Methods for interpreting change over time in patient-reported outcome measures von Wyrwich, K. W., Norquist, J. M., Lenderking, W. R., Acaster, S.

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Understanding Patients Referred to a Tertiary Cancer Centre for a Second Opinion von Acaster, S., Al-Ani, M., Braun, M., Saunders, M.

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Impact of the treatment-free interval on health-related quality of life in patients with multiple myeloma: a UK cross-sectional survey von Acaster, S., Gaugris, S., Velikova, G., Yong, K., Lloyd, A. J.

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314 Mapping the Cystic Fibrosis Questionnaire-Revised (CFQ-R) to a preference based utility index von Acaster, S, Pinder, B, Osmond, J, Mukuria, C

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PCR176 Estimating Utility Values for Health States in Metachromatic Leukodystrophy (MLD) von Lo, S.H., Chang, S.C., Acaster, S.

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PCN102 The Impact of Muscle Wasting or Weakness in Advanced Pancreatic Cancer Patients: Development of a Conceptual Model von Acaster, S, Gallop, K, Debusk, K, Meldahl, M.L, Naegeli, A

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Measuring fatigue in iron deficiency anemia patients: A psychometric validation study von Dickerhoof, R, DeBusk, K, Bernard, K, Strauss, W, Allen, L.F, Acaster, S

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Content validity of the facit-fatigue in patients with iron deficiency anemia von DeBusk, K, Dickerhoof, R, Bernard, K, Strauss, W, Allen, L.F, Acaster, S

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PCN87 HOW DOES PATIENT-REPORTED OUTCOME DATA INFLUENCE THE CLINICAL DECISION MAKING OF PRACTICING ONCOLOGISTS? von Meldahl, M.L, Acaster, S, Hayes, R.P

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PCN26 Health State Utilities for Relapsed/Refractory (Rel/Ref) Hodgkin'S Lymphoma (HL) and Systemic Anaplastic Large-Cell Lymphoma (sALCL): Asian Pacific Country Data von Swinburn, P, Shingler, S.L, Kim, W.S, Chao, T.Y, Huang, H, Liu, Y, Acaster, S

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PCR92 Symptoms and Impacts of Aromatic L-Amino Acid Decarboxylase (AADC) Deficiency Among Individuals with Different Levels of Motor Function von Williams, K, Skrobanski, H, Buesch, K, Acaster, S

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POSA359 Caring for an Individual with Aromatic L-Amino Acid Decarboxylase (AADC) Deficiency: Results from a Caregiver Questionnaire von Buesch, K, Williams, K, Skrobanski, H, Acaster, S

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PCR49 Mapping and Linking between the EQ-5D-5L and the PROPr in the United States von Tang, X, Hays, R, Cella, D, Acaster, S, Kessler A, Sikora, Llonch M, Vera, Hanmer, J

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Can the functional assessment of multiple sclerosis adapt to changing needs? A psychometric validation in patients with clinically isolated syndrome and early relapsing–remitting m... von Acaster, S, Swinburn, P, Wang, C, Stemper, B, Beckmann, K, Knappertz, V, Pohl, C, Sandbrink, R, Gondek, K, Edan, G, Kappos, L, Freedman, M, Hartung, H-P, Arnason, B, Comi, G, Filippi, M, Jeffery, D, O’Connor, P, Cook, S, Lloyd, AJ

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PRO61 HEREDITARY TRANSTHYRETIN AMYLOIDOSIS CAREGIVER BURDEN STUDY von Acaster, S., Lo, S.H., Nestler-Parr, S.

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PRO51 Caring for an Individual with Aromatic L-Amino Acid Decarboxylase (AADC) Deficiency: Analysis of Reported Time for Practical and Emotional Care and Paid/Unpaid Help von Buesch, K., Williams, K., Skrobanski, H., Acaster, S.

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PRO46 Measuring carer utility in rare paediatric disease: a mixed Methods case study in aromatic l-amino acid decarboxylase deficiency (AADCd) von Williams, K., Skrobanski, H., Buesch, K., Acaster, S.

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PSS32 Impact of Dry Eye on Everyday Life (Ideel) - Symptom Bother: Estimating Cut-off Scores for Dry Eye Severity Groups von Acaster, S, Verboven, Y, Begley, C, Chalmers, R, Abetz, L, Thompson, T

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PRO136 Symptoms and Impacts of Nonsense Mutation Duchenne Muscular Dystrophy at Different Stages of Ambulation von Williams, K., Buesch, K., Piglowska, N., Acaster, S.

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PATIENT AND CAREGIVER PERSPECTIVES ON TREATMENT WITH LICENCED PEANUT ALLERGY ORAL IMMUNOTHERAPY IN PRACTICE von Forster, K., Lawrence, C., Shand, G., Tilles, S., Acaster, S., Donelson, S.

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