Development of Health-Related Quality of Life Instruments for Young Children With Disorders of Sex Development (DSD) and Their Parents von Alpern, Adrianne N, Gardner, Melissa, Kogan, Barry, Sandberg, David E, Quittner, Alexandra L

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Assessing mental health transition readiness in youth with medical conditions von Gray, Wendy N., Partain, Lauren, Benekos, Erin, Konishi, Carlos, Alpern, Adrianne, Weiss, Michael

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Clustered randomized controlled trial of a clinic-based problem-solving intervention to improve adherence in adolescents with cystic fibrosis von Quittner, Alexandra L., Eakin, Michelle N., Alpern, Adrianne N., Ridge, Alana K., McLean, Katherine A., Bilderback, Andrew, Criado, Kristen K., Chung, Shang-En, Riekert, Kristin A.

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Initial evaluation of the Parent Cystic Fibrosis Questionnaire—Revised (CFQ-R) in infants and young children von Alpern, Adrianne N, Brumback, Lyndia C, Ratjen, Felix, Rosenfeld, Margaret, Davis, Stephanie D, Quittner, Alexandra L

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Challenges of Disorders of Sex Development: Diverse Perceptions across Stakeholders von Kogan, Barry A., Gardner, Melissa, Alpern, Adrianne N., Cohen, Laura M., Grimley, Mary Beth, Quittner, Alexandra L., Sandberg, David E.

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Dynamic topic language model on heterogeneous children’s mental health clinical notes von Ye, Hanwen, Moreno, Tatiana, Alpern, Adrianne, Ehwerhemuepha, Louis, Qu, Annie

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A quality-of-life measure for adults with primary ciliary dyskinesia: QOL-PCD von Lucas, Jane S, Behan, Laura, Dunn Galvin, Audrey, Alpern, Adrianne, Morris, Anjana M, Carroll, Mary P, Knowles, Michael R, Leigh, Margaret W, Quittner, Alexandra L

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Primary Ciliary Dyskinesia: First Health-related Quality-of-Life Measures for Pediatric Patients von Dell, Sharon D, Leigh, Margaret W, Lucas, Jane S, Ferkol, Thomas W, Knowles, Michael R, Alpern, Adrianne, Behan, Laura, Morris, Anjana M, Hogg, Claire, DunnGalvin, Audrey, Quittner, Alexandra L

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QOS-13LANGUAGE PROCESSING IN MONOLINGUAL AND BILINGUAL CHILDREN DIAGNOSED WITH MEDULLOBLASTOMA von Mucci, Grace, DeLuco, Tara, Santacruz, Gabriella, Tucci, Lara C.K., Alpern, Adrianne, Pathare, Jody, Templeman, Tina, Gallagher, Cristian, Shen, Violet

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Dynamic Topic Language Model on Heterogeneous Children's Mental Health Clinical Notes von Ye, Hanwen, Moreno, Tatiana, Alpern, Adrianne, Ehwerhemuepha, Louis, Qu, Annie

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CHALLENGES OF DSD: DIVERSE PERCEPTIONS ACROSS STAKEHOLDERS von Kogan, Barry A., Gardner, Melissa, Alpern, Adrianne N., Cohen, Laura M., Grimley, Mary Beth, Quittner, Alexandra L., Sandberg, David E.

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