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Improving outcome measures in late onset Pompe disease: Modified Rasch-Built Pompe-Specific Activity scale von van Kooten, H.A, Horton, M.C, Wenninger, S, Babačić, H, Schoser, B, Lefeuvre, C, Taouagh, N, Laforêt, P, Segovia, S, Díaz‐Manera, J, Claeys, K.G, Mongini, T, Musumeci, O, Toscano, A, Hundsberger, T, Brusse, E, van Doorn, P.A, van der Ploeg, A.T, van der Beek, N.A.M.E, European Pompe Consortium study group on outcome measures

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