Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US von Sanderson, Saskia C., Brothers, Kyle B., Mercaldo, Nathaniel D., Clayton, Ellen Wright, Antommaria, Armand H. Matheny, Aufox, Sharon A., Brilliant, Murray H., Campos, Diego, Carrell, David S., Connolly, John, Conway, Pat, Fullerton, Stephanie M., Garrison, Nanibaa’ A., Horowitz, Carol R., Jarvik, Gail P., Kaufman, David, Kitchner, Terrie E., Li, Rongling, Ludman, Evette J., McCarty, Catherine A., McCormick, Jennifer B., McManus, Valerie D., Myers, Melanie F., Scrol, Aaron, Williams, Janet L., Shrubsole, Martha J., Schildcrout, Jonathan S., Smith, Maureen E., Holm, Ingrid A.

Volltext

Reconciling Opportunistic and Population Screening in Clinical Genomics von Brothers, Kyle B., Vassy, Jason L., Green, Robert C.

Volltext

Genomic diagnosis for children with intellectual disability and/or developmental delay von Bowling, Kevin M, Thompson, Michelle L, Amaral, Michelle D, Finnila, Candice R, Hiatt, Susan M, Engel, Krysta L, Cochran, J Nicholas, Brothers, Kyle B, East, Kelly M, Gray, David E, Kelley, Whitley V, Lamb, Neil E, Lose, Edward J, Rich, Carla A, Simmons, Shirley, Whittle, Jana S, Weaver, Benjamin T, Nesmith, Amy S, Myers, Richard M, Barsh, Gregory S, Bebin, E Martina, Cooper, Gregory M

Volltext

Tensions in ethics and policy created by National Precision Medicine Programs von Minari, Jusaku, Brothers, Kyle B, Morrison, Michael

Volltext

Factors Associated with Attendance after Referral to a Pediatric Weight Management Program von Shaffer, Laura A., PhD, Brothers, Kyle B., MD, PhD, Burkhead, Thomas A., MEng, Yeager, Ray, MPH, Myers, John A., PhD, Sweeney, Brooke, MD

Volltext

Return of non-ACMG recommended incidental genetic findings to pediatric patients: considerations and opportunities from experiences in genomic sequencing von Bowling, Kevin M, Thompson, Michelle L, Kelly, Melissa A, Scollon, Sarah, Slavotinek, Anne M, Powell, Bradford C, Kirmse, Brian M, Hendon, Laura G, Brothers, Kyle B, Korf, Bruce R, Cooper, Gregory M, Greally, John M, Hurst, Anna C E

Volltext

Employees' Views and Ethical, Legal, and Social Implications Assessment of Voluntary Workplace Genomic Testing von Sanghavi, Kunal, Feero, W. Gregory, Mathews, Debra J. H., Prince, Anya E. R., Price, Lori Lyn, Liu, Edison T., Brothers, Kyle B., Roberts, J. Scott, Lee, Charles

Volltext

Expanding Applications of Clinical Genetic Testing — Ethical Challenges von Fullerton, Stephanie M., Brothers, Kyle B.

Volltext

Practical Guidance on Informed Consent for Pediatric Participants in a Biorepository von Brothers, Kyle B., MD, Lynch, John A., PhD, Aufox, Sharon A., MS, Connolly, John J., PhD, Gelb, Bruce D., MD, Holm, Ingrid A., MD, PhD, Sanderson, Saskia C., PhD, McCormick, Jennifer B., PhD, Williams, Janet L., LGC, MS, Wolf, Wendy A., PhD, Antommaria, Armand H.M., MD, PhD, Clayton, Ellen W., MD, JD

Volltext

Taking an antiracist posture in scientific publications in human genetics and genomics von Brothers, Kyle B., Bennett, Robin L., Cho, Mildred K.

