Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers' perspective: a... von Duong, Tina, Braid, Jessica, Staunton, Hannah, Barriere, Aurelie, Petridis, Fani, Reithinger, Johannes, Cruz, Rosangel, Jarecki, Jill, De Lemus, Mencia, Gusset, Nicole, Broekgaarden, Ria, Randhawa, Sharan, Flynn, Jessica, Arbuckle, Rob, Reif, Sonia, Yang, Lida, De Martini, Angela, Vuillerot, Carole

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The role of patient advocacy organisations in neuromuscular disease R&D – The case of the Dutch neuromuscular disease association VSN von Boon, Wouter, Broekgaarden, Ria

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Disease impact on general well-being and therapeutic expectations of european type II and type III spinal muscular atrophy patients von Rouault, Françoise, Christie-Brown, Vanessa, Broekgaarden, Ria, Gusset, Nicole, Henderson, Doug, Marczuk, Patryk, Schwersenz, Inge, Bellis, Gil, Cottet, Christian

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Population-based incidence rates of 15 neuromuscular disorders: a nationwide capture-recapture study in the Netherlands von Deenen, Johanna C.W, Horlings, Corinne G.C, Voermans, Nicol C, van Doorn, Pieter A, Faber, Catharina G, van der Kooi, Anneke J, Kuks, Jan B.M, Notermans, Nicolette C, Visser, Leo H, Broekgaarden, Ria H.A, Horemans, Anja M.C, Verschuuren, Jan J.G.M, Verbeek, André L.M, van Engelen, Baziel G.M

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The role of patient advocacy organizations in shaping medical research: the Pompe model von House, Tiffany, O'Donnell, Kevin, Saich, Raymond, Di Pietro, Fabio, Broekgaarden, Ria, Muir, Allan, Schaller, Thomas

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Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers' perspective: a... von Duong, Tina, Braid, Jessica, Staunton, Hannah, Barriere, Aurelie, Petridis, Fani, Reithinger, Johannes, Cruz, Rosangel, Jarecki, Jill, De Lemus, Mencia, Gusset, Nicole, Broekgaarden, Ria, Randhawa, Sharan, Flynn, Jessica, Arbuckle, Rob, Reif, Sonia, Yang, Lida, De Martini, Angela, Vuillerot, Carole

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