sophie E., Tyerman, Kay, Wallace, Dean, Pankhurst, Tanya, Chantziara, Sofia, Culliford, David, Recio-Saucedo, Alejandra, Nagra, Arvind

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Quality of life of long‐term childhood acute lymphoblastic leukemia survivors: Comparison with healthy controls von Chantziara, Sofia, Musoro, Jammbe, Rowsell, Alison C., Sleurs, Charlotte, Coens, Corneel, Pe, Madeline, Suciu, Stefan, Kicinski, Michal, Missotten, Pierre, Vandecruys, Els, Uyttebroeck, Anne, Dresse, Marie‐Françoise, Pluchart, Claire, Ferster, Alina, Freycon, Claire, Bosch, Jutte Van Der Werff ten, Rohrlich, Pierre, Benoit, Yves, Darlington, Anne‐Sophie, Piette, Caroline

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Talking about Death with Children with Incurable Cancer: Perspectives from Parents von van der Geest, Ivana M.M., MD, van den Heuvel-Eibrink, Marry M., MD, PhD, van Vliet, Liesbeth M., PhD, Pluijm, Saskia M.F., PhD, Streng, Isabelle C., MSc, Michiels, Erna M.C., MD, PhD, Pieters, Rob, MD, PhD, Darlington, Anne-Sophie E., PhD

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Systematic review of health-related quality of life (HRQoL) issues associated with gastric cancer: capturing cross-cultural differences von Rowsell, Alison, Sodergren, Samantha C., Vassiliou, Vassilios, Darlington, Anne-Sophie, Guren, Marianne G., Alkhaffaf, Bilal, Moorbey, Chantelle, Dennis, Kristopher, Terada, Mitsumi

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Improving growth of infants with congenital heart disease using a consensus-based nutritional pathway von Marino, Luise V., Johnson, Mark J., Davies, Natalie J., Kidd, Catherine S., Fienberg, Julie, Richens, Trevor, Bharucha, Tara, Beattie, R. Mark, Darlington, Anne-Sophie E.

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