Volltext

Banning Genetic Discrimination in Life Insurance — Time to Follow Florida’s Lead von Rothstein, Mark A, Brothers, Kyle B

Volltext

Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium von Gutierrez, Amanda M, Robinson, Jill O, Outram, Simon M, Smith, Hadley S, Kraft, Stephanie A, Donohue, Katherine E, Biesecker, Barbara B, Brothers, Kyle B, Chen, Flavia, Hailu, Benyam, Hindorff, Lucia A, Hoban, Hannah, Hsu, Rebecca L, Knight, Sara J, Koenig, Barbara A, Lewis, Katie L, Lich, Kristen Hassmiller, O'Daniel, Julianne M, Okuyama, Sonia, Tomlinson, Gail E, Waltz, Margaret, Wilfond, Benjamin S, Ackerman, Sara L, Majumder, Mary A

Volltext

Genome-Wide Association Study of Serum Creatinine Levels during Vancomycin Therapy von Van Driest, Sara L, McGregor, Tracy L, Velez Edwards, Digna R, Saville, Ben R, Kitchner, Terrie E, Hebbring, Scott J, Brilliant, Murray, Jouni, Hayan, Kullo, Iftikhar J, Creech, C Buddy, Kannankeril, Prince J, Vear, Susan I, Brothers, Kyle B, Bowton, Erica A, Shaffer, Christian M, Patel, Neelam, Delaney, Jessica T, Bradford, Yuki, Wilson, Sarah, Olson, Lana M, Crawford, Dana C, Potts, Amy L, Ho, Richard H, Roden, Dan M, Denny, Josh C

Volltext

The Responsibility to Recontact Research Participants after Reinterpretation of Genetic and Genomic Research Results von Bombard, Yvonne, Brothers, Kyle B., Fitzgerald-Butt, Sara, Garrison, Nanibaa’ A., Jamal, Leila, James, Cynthia A., Jarvik, Gail P., McCormick, Jennifer B., Nelson, Tanya N., Ormond, Kelly E., Rehm, Heidi L., Richer, Julie, Souzeau, Emmanuelle, Vassy, Jason L., Wagner, Jennifer K., Levy, Howard P.

Volltext

Parents' attitudes toward consent and data sharing in biobanks: A multisite experimental survey von Antommaria, Armand H. Matheny, Brothers, Kyle B., Myers, John A., Feygin, Yana B., Aufox, Sharon A., Brilliant, Murray H., Conway, Pat, Fullerton, Stephanie M., Garrison, Nanibaa' A., Horowitz, Carol R., Jarvik, Gail P., Li, Rongling, Ludman, Evette J., McCarty, Catherine A., McCormick, Jennifer B., Mercaldo, Nathaniel D., Myers, Melanie F., Sanderson, Saskia C., Shrubsole, Martha J., Schildcrout, Jonathan S., Williams, Janet L., Smith, Maureen E., Clayton, Ellen Wright, Holm, Ingrid A.

Volltext

Data sharing and community-engaged research von Sabatello, Maya, Martschenko, Daphne O, Cho, Mildred K, Brothers, Kyle B

Volltext

Fostering Responsible Research on Ancient DNA von Wagner, Jennifer K., Colwell, Chip, Claw, Katrina G., Stone, Anne C., Bolnick, Deborah A., Hawks, John, Brothers, Kyle B., Garrison, Nanibaa’ A.

Volltext

Banning Genetic Discrimination in Life Insurance Reply von Rothstein, Mark A., Brothers, Kyle B.

Volltext

Conducting a large, multi-site survey about patients' views on broad consent: challenges and solutions von Smith, Maureen E, Sanderson, Saskia C, Brothers, Kyle B, Myers, Melanie F, McCormick, Jennifer, Aufox, Sharon, Shrubsole, Martha J, Garrison, Nanibaá A, Mercaldo, Nathaniel D, Schildcrout, Jonathan S, Clayton, Ellen Wright, Antommaria, Armand H Matheny, Basford, Melissa, Brilliant, Murray, Connolly, John J, Fullerton, Stephanie M, Horowitz, Carol R, Jarvik, Gail P, Kaufman, Dave, Kitchner, Terri, Li, Rongling, Ludman, Evette J, McCarty, Catherine, McManus, Valerie, Stallings, Sarah, Williams, Janet L, Holm, Ingrid A

Volltext

The Parent PrU: A measure to assess personal utility of pediatric genomic results von Turbitt, Erin, Kohler, Jennefer N, Brothers, Kyle B, Outram, Simon M, Rini, Christine, Sahin-Hodoglugil, Nuriye, Leo, Michael C, Biesecker, Barbara B

Volltext