Collaborative research protocol to define patient-reported experience measures of the cystic fibrosis care pathway in France: the ExPaParM study von Pougheon Bertrand, D, Fanchini, A, Lombrail, P, Rault, G, Chansard, A, Le Breton, N, Frenod, C, Milon, F, Heymes-Royer, C, Segretain, D, Silber, M, Therouanne, S, Haesebaert, J, Llerena, C, Michel, P, Reynaud, Q

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A conceptual framework to develop a patient-reported experience questionnaire on the cystic fibrosis journey in France: the ExPaParM collaborative study von Pougheon Bertrand, D, Fanchini, A, Lombrail, P, Rault, G, Chansard, A, Le Breton, N, Frenod, C, Milon, F, Royer, C Heymes, Segretain, D, Silber, M, Therouanne, S, Haesebaert, J, Llerena, C, Michel, P, Reynaud, Q

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WS16.2 Adolescence and cystic fibrosis: improving the median FEV1 of adolescents by patient education linked with a quality improvement program von David, V, Pougheon-Bertrand, D, Rault, G, Perrin, A, Bihouee, T

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Provision of information on transplantation to cystic fibrosis patients and their relatives: Overview of French practices and recommendations von David, V., Perrin, A., Le Rhun, A., Pougheon-Bertrand, D., Kanaan, R., Grenet, D., Moret, L.

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252 Recognition of pulmonary exacerbation (PEX) in adult patients with CF: An educational process to overcome barriers von David, V, Pougheon-Bertrand, D, Vion, V, Scalbert, M, Dury, S, Jollivet, D

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342 Therapeutic patient education and quality improvement program: What synergy? von David, V, Rault, G, Pougheon-Bertrand, D, Dorenlot, E

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Parents and the program coordinator of PHARE-M help to improve the quality of care of cystic fibrosis von Bertrand, D Pougheon, Raultb, G

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WS19.4 CF quality improvement program: a pilot phase to experiment the US QIP approach in France von Rault, G, Pougheon Bertrand, D, Guéganton, L, Minguet, G, Lombrail, P

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283 Sizing and financing multidisciplinary resources for CF care in the French healthcare system von Rault, G, Bellon, G, Pougheon Bertrand, D, Kletz, F, Moisdon, J.-C

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824 Implementation of patient experience surveys to improve CF care: the ExPaParM-ACTION research study von Bertrand, D. Pougheon, Bellis, G., Lombrail, P., Taillandier, L., de Carli, P.

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Parent et coordinatrice du programme PHARE-M d'amélioration de la qualité des soins dans la mucoviscidose von Bertrand, D. Pougheon, Raultb, G.

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Collaborative research protocol to define patient-reported experience measures of the cystic fibrosis care pathway in France: the ExPaParM study von Pougheon Bertrand, D., Fanchini, A., Lombrail, P., Rault, G., Chansard, A., Le Breton, N., Frenod, C., Milon, F., Heymes-Royer, C., Segretain, D., Silber, M., Therouanne, S., Haesebaert, J., Llerena, C., Michel, P., Reynaud, Q.

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Étude LICOORN – LIttératie et Coordination Novatrice des parcours de prévention des cancer ORL von Ekpe, Juliette, Bazin, Nicolas, Habouzit, Cyril, Pougheon-Bertrand, Dominique, Hamant, Chloé, Margat, Aurore

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Comment intégrer un patient partenaire dans une équipe de soins ? von Tourniaire, Nolwenn, Leseur, Julie, Roy, Agnès, de la Motte Rouge, Aurélie, Pougheon Bertrand, Dominique

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Partenariat patient dans une démarche d’amélioration de la qualite des soins : l’expérience du programme qualité en mucoviscidose von Pougheon Bertrand, Dominique

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